fibromialgia and coping with heat and sweating

i have ordered my cool vest cant wait till it comes hope its all it says it was because i cant do much more of these tempertures ,its killing me i think i will be wearing it in doors as well. at this rate will let you know if it works .i am desperate.to get cool .

apperently we will catch the end of an hurricane so they were saying on the news

My head sweats the most, whatever the weather. I have just done the dishes and the sweat poured from my head like a tap!  My hair is saturated during the night too, and again, when I am doing the dishes. Really annoys me! I wash my hair and it feels lovely for about half an hour after it has dried (cant hold the hairdryer so I just put it in plaits and leave it) then the sweating will start and my hair feels horrible again! Hardly worth me washing it, but I cant wash it often anyway cos I struggle getting in and out of the bath and lifting my hands to my head! Hope it works, let me know. The ironic thing with me though is that I can be freezing at times, especially my feet, even when my head is sweating! Lol

i no what you mean for me its extremes in winter if i am still my feet and hands  become frezzing but the trunk of my body can be hot ,if i move about i get the circaltion moving and i am sweating with the back of my neck becoming wet .

summer is the worst esp this year , the sweat is just pouring of me dont have to do anything , and the heat in my body is just awful,

i will let you know if the cooling vest works, [i hope so]

why dont you try in the mean time a chillow pillow that you feel with water you can put it in the fridge then take it to bed with you ,you supposed to put it in side your pillow case but i hold it to me like most people snuggle a hot water bottle,

have you tried one of those neck scrafs that have beads in them you soak them in cold water with ice if you have some for a few minutes till the beads swell and take on the water, then you dry of on towel so its not dripping and tye it round your neck as the water evaporates it cools you,they are about £5 on ebay ,

you can wear them any where and always pop to the loo and refresh them under the cold tap, it might not last as long as it does normal folk mine dosent but it should get you thru the washing up or a meal

.worth a try.you will sweat more on the head as that is wear your heat escapes from , you can get injections on the nhs for excsive sweating but i shouldnt think they would be suitable for the head area,

i have also found on ebay , a blue natrual gel its for cooling muscles  but it really makes you shiver so on the days i have had to go out in this heat iv applied it all over it does work . if your interested i will get the name of it and the seller and let you know. i no its a misery but you just have to keep plodding along . i get precious little support or understanding , from my son and husband , and i have no friends here mostly because i cant get out about. i am just glad i can chat on here.

and hopefully help someone.

I will look out for those on ebay thanks.

i know what you mean about support from people. My ppartner was really great for a while. Now he just seems to ignore me and I wonder if its resentment. I sometimes think he thinks I am exaggerating the pain! Blimey for what reason!? I would much rather be out and about enjoying myself! He just cant get his head around it, how something can come on so suddenly. We had bad news at the vets yesterday about my dog and basically we need to have her put to sleep tomorrow or Friday. The stress of that visit I am sure was what caused a new pain that just suddenly started last night in my knee, felt like  a piece of glass was in it, its that sharp, but there is nothing there. He said it looks swollen and I must have bumped it but I know I havent. I am sure you are helping lots of people on here. You seem to know the products to buy etc, so well done! X

oh my sweet, my husbands the same. oh you, must of banged.

it . somewhere .

no the whole street no's when i have banged a part of my body it hurts like hell. i think i would remember. 

if he does anything ,its iv done the stairs for you iv washed up for etc, when i fell and broke my nose the other year,he said you have caused me a great deal of inconveience now. [really made me feel good] just because he had to ring up work to get a week of , because i had slight concusion and small broken bone in my hand that had to be in a splint.as well as my nose,.being broken.

