I was told I had fibro around 5 weeks ago and for the past 2 weeks I've been on holiday abroad. Thankfully having no jobs to do like cooking cleaning etc my symptoms faded away and I had an amazing time. However on returning on Friday, my body has decided it doesn't want to carry on this good work and it's decided go back again to the old days. I've already been back to bed twice today and walking is a struggle. Has anyone experienced something similar? Many thanks
Hi Katharine
Yes, unfortunately with fibro it does happen. Feeling good one minute and pretty awful the next. Glad to hear you had a nice holiday.
Gentle hugs x
I have some kind of symptom daily. Just curious how does your legs feel that makes it difficult an is it in just one or both legs?
I'm finding that generally just my whole body feels stiff so it's a great effort to get about. I'm not sure if it's due to the tiredness or not x
im in bed all the time in constant pain and i do pass out with it as well its a struggle to even go to the loo and mostly i wet myself as i cant make it and for me its like a death sentence and i just want to be my old self but its not going to happen i just cant handle the pain its so intense i hate it
hiya have had fibro for over a year and only wish mine dispeared while on holiday so really cant advice their hun
love and best wishes
Hi Katharine you can sometimes go into remission with fibro, where everything disapears for a while it happened to me, I went into remission for about 3 weeks but my goodness when it came back didnt I know it. I was in bed so Ill I thought I was dieing? my gp came out and got carers in to look after me she said I wasnt to be left a lone. I was in bed for 6 months no mobility couldnt do anything for my self looked after by my husaband and carers. 2012 2013. 2014 Ive had to have carers in to look after me. My mobility has got worse now having to use wheel chair. take care gentle hug
Hi Derek
Have you tried Cognitive Behavior Therapy ( CBT) it's mindfulness of your thought process. It doesn't take the pains away but helps your mind to control the pains and the way we put life into prospective. It really helped me after suffering over 20yrs of pain and only been diagnosed with Fibro Aug 2014. Had my CBT in Nov 2014 for six week and found that it made me more of a confident person.
Hope you have a good day and gentle hugs.... x
Hi Bee Im thinking of giving CBT a go, its good that you had it and it helped you take care gentle hugs have a good week and hopefully with not too much pain xx
not yet will ask my doctor about it but the pain is so intense at the moment i dont know when i will be able to get there unless i can get the doctor to come to me but will ask about that over the phone or get my wife to ask for me
Hi Derek sorry to hear your in so much pain. what I try to do when the pain is really bad and it doesnt always work, but I try to relax as much as possible and focus my mind on something else other than the pain Im in. it could be a magazine Im reading word search tele. see if you can focus on something anything to take your mind off the pain your in. take care gentle hugs thinking of you
its hard as the pain is all over my body today and is so bad nothing i trey is working and i do try to have faith in things i try but its just not working today im so exhausted i cant even get out of bed and the pain is of the scales but all that makes me happy is talking to all you guys on here as its nice knowing im not the only one and it gives me some comfort and its also nice to have you all as friends so thanks to you as well as everyone else it means a lot to me and if theres one good thing the pain has given me its all of you so thanks to you all for not just being there for me but for everyone else to
we are all in this togeather and will do all we can to support each other just rest and if possible try have a sleep. wish I could do something to take our pain away take care gentle hugs
I know it's easier said than done.....but focusing on positive thoughts and happy moments is the way forward.
Dealing with a day at a time and only do what you can is the first step. The pains of fibro can take over but with the positive attitude we to can fight the fibro pains away even if it for a short while.
The people on this forum give so much support and advice and you will feel like part of the Fibro Family.
Gentle hugs to you and hope you have a better day tomo x
Hi Kaz
Definitely give it a go. Good Luck and if you do decide to go remember to keep and open mind and hope it gives you as much confidence as it did with me. It really opened my eyes to a lot and for me it's the best thing ever. I see and do things with a different attitiude to my daily life.
Hope you are feeling much better now and the earache has disappeared.
Gentle hugs and take care x
thank you i used to be a very good martial artist so im a figthter but this is a fight i know i cant win but iwont let it keep me down all i can say to fibro is good luck you may win but not easiy as you have one hell of a fight to put up to beat me
me towish our pain would go away but we know it wont but i have had a couple of bottles of abbot ale and i must say it hit me in a big way i felt a bit tipsy i used to be able to handle it but i now know i cant so time to move on from the past and all im doing now is taking it easy and resting but thats all i do though i just cant seem to do anything its so depressing i have had this for years but its only now just sunk in but im finding things easier talking to you and other people on here and it helps even though its for a short while
Hi Derek it is hard going what we are having to deal with and put with, but we have to keep going forward and not look back. we cant bring the old us back I really wish we could but we cant. its a case of just taking a day at a time just go with the flow as they say. we cant do any different its onwards and upwards. plus when Im having a bad day I stop think of people that are worse off than me children adults fighting cancer. it doesnt make our battle any less but their are people in this world battling just as we are. I watched my mum battle for her life with cancer I nursed her to the end. she fought hard my mom was a fighter thats how I want to be. our bodys tell us when theyve had enough and they just want us to rest, dont fight against what your body is telling you as I found out to my cost it only makes matters worse for you. Take care gentle hug thinking of you
Hi Bee I will have a word to my gp about refering me. Earache had gone off then come back tonight, Ive had some upsetment today got to take mt dog to the vet hes not well, and had some upsetment with my son, so on a downer. never mind hope your ok hope all goes well wed for you and you have a good week take care thinking of you gentle hugxx
for me its hard as i cant even play with my near 3 yr old son and that is the worst pain i have ever had it hurts more than any other pain i have ever had to go through but i dont want to go on to much about me without knowing how you are and how you deal with it