Their are over 100 symptoms of fibromyalgia what symptoms have you experienced so far with fibro.
It's hard to know which are fibro, which are other known conditions or which are something new! So here are all my symptoms lumped together - I have pain in my neck, down both arms, upper back, ribs, pelvis, both hips, knees, feet and hands. Numbness, burning and pain in both hands and fingers plus it feels like everything has an electric current running through it, my IPad feels red hot to the tips of my fingers so it's difficult to use. I fall over, not dizzy but more like I've drunk a bottle or two of Rum, I don't drink. I'm exhausted/tired to varying degrees all day every day, IBS possibly separate condition , who knows. Feeling down, not depressed but down, one I forget till I try to go somewhere alone Agoraphobia, I didn't know that's what it was till I was referred to a psychologist then a few weeks after I'd seen him my GP asked how my Agoraphobia was doing. I'm fine in the car or if someone is with me but panic on my own, worst attack in Morrisons, I was so scared I had a panic attack, sat on the floor in a ball, nobody stopped, I think they thought I was drunk. I think that's all but something else may pop into this awful memory of mine! Oh yes Brain Fog!
That is terrible that no 1 stopped to help you when you had a panic attack in morrisons how awful for you. I have pain all over the my body from top to toe dizzyness loss of balance fibro fog earache tinnitus temperature variaion hair loss sppech problems difficulty swallowing depression bured vision dificulty walking numbness in hands feet legs stiffness concentration very poor short term memory loss fatique and some I cant remember. I feel for you having Agraphobia and panic attacks bless you. I had a panic attack sat night not nice things to have. all we can do is take each day at a time and cope with with this horrid condition as best we can take care thank you for sharing wish I could wave a magic wand over us all to make us better 
Just had a temperature change, completely forgot about them, boiling hot, sweating but my skin is cold to the touch! So sorry you have earache and tinnitus, I've only had tinnitus once, it was really horrible, luckily it was only for a couple of weeks, I can't imagine having it any longer, I think I'd go mad! I hope if nothing else they can cure the earache and tinnitus for you.
magic wand waving frantically, hope it works for someone out there!
like shelagh has said, its really difficult to allocate which symptoms are down to the fibro and which are other stuff, some identified, some not yet. I ache all over, particularly badly upper arms which hurt like hell in the muscles. My neck and shoulders are stiff and achey too. My right arm is a dead weight some days, just wont lift on its own. My upper thighs have now started hurting too - not in the hip but in the muscles at the top of the thigh. I get 'hazy' spells - where I'm not quite tuned in to what's going on around me. I get word loss too - like I cant focus on what the subject is or what the object is I'm referring to. I'm tired all the time but sometimes so fatigued I cant function properly and have to stop and lie down. My chest hurts some days, not a sharp stabbing pain but like someone has kicked or punched me in the chest and bruised it. I get waves of sadness just wash over me occasionally, not sure this isnt just the weariness of dealing wiht the pain or the frustration of it all. I'm super sensitive to noise, especially loud crashes or bangs and persistent noise like a dog barking or the thump thump thump of loud base music from a car or neighbour's house. I get very overheated - totally unlike the hot flashes I used to get through menopause; this is like standing next to a fire and I get quite swimmy and a little faint with it. I've started to get headaches - never had a headache in my life, not even with a hangover before this. They're prone to make me feel a little nauseous too. The latest wonderful symptom is tummy ache - lower stomach, like a gripe pain not necessarily after eating anything, they just come on at odd moments.
oh, and I forgot the hair loss - it's started shedding again badly, this really is the icing on the cake and terribly upsetting.
I wonder if you have IBS too Loxie or my IBS is part of the fibro! I have hair loss too, I didn't put it down to the fibro, I don't know what I thought it was! So tired today, going to lie down for a bit!
For many years I suffered with IBS but some years ago I became a vegetarian and not had any stomach issues since, meat obviously didnt agree with my digestive system. Maybe it's reappeared possibly due to the stress of dealing with all these other fibro issues. My GP was very disinterested in the hair loss - indicating it was down to 'age' - what tosh - my partner's mum is in her 80's and has a fine head of hair and my neighbour is my age with lots of other health issues and has wonderful thick glossy hair. Mine was thick and healthy too, even after menopause! It only started falling out badly about two years ago and seems to get worse when I'm having a pain flare up.
Hi Kaz. I have all 18 pressure points that are checked active. I have lower back pain constantly. I have disturbed sleep. Fibro fog, great when trying to remember things. I have dropsy, the number of plates, cups, glasses deceases by the day. I have falls and walk like a drunken sailor, problems with my ear's and have had a frozen shoulder which I now have a boney spur in which catches the nerve every so often. I also suffer from depression, I have actually managed to reduce the dose down to 10mg, good as 12 months ago I was on 40mg. Have you found though that every time you are referred to the hospital that its always "it's your fibromyalgia". I was discharged from a Rheumatologist as they could not do any more for me, but if I had been referred in another 10 years they would know exactly how to treat it as they would have a greater understanding of the problem. Gentle hugs. Janet
I forgot all about the sleep issues; I've always slept like a log! Now I wake continuously, sometimes due to pain but sometimes for no reason, just cant seem to sleep deeply and am easily disturbed. No wonder we feel exhausted all the time. I hadn't even connected the clumsiness with fibro - I thought it might just be my arthritis in my thumbs but I do tend to knock stuff over nowadays, even if I'm not holding it.
