I've had increased (tremendously) within this last year of Fibro pain. I truly don't believe it is all due to Fibro. Does anybody hurt from the top of their head, to the bottom of their feet? I mean everything hurts. My calves, elbows, toes, fingers, horrible headaches, temple pain, eye pain, neck pain, just pain! Everywhere. I am on medication because I simply will not live in this sort of pain. I used to be very athletic, but I can't even get out of bed w/out groaning like I am 90 years old. I am 60, female. I began physical therapy a few weeks back, and the amount of exercise I do, a gnat could do it, but for days following, it feels as though I've lifted 20 lb. weights. My entire biceps, triceps, everywhere is just ridiculously sore and painful. Again, I know healthy pain as opposed to this weird pain. It simply should not feel like this. Any other people experience this? Have had Fibro, Chemical Sensitivity, Chronic Fatigue going on 16+ years. I've had mri's, cat scans, blood work every 3 months and yes,I do get tested for deadly black mold as well. Many thanks.
Hi yes I have fibro also and I have this type of pain it is horrid I have been the hospital and had every type of test and scan going and all thy say it is fibro but I think there us more going on if u want to speak in more detail inbox me if u want xx
Hi my doctor who is awesome has told me physical therapy isn’t good for fibromyalgia it just aggravates it acupuncture is apparently the best it gets the blood flowing to the spots that hurt the most I’m like you I think it can’t be fibromyalgia just fix me fix what is causing all this pain but you symptoms are very common for people with fibromyalgia I’m
With you on the pain medication I can simply not fuctiom with out them I have ordered some hemp oil to try and help me with the pain some good reviews some not but at this stage I’m willing to to try anything my doctor put me on milnacipran which is meant to be a wonder drug for fibromyalgia but it just doesn’t agree with me it put more serotonin in your brain and is meant to block out your pain my neck MRI has come back with a few things that could be causing my neck shoulder elbow pain so now I’m having a whole back MRI so I can actually see what’s going on hope I’ve helped you a bit with some information wishing you all the best but if I was you I’d definitely stop the physical therapy and start acupuncture give it a go can’t do much worst than what your going through 😘
I don’t know how to inbox ? But happy to talk to you xxx
Yes, I have days that are exactly how you described the issue. It's horrible I know. Won't type long because I'm dealing with the same issue right now. Take it slow and if you need to lie down, do that, I do. I pray that you feel better soon. Take care of yourself.
I feel exactly the same really gets you down wish there was a miracle drug to make us even human for just one day
Thank you ladies for your kind wishes sending you both my love and support ❤️😘😘
You said weird pain which resonated with me, sometimes my shoulder or my knee hurts and I always say oh thats ok with me because its real pain and I can live with that, its the weird pain that comes from the inside that I struggle with. I had shoulder pain the other day and everytime if lifted my arm it was really painful but i didnt mind it at all because it was a true pain that hurt when i moved.
The pain i struggle with is the weird pain from the inside out, its not a pain that is familiar with anything pre this weird pain syndrome. Its a feeling/pain that makes me squirm, ill be constantly stretching trying to relieve it but it doesnt go away until it just spontaneously does until the next time.
The only thing i can liken it to is indigestion in your bones, joint and muscles
Unfortunately it sounds exactly like a horrible 'flare' of fibromyalgia. Flares can last a long time and the physical therapy is just exacerbating it to the 'nth' degree. I agree with the others who suggest stopping that, it doesn't actually help and can just make things worse. I have just started with hemp oil (CBD), it tastes vile but I will give anything a go. Too early to say yet if it works.
They say fibro doesn't get worse and as it doesn't end up killing you, like say Motor Neurone disease, it's not considered 'serious'. But I believe it does get worse because as your body ages naturally all the things that come with 'normal' old age are massively increased due the the sensitivity and inflammation already present. I think living in massive pain IS life threatening, if only in terms of a life worth living.
Hopefully if you cease the physical therapy, your flare up pain might subside, unfortunately this could take weeks or months.
FROM: nonickname1...Hi. I should of mentioned I am a new member here. So bear with me please*. I am trying to send back a sincere "thank you" to those of you that replied... I cancelled out my Physical Therapy today. I was relieved to read that there are others that it simply doesn't work for. You begin to feel like a freak or something, especially when you're told, "we have many Fibro patients and it's helped them." Well that's them, and good for them.