I AM SO SORRY to hear about your dog i can feel your pain seriously even the thought of having my dog put down brings me to tears can i ask what it is she has, if its not to painful a question ,

i know this is going to sound a really silly thing to say,but try not get to stressed up i did when my dad died and i had an awful bout of shingles that lasted months

i only know about stuff because i am for ever searching for answers

i wont take meds , because i dont trust doctors, so i have to find other answers. 

once again i am so very sorry about your dog , god bless her and you. your laugh at me now .because i am crying for a dog i dont even no how crack pot is that.

i suppose if you love dogs then anydog is like your own.

esp when a story in the paper yesterday shows you the other side

of people ,a puppy was tied up in a carry abag and put in a council bin thank god someone found it and its save and well.

i liked to do the same to that person but i tie the bag really tight.rotten horrid people in this world .

Yes, there really are some nasty people about. I think I would do time if I saw someone abusing an animal. I wouldnt be able to help myself. I have gotten into trouble before for screaming at someone who I saw hitting their dog and again when I saw someone smacking their child. I had a right go at them in busy birkenhead centre. Got told to mind my own business. I said it is my business! Anyone being abused is everyones business and I will never butt out!  She has a tumor in her mouth and it has suddenly become much worse, bleeding a lot. We got told 3 months ago but she has been happy, enjoying her walks etc when I have been able to get out, until the last few days and last night she was crying. I got up and made a chicken paste butty and put a tramadol in it. It helped her a great deal. Its the only way i can get meds into her, she loves paste butties. Shes lying here with me on my bed now but does not want me to touch her. I only lost my gorgeous kitten 4 weeks ago and he was only 21 months old and the most adorable, loving cat I have ever known! He used to wake me several times a night pushing his little face into mine wanting kisses, purring his little head off. He was the cutest, happiest most loving and lovable cat ever. It was liver failure aapparently but took vet 6 days to find out and he suffered the whole time. It destroyed me and I still cant believe he has gone. Jess, my dog, has been my constant companion for 11 years since I rescued her. I took her absolutely everywhere. We used to have caravan holidays so that we could take her with us. I have walked her all over north wales. She used to love being out with me so much. She has been on the great orme, anglesey, loggerheads, moel famau, countless canal trips. When we found out we booked a canal holiday for a week and she loved it. She just loves being near water and seems to be fascinated with it. It killed me and I went theough a bottle of oramorph in a week but it was worth it. She jumped off the boat to come and do the locks with me each time. I have to ringvet today but I cant bring myself to pick up the phone. I know I have to though, especially after last night and the way she looks today, although she is not crying. Thats the thing-she has not complained at all and still goes crazy every time I come home from the shop, squealing with delight just cos I am back. I am going to miss her so so much and cant bear the thought of her not being here, not greeting me, not forcing me out of bed to walk her. She loved Marvin so much too, my kitten, and I keep telling her she will be with him again. He absolutely adored her and would snuggle into her. At first she didnt really like it, but he was persistent and she soon got to love him. He took to her immediately at 7 weeks old and slept next to her every night after he had had his kisses and cuddles from me. I will only have Milo, my other cat and I am worried he is going to be lonely. He didnt eat for a few days after Marvin went and seemed to be looking out for him, even though we did let him know as the vet said it was definitely the right thing to do. He looked shocked, it was horrible, but I think he thought he was coming back. He used to sit on a little wall just looking around the garden. He is eating ok now but I know he will feel it when Jess goes too. Gosh life is so difficult!

thanks shazz i am now in floods of tears , i love animals so much i cant bear for them to be in pain or hurt in anyway. i think you might have to get a little mate for your remaining kitten ,because loosing another pal might be to much. cats a very sensitive cretures,

my brother lives in france and so far each time he lost a dog that he went over with ,his come across another stray to take its place, they went over with two a king charles , and rotweiler both have since passed on ,vets arent as caring over there as they are here, he now has 5 because people just dump them there or have them put down , waynes like me a big softee just cant let that happen ,mind you he does have a large house and a lot of land , he now has a rotweiler, scottie, a hound, yorkie,and a border terrier, and a cat.

i expect he will attract more his like the pipe piper only with dogs.

think of the pain shes going to be in sweet heart , and just bite the bullit i know its really hard , and i know that given the choice you would rather find her gone in her sleep in her bed ,rather than have to have her put to sleep,   i will be thinking of you ,god bless ,