I hope it isn't IBS coming back, it's a horrible condition. I had every exclusion diet possible, it took a long time to go through each one for three months only to find that wasn't it and then to put it down to IBS. I still go through phases of thinking it's all in my mind, even all the fibro stuff, because there is no actual damage to see on scans/X-rays etc as there is with other things I think I must be imagining it all. I just thought the hair loss was my age or hair type, maybe not! What a lovely condition this is!!
Hugs on there way x
I couldnt agree more with you shelagh, it truly pees me off that all of the horrible symptoms and problems I'm experiencing seem to be resulting from nothing that shows on tests, x-rays, bloods, etc. One of the GPs at my group practice seemed totally astounded that I wasn't jumping for joy that my blood tests came back 'normal' - I pointed out that if they'd resulted in any other disease whatsoever, I'd be getting a) effective treatment and b) sympathy - neither of which is forthcoming for fibro!
Hi Kaz
Mine started in roughly 2010 I spent nearly 18 months toing and throwing with many a Dr at the surgery before I saw the one I am now with who drew the line and referred me to the Rheumatologist in 2012. Chronic fatigue, head, scalp, neck both shoulders, tennis elbow, hands, fingers, tightenings of the chest, pelvis, lower abdomen, scar of caesarean, hips, upper and lower leg spasms, ankle, heels and down the outer side of both feet there is nerve damage caused through experimental medication which so many put impact on the feet where I drew the line and couldn't bear the agony to put my foot to the floor. This happened with pregablin and most recently 900mg 3 x day with gabapentin. Nothing the GP tries ever relieves the total day to day agony of this horrible illness. I was also referred to Anxiety and Depression service and given books and timetable to do for CBT but too much stress as a whole for anybody to give me supportive answers now waiting to see pain psychologist and have mobility for orthotic for left hand/wrist 28th July how is urgent is that given original referral not received was emailed in March to say I am chomping at the bit is an understatement. The update from visit to GP Friday is that I have a very inflamed scalp got lotion to put on he has changed my hayfever medication to 2 cetirizine a day and is trialling me on Sertraline but already finding an impact on my stomach from these changes no specific guidance as to best time to take the Sertraline and on 50mg dose higher than previous ones been on. Was also diagnosed with IBS 2013. Suggested to up my Omeprazole because everything I eat just repeats back up. I also get digestive problems and problems swallowing even tablets most days hence why am very careful what I eat. Hope this helps a little.
Yes, I have headaches, blurry vision at times and sensitive to light, tinnitus, neck and shoulder pain, pain round my ribs and lower back, bad hip pain which it doesn't matter what I do is still there, and very bad foot pain so that I limp around the house. I also get pains in my abdomen like little knots that move about, and my elbow and finger joints have started aching and are stiff (and its not even winter yet!) I also have depression and short term memory loss, and find I can't work things out if they are complicated, as well as what I call an over heated brain when my mind gets upset and goes furiously round and round on a subject, does anyone else have this?
It's really rough when you have so many things wrong that you can't remember them all 
GPs can be the worst! When we moved here we had to change gps, the first one I saw in the practice looked at my notes said "hmmm fibromyalgia ", I figured he didn't believe in it so next time I saw a different doctor, this one is great! I had one years ago who said fibromyalgia didn't exist and even if it did it burned out in ten years so I should be over it. When I mentioned this to the Rheumatoligist she said it was news to her and wouldn't it be nice if it did! You'd think after all this time it would be well recognised, maybe we could accept it better if the doctors did!
Hi Kaz. Forgot the digestive problems, fatigue and definitely the forgetfulness, even down to pouring a drink and walking away without it.
Yes I forgot too sleeping problems and fatigue all the time, I often can't get through the day without having a sleep.
I cant sleep during the day, unless Im very ill then Im able to.some times Ithink its a waste of time going to bed?
I have that problem too when mind just seems to be set on a subject, i cant get m y brain off it. I hate that when that happens. The other day I was doing some washing and also put a tea bag in a cup to do me a drink. instead of pouring the conditioner in the washer I poured in the cup with my tea bag in another time I poured milk in the softlan container. I was so worried at the different things I kept doing. That I went to see my gp who sent me to see a memory nurse for me to do tests incase I was starting with alzimers. The nurse told me I was the 8th person she had seen that had fibro and that we were all having the same problems it was put down to the fibro not alzimers
Hi Janet I have found everything is put down to the fibro I too have Ibs I had it for 3 days last week. last friday I had anightmare of a day everything I picked up I kept dropping broke a cup a plate 2 glasses. it didnt matter what I tried to pick up I just kept dropping it really got annoyed with my self over it. but it cant be helped.I have the full 18 pressure points. I havnt had the frozen shoulder. I am having trouble with my hands trying to grip things and in alot of pain with them the joys of fibro take care gentle hug