just read an interesting article at BBCDOTUK
WED 12 SEP 2001 CATERGORY HEALTH
ON COOLING VESTS AIDS MS symptoms .
as fibro is also an auto immune condition ,its proberly the same for us. i know it is for me iv got a lot of pain in my hands and feet today ,its just been to hot for to long.
Hi Tina. Having just read your post, i wondered why you said that fybromyalgia was an auto immune disorder. The reason i ask this is that i have alopecia areata, which is an auto immune disorder, and whilst having numerous tests for my pain symptoms over the last few years, the answer from a rheumatologist is that I have Fybro, not another auto immune disorder.
i believe unless i have it wrong ,that MS ME AND FIBRO are all caused by the immune system getting confused i may have it wrong but i am sure the above conditions along with conditions like rheumotiod ahtritus
are auto immune . but i stand corrected iv i have it wrong.
iv just asked google if fibro is a auto immune,disorder its not my fault i got confussed ,some proffesionals say yes and others say no,
at this present time it is not classed as an autoimmune disorder , but the it could change in the futrue
Hi Tina, I know that Fybro was thought to be an auto immune disorder as it was originally thought to be linked to Rheumatoid athritus. As it is now thought that fybro is not related to arthritus and not auto immune disorder. I only mentioned this as i had antibody tests done to check if i had lupus or ms and the tests came back as negative. I saw a rheumatologist at my local practise, how diagnosed fibro and said it was not auto immune. I hope you are not suffering too much with this lovely weather! I can cope with the fibro, but wearing a wig in this heat can be pretty horrendous!! take care
i hate this weather i always feel worse in extremes heat or cold.
i cant wait to get my cooling vest, i might be able to get out before summer goes iv been practicly house bound this summer.
god i think i would just bite the bullit and not where one in this heat ,
i think i would go crazy wearing a wig, do you have one of those light weight ones the old fashioned ones were so heavy , mysister inlaw makes wigs , for clients, and tv and film, it would drive me mad but she loves it, one hair at atime .on some wigs.
Hi Tina, I work in a school reception office and thankfully we are now on Summer holidays, so i can sit in my garden with my wig off!! it is a very good wig and very light weigt and i found it very difficult the last few weeks before the end of term as it was very hot in the office and very stressful. I am sorry to hear that you suffer in the heat, i seem to be more affected by my symptoms with my hormones!
i have the hormones as well at 54 i must be somewhere in the menopause . and i also have Aspergers syndrome which causes me sensistivty problems with heat touch fabric labels and food not mention other things ,but if you work in a school you must have come across us weird people ,
Lol , yes we have pupils who come through the school with Aspergers, as well as any other syndromes and conditions. I am also 54 and have no idea how long this menopause rubbish will go on for. I think it 's hard to know whether symptoms are down to fibro or menopause as the symptoms both started about 4 years ago. How long do you think you have had fibro for?
i think i had early warning signs in my teens , with aching joints ,very painful periods, i know that sounds extreme but i reakon it was so then i think it kinda of went into ression thru my later teens and 20s ,in my 30s i started to get twittching in my eye and my periods became very bad.
i needed iron injections every week for 16 yrs.
untill i had to give in to a hyestorectomey , when i was 37 and it all went down hill from there not being helped by a fall that broke 3 of my ribs 6 months after. i bet if most people look back and think about it they could recall mild symptoms in there teens.
Oh dear, it sounds like you have quite a rough time it. I didn't even know this condition existed until I googled my symptoms over the last year or so. When I read the posts on here or other forums, I know I don't have half the problems that a lot of people have. I just hope that things don't get worse as my hormones get more problematic.
my best advice for keeping symptoms at bay, is keep moving even when it hurts , avoid as many drugs as you can, and try and laugh as much as possiable and try not to take things to heart, keep planning ahead and pace your self,
i have ordered my cooling vest fingers crossed it works and i can get moving in this heat, this yr and following summers,i hate being in and just sitting around but i will just faint out in this. and i dont bounce as well as i used to .haha
wow, that is very interesting Tina, that you stated fibro is an auto immune; i recently had a bunch of lab tests done and i showed 'positive' for auto immune and my nuetrophils were low and lymphocytes were high (but my rheuma didn't seem concerned for it) my mom died from an autoimmune disease-collagen vascular- immune system started attacking her collagen; she died within a year; and my father has an auto immune rheumatoid arthritis...but i guess there is nothing doctors can do until it really rears its ugly head and even then there is not much they can do
i think that the school of thought is out on weather or not it is autoimmune
condition . i think it maybe it. just mimicks it .
sorry to hear about your mum iv never heard of that condition sounds awful bless her,must be a big worry to you if your going to follow in her footsteps. really with two parents with autoimunne conditions the odds were stack against you . hope things dont get any worse for you .