Fibromyalgia and PIP

Hello all, hoping your day delivers you the least amount of pain and the maximum relief as possible 

I have had Fibromyalgia for over 7 years but have onlt recently claimed PIP. I can no longer lift heavy objects or cut up small food so I have real problems with preparing and cooking meals.  I have to have my partner help me get dressed and showered and to dry and style my hair; anyway I had a text on Monday saying they had all the informaiton they need and will carry out my assessment. I was wondering if anyone else with Fibro has a sucessful PIP claim and also how long after the message that they have all the required info' does the desicion letter arrive?

Sending gentle hugs.

Hi, the message you got is a standard message sent out to most claimants and decisions are taking anything from 3-12 weeks at the mo.  Did you have a medical assessment during your claim?  I know there are quite a few people on this forum who suffer from fibro so should be able to help you - good luck x

Hello Beanieles!

I'm very sorry to hear your condition has got worse! I don't have the same condition or my award yet so can't be much help for that side of it but I had my pip face to face on the 1st of July! I rung on the 18th & 29th of July to chase up just to be told still hasn't been looked at by dwp, so I'm still here waiting for a decision nearly 7 weeks later, causing lots of anxiety but praying for the right result so don't have to battle reconsideration! I have notice different people have had different waiting times for result some 2 weeks and others 8 weeks or later!

Good morning Beanieles,

similar to you, I have Fibromyalgia, Arthritis, Spondylitis, Angina blah blah blah .............  and the list goes on  

I'm 68, was on DLA for almost 20 years and then very kindly 'invited' to apply for PIP (arent I lucky) 

I had my face to face assessment in June, a letter arrived last week saying that they had all the necessary info to make a decision.  I rang last Friday to see if a decision has been made, they said it had, but it was not showing on the screen and to ring on Monday.  I rang and found out that I had been successful with the claim.  So probably waited around 10 days. 

Have you sent for your report from the assessor? 

Hi beanieles, 

I have fibro & anxiety disorder and i get standard daily living & standard mobility, i applied for pip in october 2015 had my face to face assessment in november 2015 and was turned down with 0 points in december 2015. i asked for a mandatory reconsideration again in december 2015 and was awarded my pip in january 2016 till november 2018. That's my timeline but of course it depends on your area & how busy/back logged they are. be reasurred though that if you are awarded pip no matter how long it takes, it will be backdated to when you made your call for your forms..

Good luck.

 

Have you sent for your report from the assessor? 

Isn't it the case now that the DWP do not send out these internal reports to the claimant unless an appeal has been lodged?

From memory these assessment reports are actually contained within the appeal bundle that the DWP issue.

Hello,

This may seem like a silly question but I've been seeing it a lot, if they've carried on your dla while waiting for your pip result this doesn't get back dated as of course you were still receiving is it only new claims for pip that get backdated? Sorry just some confusion today!

Hi chloe. yes that is correct if you are claiming dla already.

my reply to beanieles was in the assumption that it was a brand new pip claim and no other benefit was currently being paid.

just to clarify. 

x

Yes thought so!! Thank you for clarifying x

I'm not really sure Les,  I did read on here and another site that for some reason, the reports may not be sent out, but mine arrived just the day before I read that information, so maybe I ws one of the lucky one's.

Hi, thanks for your response.  Yes I had a medical a few weeks ago then they must have applied to my GP for more informaiton. They wouldn't take any reports I had with me as she said she's not allowed to take anything.

Thanks for your response. Yes the time taken to make a desicion does seem to vary quite a lot. I hope you hear soon. Take care

sukes, thanks for your response and what a speedy response, well done.  I haven't asked for my report I didn't know I could.  Thanks I may look into this.

Gill, thanks for your response and well done on your appeal.  I went to see Capita in Birmingham so I will imagine there is quite a backlog, the waiting room was full to standing and my assessment was 09.20 so I'm not holding out any hope of a quick response. Fingers crossed eh?

For clarification my claim is new and I've not claimed in the past.

Hi beanieles hope u are well I've got fibro and chronic fatigue syndrome and have a pup assessment on Friday just wondering if u could halo me with what happens on assessments I'm now having panic attacks worrying about it ,many thanks

Hi beanieles hope u are well I've got fibro and chronic fatigue syndrome and have a pip assessment on Friday just wondering if u could halo me with what happens on assessments I'm now having panic attacks worrying about it ,many thanks

Hi Tina,

I also have fibro and many other conditions and claim Enhanced Mobility and Standard Daily living PIP BUT it's not about the diagnosis for PIP it's how your conditions affect you daily. Have you taken a look at the PIP descriptors? To claim PIP and score those much needed points you have to prove those descriptors apply to you. If you haven't already sent evidence i would strongly advice you to take it with you to the assessment. They mostly don't contact any medical professional!

They'll be watching you from the minute you arrive to the minute you leave. They'll ask you questions mostly related to the form you filled in at the start of your claim. Don't just answer with a yes or no if you can't do something or have difficulty doing something then tell them why in as much detail as possible. If you can take someone with you then great as this will help. There's plenty of info on the internet with peoples stories about the assessments, if you can try and do some research. You have left it a little late to do this but anything will help right now. The assessment could last anything up to 1 hour but i'd say most probably 45 mins or less if you're lucky. A few days after your assessment ring DWP PIP and ask for a copy of the assessment report. Ths will give you some idea on the decision because mostly the decision maker will go with what was said in this report. You'll need at least 8 points for a Standard award and 12 points for Enhanced. Good luck and please do let us know the outcome.

Hi thank you for your reply so quick,I've been reading up a few things on the internet but mostly all bad outcomes or different situations,I've got my letter of diagnosis and all my medication ready and written down what I take when I take and so On,im just worried that because I work currently on maternity leave this will knock me back,I've got 2 young children and I'm thinking will this affect me? My husband is fab and does a lot for me,also my mother in law helps with my boys and they also go to Day nursery,I've heard they watch u to me that wouldn't be a problem... I can't get my husband to stay home while they asses me as he has work will this affect me doing it on my own many thanks

A letter of diagnosis is ok yes. I would advice you to take more if possible. Evidence on how your condition affects you is the best. Occupation Therapist reports, a letter from your GP or even a letter from someone who knows you well detailing what they do to help you during the day/night. Do you need help dressing/undressing, washing, bathing, how far you can walk without pain and discomfort, do you need help cooking, budgeting, cutting your food or preparing food? Anything like this. You can even right a diary for yourself and take that. Your medication list needs to be a printed out copy from your GP rather than something you've writen out yourself.

Working shouldn't go against you because people work and claim PIP. I personally don't work because my health is affected so badly with all my conditions. No going alone won't or shouldn't go against you either. How do you plan on getting to the assessment if you don't mind me asking? Do you have issues with your mobility? Having kids won't affect you either. I've got children and many others have too. Also just be careful and think before you answer any questions because there can be some trick ones in there too.

Most of what you read on the internet is bad because people don't tell their good stories because they have no questions to ask. I've had 2 PIP assessments in the last few years and i have to say mine weren't that bad.