HI JUST WANT TO SAY TO ALL MY FELLOW SUFFERERS
THE FOLLOWING.
YOUR NOT CRAZY
YOUR NOT LAZY
YOUR NOT SEEKING ATTENSION
AND YOUR NOT SWINGING THE LEAD
YOU ARE ILL.
DO NOT TAKE ON OTHER PEOPLES NEGATIVE
AND NASTY THOUGHTS DONT ADD IT TO YOUR
STRESS LEVAL.
BE NICE TO YOUR SELF .
Tina, you are right but I feel guilty every time I have time off work for it. I have worked all my life and I am having great difficulty in coming to terms with this debilitating illness.
Thank you.
Hi Tina, I ended up in a and e on sat night begging for some pain relief that would work, as I just wanted to take all my pills I had had enough of fighing constant pain! Ii had oramorph, co-codamol and tramadol. My last dose of tramadol I took 4 just to try o take the edge off, then couldnt stop crying for hours, me and my partner went to chester a and e. i explained i just needed some relief even for a couple of hours As i couldnt take any more pain. They did blood test, gave me iv paracetamol, came back a little later saying there was nothing wrong, took out the canula and walked away from me looking disgusted! Why woulld I want to waste my saturday night in a and e crying ffs?! This is the attitude from so many people, its dreadful! Cos thre is nothing to prove our pain, they think we are making it up! I was in such a state i really did want to take everything I had,I felt so desperate. Feel like giving up x
i know but this illness is trying to tell you something the body is knackered it needs a long rest . i know a lot of people with this condition and the more you push your self the harder it gets , i tried doing step arobics at the begining of my illness thought i thought if i lost some weight id feel better, a banged away at it for 3 weeks feeling worse and worse as the days went past, the latic acid built up in my limbs so much i could hardly move took weeks to recover and i think i damaged myself quite a lot .its a case of the spirit is willing the body just cant do it.
Hello Ianstokes66, I feel the same way when I have to take off work due to the issues from fibro and I work from home. But I am in front of a computor 8 hrs and that takes a tole on the body as a whole.Sometimes even sitting for a few minutes and trying to get up its a chore so, hang in there and keep talking about it, it does help when you are talking to people that understand.
Hello Shazzywazzywoo, after about the 10th time I was in my Dr's office with pain all over, and after million tests, he just looked at me and scratched his head. I had been sleeping maybe 4hrs per night broken up, trying to walk everyday at least around the corner. Migraines lasting at least 4 days, ended up getting shots in my forhead and the back of my head to give my head a break. None of the medication has helped. I have been looking into some of the ideas that I have received from Tina24537 so we will see. To be continued. Hope all goes well.
i dont know how you are fixed for cash ,but please try magneisuim bath flakes from ebay they help your muscles to relax its tight stiff muscles that give the pain if you relax them your get less pain the pain.
what we have is much like when a sports man over does it and hits the wall of pain , just he recovers with fluids and rest the pain just keeps coming with us ,i promise i do understand.its like having the worst ragging toothache all over your body.
the magneiusum is dear but well worth it i used to buy about £100 pounds worth enough for about 3 months u can buy it in liquid form to.
i dont have a bath anymore so i buy liquid form and rub it in my legs and thighs . helps cut down on the useage of my rhematisum oil i use that for my back neck and trunk and arms.
i dont use the magneisum liquid on my body because putting it straight on to the skin is quite sore its a kinda of salt so you can imagine ,but in the bath its fine .
the protein shake i mentioned yesterday , is whey protein shake by solgar vitiamin company . when iv checked my bank statement i shall be ordering some . next week .hopefully.
at the moment its my bladder given me hell
i am sweating so much with this heat i am constantly thirsty so i am drinking hugh amounts of decaff and water ,and peeing about 3 times an hour, its driving me mad and starting to hurt .
i believe you as i am sure everyone on this forum does , iv been in so much pain iv even considered trying weed ,its supposed to be very good for pain , but i am abit of a coward .so i stick to what i am doing for now it seems to be working.