 

Thank you. I am sorry for upsetting you too!

i keep saying I cant get another pet, as its just too painful going throughh this each time, but if one finds me then I would never turn it away. All of my pets over the years have managed to find me, rescued in one way or another, except poor Marvin who was my kitten-he came from my next door neighbour, probably why he was so happy all the time, he was 7 weeks when he came here, a tiny bundle of love and energy. I feel he may come back to me so I will be looking out for a kitten in need over the next few weeks. Just seemed far too soon for him to leave us.

good on your brother. I would do exactly the same thing if I had the space. I always say if I won the lottery I would buy land and look after all the unwanted, neglected peta and have a llearning disabilities day centre and mental health drop in and would pay them to help look after the animals, as well as other projects to keep them occupied, growing fruit and veg, making crafts to sell etc. i used to work with learning disabilities and also in mental health and I know how much services are needed here now after so many have been shut down and the need for them to feel helpful etc. well, I am going to see if she wants a walk, if she is up to it

thanks but theres no need its not your fault that i am over sensistive,

i always get dogs from rehoming kennals,to .

 iv never found one but if i did and couldnt find its owner , i woould keep it.

we have my daughters dog at the moment and i am going to get upset when we hand him back in a couple of weeks , we have had him since feb, and although his a bit of an handle full his such a little charector

i will miss him.

i said i would take him on if he wouldnt resettle but i am not sure i can as it seems to be affecting my dog ,shes depressed nearly all the time ears down tail down,  and scruff has attacked her a couple of times quite nastley . so not sure what to do .

i hope you both enjoy your walk, [sorry to ask but is here absolutly nothing they can do for her] i hate to be in your position. try and have a good couple of days .we must be a couple of peas in a pod  i always said that if i won some money that i would collect up all the strays i could find and give them a really nice home and loads of love and cuddles.

i have Aspergers syndrome so does my son ,and middle brother , its alonley life as people dont like others who are differant.

No, there is nothing they can do. We had hoped we could keep it under control, but now it is starting to consume her mouth and her muscle in her head has collapsed. Vet wanted to do it yesterday as her mouth started bleeding dreadfully as soon as she touched it! The tumor has become huge in just a few days, we coouldnt even see it the last time we tried to give her antibiotics through a syringe. It looks awful now and when it starts bleeding big clumps fall out and vet said she will be swallowing all that blood now. We had a nice slow walk and sat on a bench near the marsh here but when we got up to go again, she wouldnt move for ages. I nearly had to come back for the car. She hasnt eaten at all today so I cant get her pain relief inside her. The tumor will be making it very uncomfortable to eat.

i know people with asperges and lots of people with mental health problems and I know the prejudice that a lot if ignorant people have. They're the ones with the problem though, not you, so dont let that get you down. I do not like ignorant people who judge without even knowing someone, really annoys me. I have to take Jess to see my ex soon so that he can say goodbye. We visited my parents last night. Seeing her sat in the grass enjoying the sun earlier on our walk just broke my heart and I couldn't help crying for the duration all the way back.

going to try to get her to eat again now. Take care x

shes had a good life with you  ,you have given her fun and happy times

its her time to go in piece and with love , give her a kiss from me to ,

i am sorry i must sound like a right nutter, but i cant bare it  the pain of saying good bye, the pain you must be in , as well as her.

even when my sisterinlaws dog died i cried buckets i wrote him a poem and sent it to her with a plac for his grave that she could put his photo in

.

i suppose when you are treated like a reject in socity and i have trust me and now  i am watching my son being treated the same way you feel for others in any kind of pain. proberly more so than normal people.

please dont think that i am being cruel when i say this but i hope you have alovely ev ening together and  tonight  she goes in her sleep so that you dont have to do that painful thing even though its best for her . rather than sufering

.you take care . and  i know either way its going to be  a loving release. for her. shes had some kinda of life. because she has been some kinda of dog. god bless x