*please inform me where I should be posting the "thank you's." I am not real good on the technology side of life.
I have been wondering how well massages and hot tubs would work...I do know my insurance would consider that a luxury and would not pay for it, so that would not happen because I can't afford out of pocket. I will try the acupuncture which I think insurance pays that.
Thank you all very much. If we can all work together and share details, even what you might consider a very insignificant one, could be the missing puzzle piece to another person's illness-disease.
One last thing, I see where people say, "post privately, (or something to that affect)...does that mean I can not go in to detail here?
Thank you Donna...I have no idea how to "inbox" either...
Hi Delores, I am sorry for your pain as well. It's a relief to hear other people having the same only because it gives it validation instead of feeling like people try to make you feel, like a hypochondriac...oohh boy, that word should not even exist. That word was only made up for Doctors that have no idea and don't want to waste their time figuring it out. If we don't fit the mold, forget it..., moving on, you've used up your 5 minutes with me, says the Doctor...for the record, I live in Az., and I do have a wonderful Doctor who specializes in these areas. People fly in from the states to see this man and he IS taking new patients.
Hi Mandy,
Isn't that a song too? "Human for just one day?" If it's not, it should be! lol.
Thank you for your response. The best to you.
Hi Charlotte, I was sitting down to answer back. But now exhaustion has taken over and that's literally, all she wrote for now. Hope your day is somewhat pleasant. Thank you for sharing your information.
Right on there nonickname, I’ve had it for 30years now...the first years were my worst. I would feel like I had been run over all over my body by a Mack truck. But it does get better, I only have flare ups now, which is manageable, very sore though all over.be blessed and have a lovely day.also stress is the worst thing ever for fibriomyalgia...it loves it, it’s very hard not to but try not to stress💐💐
Your very ei hope acupuncture gives you some relief I can’t see hot tub or a spa hurting you but it may aggravate it so maybe not just see how you go with acupuncture first I’m not sure about the private messages either lol or how that works hopefully someone can tell us wishing you all the best thank god you canceled your appointment I was worried that it would make your pain even worse xxx
I also have Fibro. I have had it for about 14 years, and through some of the worst times of my life. i've tried every med available on this earth it seems, and nothing has taken care of it. I was first way back when put on Celebrex, and that did nothing. I've been on etodolac, cyclobenzaprine, gabapentin, and tried using over the counter aspirin..
for a while now ive been on Cymbalta and Lyrica. They somewhat seem to help at times. But now ive been diagnosed with RA too.. So is it the RA or Fibro? Ive tried exercising, not exercising, water aerobics, biking, .... exercise IS NOT THE ANSWER. They also now have me on Tizanidine and I am getting infusions of Remicade also which seem to help. But there are still days when the barometer drops that I feel awful in my shoulders and arms and hands.. Recently the Dr put me on a Medrol Dose pack and now im taking prednisone in a small amount which seems to help too.. Im sick of not feeling well....and the pain is absolutely terrible..
Here here Lesley, totally agree, just because something is not life threatening chronic pain with no real help from meds or other techniques = a life ruined. I’d find it easier if there were specific answers and proper treatment plans but no one has any bloody idea what it is, what the cause is and how to effectively treat it. Maybe in 20 years there will be some proper information on Fibro but everything I read now is speculative. To be honest I want to live so badly because of my son, I want to see him grow up but if I hadn’t had him I would have topped myself by now. I’m not depressed and say that from a simple place of I don’t want to live in pain and there isn’t sufficient medical treatment.
But actually the Lyrica has helped a lot . I also take 325mcg of Percocet 3x a day. Doc says that Lyrica and Percocet work together.. They definitely do.. Finally ive found something were I can go to work and not feel like a zombie
It took 2 years to get Atypical and Typical Trigeminal Neuralgia diagnosed. I had brain surgery in December of 2009. Pain is now worse. The tests were unending. I found getting the diagnosis at least helped me feel I wasn’t crazy. Then later came fibromyalgia. I take one day at a time. I lived my entire life, until i was in my late 40’s, pain free. I have great empathy for those suffering with chronic pain. I take the bad days with the good ones. My emotional support cat, Baby, helps a lot. She seems to know when I’m hurting and lays on my chest. What a blessing she is to me. I journal my pain, as I’m sure my family gets tired of hearing it. That helps me a lot though I don’t go back and read it.