dont forget to try a self help hypnoises cd for stress there not very expensive do it every day twice aday if you can, i promise they do help because your relaxing the tense muscles its hard at first but with practise it comes easeir and there is a reall bennifit.please try i know its hard you get so wrapped up with the pain you cant think straight you just want it to stop .
thanks Andrea, please let me know how it goes! I know how bad migraines get, its awful and I am lucky I dont have them as well. They only lasted a short while with me thankfully
i know Tina I have spoken to you before. Unfortunately money is tight, so I am watching every penny. Being off work since last sept has really put me in it financially, but if I can get some I will. I want to try weed too. I know it helps ms sufferers I just dont know where to get it! Lol and my children are against me taking it too whih doesnt help. You would think after seeing me crying so much with thepain that they may be a bit more understanding, but no! I take hemp seed oil but its not doing anything for me, just my dog
no problem we all need to think like this not easy i know
but we should try and but i our needs first .
i blame thatcher ,because i dont know if you have noticed but this condition has only really flared up since the mid 90s
do remember your mum or nan having this i dont
now i no loads of women will jump on me for this , but i really do think that women have taken on to much, far more than our mothers
the presure is terriable, taking kids to school picking them up doing pack ups , the washing and ironing not to mention shopping taking them to after school activites and going to work as well with all those presures .
i am not saying that married women shouldnt work i am just saying ,that in the past mother hood and taking care of the home was hard physical work but if you did it well you were well thought of , now if you stay home your classed as lazy.
how many men take care of house kids and go to work . not many .
i think thatcher put to much presure on women , just because she had nannies and home helps . dosent mean everyone can afford it.
fibro mainly affects women just wondered if its a kinda of alternative to a heart attack , men over do it and get loaded down with stress ,heart attack .women get this . i 'm making any sense .
i know, its because i wouldnt know where to buy it safley that i wont try it .
,yes iv heard that people with ms and athritus use it with great bennifits, sorry if i keep banging on i dont mean to i just want to try and help , peope sort the wheat from the chaff ,iv tried so much stuff over the years ,
its been an expensive journey to where i am now i just try and help others so they dont have to waste so much money trying all kinds of quirky and sometimes daft stuff.
i havent tried hemp oil , but iv got some hemp milk havnt tried it yet .
if i repeat myself its because i forget who iv given advice to i am not meaning to be annoying . i will try and make a note of yr name so i dont reapet myself , but i do have a memory like a sieve at the moment .
kids just think that your going on mines the same even my husband try not to let it get to you .
One thing I can say, is that my husband helps alot, he will cook and clean without asking if I need help. Ive been working for 33 yrs only taking off for maternity leave and I am tired.This makes it worse.
The way my memory is not days, my daughter told me I sound like her grandmother, my mother inlaw repeats every few seconds. There are cannibus stores for medical purposes, I cant do it due to work.
lol dont worry you are not being annoying at all! I would like to try some of the things you have suggested, but need to wait till I have enough money first. Had a good day yesterday, so inevitably suffering bad today, but it was worth it! Need to enjoy the good days when you can eh?! X
Cannibis stores? Isthis uk or us?
US I am in San Diego CA.
I think I am done for the day, going to clock out early. not a good day for me. I will talk to you all tomorrow, have a wonderful day.
Since speaking to you here a few days ago, i havent left the house, except to go to the docs yesterday about shooting pains in my forehead,i have had for sometime. which i think is still effects from when i had a bad fall back in march being referred back to hospital. as some nerves may be effected!!?? doc told me up my amitriptylene, took an extra one last night and must admit pain is not so severe today, still feel totally wiped out, just want to sleep. As much as i love this weather, i wish it would cool down just for a day or two. Thank goodness i live alone so only have myself to worry about. apart from my dad luckily he is doing ok at the moment, I applaud all of you who manage to still carry on working, and look after children and homes. On the subject of weed, my friend bought some for me a few weeks ago but only tried it once it did seem to relax me but dont want to use it when im on my own incase i go gaga.
ok i dont think there is anywhere like that here in U k