Thank you so much and no I don't think you are being cruel at all. It would be so much better if she went peacefully in her sleep tonight and I am praying for the same thing. I don't want to be the one to do this, the thought is tearing me apart.

its awful that you have been treated like that and it must be dreadful watching your poor son going through it too! My son drives me mad at times. He can be very selfish etc but I cry for him if he gets upset for any reason and my daughter too. All we want is to see them happy isn't it?

well Jess has eaten a bit this evening and she enjoyed her visit to my ex who I am still good friends with. She wandered around the pub beer garden saying hello to everyone as she always does, so gently. Her tail was wagging like mad when she saw my ex too. It just all seems very confusing right now. I still havent phoned the vet, but i suppose I must tomorrow.

thank you for all of your lovely words of support xx

i wil say a pray for jess as well , that she will go in her sleep peacefully.

i dont believe in god like most people,but i believe in a higher being and the love , wonder and power of the universe.

i am glad jess had a good visit ,

god bless you both.x

I know how bad sweating can be on one. Shopping for groceries is the worse time of all. I will be dripping sweat every where. This is usually at the check out and is most embarassing, People have thought I was having a heart attack. I now carry a towel with me at all times and wipes, Any info on products to help reduce sweating would be appreciated,  After being soaked I will get chilled from the wet hair. I, too lack support and have become isolated. When you don't look sick people assume you are either exagerating or attention seeking, No one knows the pain we suffer.

So sorry about your dog. They are family and putting them to sleep is a hard decission to make. I've had many pets over the years and had to make that choice a few times. It's never easy to do even knowing it's to end their suffering. One should never feel bad for caring for  the welfare of children or animals. The world needs more concerned people and less critizing, 

try a neck scarf that you soak in cold water or icey if you have it till the tiny beads swell , then dry of on atowel so it dosent drip wrapp round like an ordinary scraf  should help you get your shopping done , and if like me it wares of quicker than stated go to the toilets and resoak before you start shopping all depends on how long it is to the shops,

they cost about £5 from ebay and there are a few english sellers but becareful alot are from japan, iv just ordered another . i can give you the sellers details if interested.

if thats not enough buy a cool vest ,iits what MS sufferers use.

but designed for out door sports man.and manual workers.

theres several types, ones that work like the scraf but i dont fancy damp on my back,thru evaperation .

 or the most popular type is a waist coat type with lots of pockets that you put little blue ice packs in after freezing that should keep you cool while out an about.hard to find and not cheap i ordered mine from a german ebay seller

, but there are some on AMAZON and they also sell on line in sport and moter cycle shops .but its a nightmare searching ,because so many are from the usa , and the one english one i found wanted all your details so they could just bombard you with emails , so i brought from germany .proberly be here sooner than if i brought from the uk any way.

hope iv been of some help. anything is worth a try.

Thank you, its very hard to make the call right now, as she is still wagging her tail and eating! I am so so torn! I am gonna look into those items Tina suggests too, the neck scarf definitely appeals to me.

Well she is still very much here and looks even brighter today than yesterday. How can I ring them while she is still wagging her tail and wanting to eat. It all makes no sense x

well sweetie as long as she can take stuff for the pain and seems ok in her self as much as she can do, hold of.

you will know when, but i am still hoping for you both that she just goes in her sleep.

remember sometimes people and animals suddenly improve just before its there time .

my nan did bright as a button she was sitting up in bed in the hospital , everyone thinking she would be fine, the next day she was gone. just like that

.  go with your instincts we all have them if it dosent feel like the right time then wait, worst comes to the worst the vet will make a home visit even at night, so hold back and do what you think is right. i lite a candle for her last night and asked the universe to take jess quitley in her sleep when it was her time. thinking of you both .take care x and one for jess X

Thank you Tina. Yes I realise they usually improve just before leaving us and I would prefer, obviously, that she went peacefully in her sleep, we spoke to vet and explained our dilemma and said we just cant do it while she is still looking so content and the minute I feel she is starting to suffer I will act accordingly. I too will speak to the angels and thank you so much for your caring, you realky are a caring lady xx