Hi
I'm a new poster looking for some urgent advice. Apols for a long post!
I'm a mum with 2 girls (7 and 4) and husband and am currently cursed with a nasty infection of threadworms that I am struggling to shift.
We first got the blighters 2.5 years ago, shortly after DD1 started school. I'm pretty sure she picked them up there - she's a thumb-sucker - but I was the only one with symptoms (a live worm in my stool in addition to some itching and the dreaded bottom tickle). But I gave us all the 2 dose treatment with Ovex and thought they'd gone away.
6 months later, the dreaded bottom tickle was back along with another live worm - again just me with the symptoms. I gave us all the 2 dose Ovex treatment, this time with full hygiene measures as well. When I was still getting the tickling sensation after a third week I saw the GP who prescribed pripsen powders, which we all did (including the follow up round). This time, it seemed to have cleared it for good.
For the next two years, I didn't seem to have any symptoms.
Then 6 weeks ago I got the dread tickle and very itchy bottom the next morning. I was on holiday at the time without access to any meds and couldn't do the full hygiene measures but as soon as I got home I took ovex etc. I thought maybe I'd imagined it but the next night DD1 came in complaining of an itchy bottom which she said she'd had for a couple of weeks now. This confirmed the diagnosis so I immediately got the whole family on Ovex - ie mebedendazole (at 4 day intervals) along with mega hygiene - daily washing of all bedding, underwear; lots of wiping o toilet seats, endless handwashing, morning showers on waking for everyone etc etc.
DD1 hasn't had any itching of any kind since, but even after 2 weeks of Ovex every 4 days, I'd find that i'd be itch free for a 3-4 days but then it would return. So after lots of researching (including this discussion thread) I sent off for the parasite cleanse recommended here. I did a full one myself, but put both girls on a very very mild version because of their ages; I didn't bother with husband because I knew he'd never do it at work; I kept us all on Ovex every 4-5 days as back up. During this time the girls continued to have no symptoms. Husband has never had any symptoms.
Then on Day 14 of the 16 day cleanse (ie last week, while we were away on holiday) I was woken at night by a mad tickling in one ear; the next morning I had tickling in my nose and throat as well as mild tickling in my bottom. Remembering what was said about them spreading to the ENT area, I took an ovex and prayed i was wrong and that it was just hay fever. It went away. I relaxed a bit.
Then 3-4 days later, on Monday evening of this week, the tickling in the ear and, to a lesser extent nose and throat, was back. I just about managed - with husband's encouragement - to put it down to hay fever and paranoia, but took an Ovex just in case. Next morning, I coughed in the shower and in my hand found what I'm pretty sure was a dead threadworm amid the mucus. It seemed as though the worms had got fed up of the inhospitable GI environment (thanks to the natural remedies) and had migrated or 'scattered' to my ENT area. Horror of horrors!
I saw my GP that day who, remarkably, didn't dismiss me as a nut, but said it was very rare (Having loooked online, I'm not so sure...). She certainly accepted that I was resistant to the Ovex.
But we're out of standard treatment options because Ovex clearly isn't working for me (nor are hygiene measures); and Pripsen powders - the 2nd line treatment - are now no longer available - shortage of the ingredient apparently. Albendazole, which is widely used around the world and is meant to be better at killing off the scattered threadworms eg in your ENT area, isn't licensed in the UK. She's trying to get help from the tropical medicine specialists but they aren't terribly interested/communicative.
So I'm at a bit of a loss, to put it mildly. The ear/throat tickling has diminished a lot but I'm now 2.5days after an ovex, so if the usual pattern continues, it'll be back by tomorrow ie Day 4). The thought of intractable headworms in myself is appalling enough but I am horrified at the prospect of the girls getting them there.
Yet while I'd be happy to risk getting some Albendazole from the US and taking it myself at the high doses that seem to be required, I don't feel confident risking it on my daughters without some medical input because of the side effects, especially for the liver. And yet if we don't get rid of the blighters in all of us, we're just going to see the infection continue. Which is a desperate thought, especially if the girls are still infected. And even if I'm the only one left with a chronic, long-term infection, I'm going to reinfect them again at some point. I feel like I'm carrying the bubonic plague!
I'm pretty sure I must have had a low grade infection over the last couple of years, just not enough to notice the symptoms. What caused it to suddenly go hyper weeks ago, I don't know.
And I'm at a loss about how I could still have enough worms in my system to be coughing them up - usually a symptom of a hyper-infection - after nearly 6 weeks of ovex every 4 days, endless clove tablets to kill off eggs (plus the other natural worm killers), and an unbelievable amount of washing and wiping. Surely it should at least have diminished. I do wonder whether all the stories out there of intractable worms means that strains of the worm are emerging that are basically resistant to mebendazole.
Phew, that was a long post. But I'm really at the end of my tether and truly terrified that the girls are going to end up with a chronic infection like mine.
Any thoughts or ideas would be really welcome. I feel quite desperate.