I have finally managed to get off Prednisolone. I seem to have more energy and my appetite has reduced so the weight is also coming down. I just hope I am not celebrating too soon. The last bit from 1.5 to zero has, surprisingly, been the easiest part. I’ll post at a later stage to update. Best wishes to everyone on your journey.
Well done Silver. Hope all goes well from now on.
Well done! You give hope to us all. look forward to hearing your ‘tapering’ story.
Congratulations and best wishes.
After five years and more than one setback I finally got to zero more than five and a half years ago and have not looked back. Hope it’s the same for you.
I found that I continued to feel better and better for around eighteen months after getting to zero and just the other day found to my surprise that I no longer needed to restrict myself to small watering cans. I felt really chuffed.
Great to hear this.I had pmr for a couple of years but have been off pred for maybe up to about a year with harly any symptoms. Best wishes.
oh, im happy for you! do keep us posted–
CONGRATULATIONS.. and good luck!
YEAH Silver…I’m SO happy for you!!!
keep up the good job!
i ended up having my bone biopsy early (LONG STORY)…should be getting results tomorrow or Tuesday.
please pray.
congratulations Silver, im down to a half but if i have an extra busy week i find i have to occasionally go back to one meg. Sometimes i wonder if I’ll ever have the confidence to taper too nothing and be able to stay there!
still im very happy to be able to ger this low.
GOOD LUCK and keep well! Freda
Hi Silver49
Many, many congrats on reaching the end of a very long journey. Now you are at your journeys end enjoy the destination you were heading for…very best wishes your way…
Silver49, that is great news best luck stay off Prednisone. That you are off Pred, gives us all hope.
Congratulations. 
Well done Silver. Welcome to the Zero Club! Hope you stay free.
Thank you to everyone for your kind words and good wishes. I can understand the reluctance to go from .5 to zero. I admit to having been slightly hesitant but decided to go for it as I waken with no aches and pains. Admittedly, I go to bed with aches but I have put that down to doing more. In fact I have found the more I sit around the stiffer I am and the answer is to move more. I suspect my muscles are still a bit weak as it has taken me just over 4 years to reach this stage. It will take me too long to reply to everyone but I appreciate the encouragement and thank you Betty E for the hope that this will continue on the up. Lynda, I hope your results are good and I wish you all the best for the future. Michdon, you are an inspiration. Keep smiling. I do and often get a response from strangers. It’s a two way approach to life. Eileen, last but not least, I am especially grateful to you as we all are for your knowledge and words of wisdom. Perhaps we will manage to meet one day if you are in this area. I’m not going away and will continue to follow the forum. Best wishes to you all and thank you everyone. To all those still ploughing on I sometimes felt that I would never reach this stage but decided to make the most of what I could do as I did not want life to pass me by on the Pred journey.
That is such good news to hear on this site…rare but brilliant…well done you. I am down to 2 mg this week and doc has suggested I try 1 mg next week and that’s it…fingers crossed I will be shouting from the roof tops like you in two weeks…happy days x
Thank you, misswagmups. I reduced by .5mgs as the dose lowered and I did it by the DSNS method although I didn’t follow it completely when I reached 1.5 as I felt so good but I did go more slowly than 1mg a week towards the end. I hope you are successful as it is a good feeling to finally be off.
Brilliant - and fingers crossed it lasts xxx
Thank you, Eileen. I am cautiously optimistic. Please let me know if you are coming up this way and I will try to meet up with you. It would be good to catch up xxx
Wow well done Silver, I am tapering from 5 mg to 4 mg over 6 weeks so i hope that i will be celebrating soon as well.
Hello Eileen, glad you wrote as i was getting worried you were not feeling well because i hadn’t seen any recent replies from you. your writings are always most interesting and informative. I for one am most grateful for your patience and all the info you so generously shared with us especially when one is newly labeled PMR . Once diagnosed then what…
i was in shock when told to reduce by 1 mg a month. i remember saying but that would take me two years! HOW MUCH I HAD TO LEARN!!!
OK i’ll quit now while I’m ahead.
thanks . Freda
Great news gives us all hope
MARY x