Fibro/ Restless leg syndrome

Bones, joints and muscles
1

I have restless leg syndrome, some of the sensations you can have are, Burning, Crawling,Creepy and a tugging sensation. I have had the burning sensation. It has been very painful. it has caused me to have sleepless nights. Have any of you ladies gents had this  x

2

Hi, yes I have had this for over twenty years now and without medication it is impossible for me to sleep. I take Ropinirole 2mg and Pregabalin 150 to 225mg per day, however there are times when even this fails to settle it.

 

3

Hi glenys58335 blimey over 20 years, I feel for you. Ive had it for 2 weeks thats been enough the burning sensation has been driving me mad.  Its a new symptom for me, fibro loves throwing new things at us.. I cant take tablets for fibro Ive had severe reaction to everything Ive taken.I only get relief from hot waterbottles and wheat bags. take care gentle hug

4

Not that I can recall. Sounds like it would be a challenge to get any rest.

5

It certainly has been a challenge to get any rest, the burning is a horrible sensation to have oh the joys of fibro not take care

6

Hi Kaz

Sorry  I don't have any miracle cures - it's truly horrible. Have you tried ice packs?  I had it back last year and could not have even the lighest clothing or sheets anywhere near me. I found aloe vera gel helped a little with the burning.

7

Hi kaz, I was diagnosed with Fibro a couple of years ago but have suffered with restless legs and severe cramp's for over 10 years. It drives me mad I take Baclofen and Pramipexole which usually keeps it under control also Gabapentin for pain and muscle stiffness,Omiprazole for acid reflux, Metroclopramide for nausea and Colofac for IBS.

I am suffering with restless leg's at the moment. Hope you feel better soon Caza x

8

I wish that there was a magic wand.

9

Hi Kaz

I get that too, it is horrible makes me jump sometimes.Good luck at hospital today

10

Hi Maggers I havnt tried ice packs but will give that a go. I cant bear any sheets clothing on me at the min they are so painful also. Im nipping out in a bit will grab some aloe vera gel try that also thanks for that maggers. take care .

11

we could do with a magic wand it would be waved around franticly on every 1.If only eh take care

12

The burning sensation is horrid wish it would hurry up disapear flaming fibro. will be glad when hospital is over arnt looking forward to going.sad never mind Im thinking of treating myself to something after so that will cheer me up.take care Anne 

13

I have had restless leg all my life, I thought it was natural and everyone had it, but this last 7 years it has gone really bad and when it comes on I even have it in my arms. To me it feels like you are half way though a good stretch but it never finishes so you are stuck with that feeling, cannot stop still, have to walk on the spot and start punching and kicking my punch bag it drive's me crazy, could punch and kick that bag too piece's, it over takes all my pain, the next day it feels like i'v gone 10 rounds with Mike Tyson and he has tried to pull my arms off, like my shoulders are coming out of their sockets, I never get it in the day though, always at night.

14

Hi Trev sorry to hear youve had it all your life. Ive had it 2 weeks its driving me nuts. I have it day and night. Im just hopeing it will go off soon.its horrible sensation to have. I have it in my legs but not my arms hope I dont get it in my arms legs are bad enough. take care

15

Hi Caza its a horrible sensation to have hope it soon goes away, I too suffer with cramps Ive had the burning sensation for 2 weeks now get it both night and day, cramps I get quiet oftern the not so joy of having fibro take care gentle hugs x

16

I do sympathise with all who have RLS, I know Fibro is terrible but if I could ditch one of them it would be restless legs. Before I had the Meds I thought I would go mad. I do know that those with Fibro in many cases also have RLS, you don't have to suffer your GP can prescribe for it.

17

Excellent idea, it will do you good to have a treat

18

constantly all the time and i cant sleep even with sleeping pills it just wont let me sleep

19

I know the feeling derek the burning is driving me nuts hope it soon eases for all those suffering with it

20

Yes I get that, I feel like I get that in my arms too if that's possible.

Tonic water is supposed to help because of the quinine.

Pregablin gave me horrendous restless legs.

Also try cold shower over your legs, it works temporarily