Hello everyone. After reading some of the stories on here I really believe a lot of you have Lyme disease/ Rocky Mountain spotted fever. My symptoms.tenderness hurts to be touched/neck base skull discomfort & popping & cracking. Same with my back feels like needs popped all the time. Bad fatigue. Ibs symptoms.pain in ribs/ lymph nodes. I've tested positive 3 times now for Rocky Mountain spotted fever. If you haven't been tested please talk to you doctor about getting tested.
I've been tested for Lymes but it was negative however i spent 5 weeks in Arizona last summer and my symptoms started only two weeks after returning!
Just because it came back negitive doesn't mean you don't have it. There are lots of people that get a false negative with lyme & rmsf.
What test they use? ELISA test? If so talk to doctor about western blot test. Please research false negative lyme test.
I'm in UK and have been tested for Lyme disease which isn't common this far north yet. I haven't had the normal signs of the red target after being bitten, I have been diagnosed with fibro for over twenty years, if it was Lymes I'd be, at the very least, too ill to function. So yes some people may have Lymes but not in the UK where a lot of the people are from.
https://patient.info/health/lyme-disease-leaflet UK had lyme. It's pretty much every where. Take look at this web page
Emis Moderator comment: I have replaced the link with a link to our leaflet which includes epidemiology figures and the specific areas in the UK where it is a risk. RMSF is not an issue in the UK
I sent a link but has to be approved. Lyme is every where. I didn't get the bulls eye rash. Not all people get the rash. 10 months took for me to get diagnosed. I have rmsf that led to fibro & arthritis & tendonitis
Lymes disease has only been in the UK the last few years and even now it isn't common. There have been a couple of cases around the Cheshire area and a couple in Scotland but none here yet.
Here in the UK, we do have Lyme disease in certain parts of the country. I know in Norfolk, where I live some of the Nature Reserves have a warning sign telling people to take care. I have been tested and its negative, as we expected. I don't think its that common, but I don't really know.I've been tested for so many things, you tend to loose count! Its a good idea to wear jeans or something on your legs, when out in the country-side.
I'm in the UK also and my GP has reassured me that although i came back from a very hot state he said it definitely was not Lymes. I will ask however about the western blot test .
How and where did you get rmsf? Jeanne Xx
Sorry Woodbon I meant in the North of the country I know there is quite a lot in the south. They are slowly creeping north and have reached the Highlands but for some reason there is a gap, we have none here yet! I'm always careful as we walk on the fells in Cumbria as well as walking in the Highlands and Islands of Scotland and I hate tics with a passion, I had one on me last year it really freaked me out lol.
As the moderator says there are certain areas in the UK Where it is an issue but not everywhere. RMSF is not an issue in the UK. I don't feel it is helpful to introduce another thing for people who are already unwell to worry about. A lot of people don't live in or visit the country in the UK so are unlikely to pick up a tic. Apologies to the moderator if this seems a little harsh.
Had to have gotten it here where I live middle Tennessee.
Yeah and not just ticks carry it. Mosquitos carry it also.
It's just to let people know my story. And let them know lyme/rmsf can cause fibro & arthritis & all other health problems
i was dignosed a couple of and months ago with fibromyalgia and cfs i was watching a program the ther night monsters inside me well the lady on there had same symtoms and sh had lyme,s disease i live in u,k never fought i could be this and not sure idf octors have tested me for it. 8 years ago i had a tick on me i live in wales it was on m stomach but don,t think it bit me so fought no more of it until seeing this program the other night not sure what to do now weather my doc will test me for it not sure.
Wouldn't hurt to get checked. What all symptoms you have?
so many symptoms started last year but the fatigue has been for year headaches like i,ve never felt in my life they with me everyday joint pains nearly every joint numbness face arms legs weakness bloating stomach sickness everyday memory problems can be really bad chest pains and the list would go on . i know they have tested me for lupus because my brother had that but all clear . only thing that showed up in blood is blood test ca125 for cancer came back higher than normal so got to keep having blood tests for that all the time like all of us i think we.ve all been put through the mill with blood tests its such a worrying illness .
This is what I do. For the fatigue & to help with pain I take mucinex day & night sever cold tablets. And I found to help with joint pain get you lipton green tea add tbs of sea salt. Also get Vitamin c pills & magnesium pills. I add vit c & mag pill to my tea. Helps a lot. Also I do Epsom salt baths. If you do vit c salt protcol be sure drink plenty water. But it really helps me A LOT with joint pain. I also take clartin d cause there was study done saying it killed lyme in test tube study that was done.