Last night I had a seizure (suffer Catamenial/ functional seizures). And i had to txt my boss to say cant come in. Woke with a migrain plus fibro pain is increasing Not a good day!!!!!!!!!. My Aunty visited me and helped me start ball rolling for PIP. Not sure if i will get it, but just feel like work is to much stress of knowing i will be in pain after shift then stress about if i am off i wont get paid. I have tried for so long and strugled.Its mentaly hard to come to this decision because i want my independence. But i have struggled for years only 42 . Ahh well. Last week went for nurophycology app she was really nice, have a few more visits think positive this will help. Sorry just going on Just needed to See how other people cope with this decision.
Dear Hazel,
Sorry I haven't been talking to you for some time. I have been over whelm by the night shift I am doing. Today I decided to stay awake and go to the library and than to the shopping mall. I still get moments when I am how can I say it spaced out. I see lime green around what I am looking at. I tell myself forus and look away. It is a dazed moment. Doing night shift is stressful on the old body.
I'm so sadden about your last seizure. Migrain headach is so bad plus fibro pain. I had migrain alot when I was a young woman. I know your suffering. I use to ask my mother to come over and watch my four children while I tried to sleep it off in my dark bedroom . My mother was very kind to me in many ways. She was a good grandma.
Are you thinking about not working anymore or just cutting down the days of work? It would be mentaly hard to come to that decision because we all need independence. Being only 42 is not fare. My daughter Charlene is 42. Your medical problems are burdenson. Almighty God knows the secret person of the heart. Hazel, I feel for you even though we live across that big pond called the Alantic Ocean.You can vent in both my ears any time you want. We are women after all. What is PIP?
Hug your puppy for me. What is Catamenial/functional seizures?
The weather here has been cold to the point of wearing a light coat with a winter coat over it. Being a old girl can be chilly at times.
Give your self a hug from me.
Hello Mary, hope you are ok. Night work suits some people, my husband works permanant nights suits us both as he snores ha ha . Catamenial is to do with my body producing to much estrogen around my period thats why had coil fitted as it has a hormone that should balance me out. Plus Functional seizures or Nead as its more commonly known. Nurophycologist said its caused by supressed trauma / child hood trauma ( in my case). Thought i had dealt with it when had cbt.I have had to seizures this week already One last night and today when i had finished my super market shop, good job husband was with me. Have to go back a couple of times then see what will help best. Any way puppy or Charley as he is known is great, alot of work but love him so much. Growing so quick already. Weather here hit and miss but i dont mind love all weathers. pip is the new disability payment. I have cut my hours down to 12hrs a week now but still find it a struggle , the pain alone is getting worse especially in my knees and lower legs . Plus the randomness of seizures effects my job. Ahhh well i might not get it . big hugs back from charley. And one from me. Take it easy Mary and good health. Xxx
Dear Hazel,
Thank-you for telling me what Catamenial is. Too much estrogen in the femal body would cause a up heavel. I remember just before I had my period I had such a craving for chocolate and anger etc. which was not me as I normal am. I controled it and kept it to myself. I suffered with terriable mirgrain headachs.
Functional seizures is anoth word for Nead. Everyone in their lives have had trauma in their child hood. My list goes on and on. You have no control as a child. Some times yes. Here a example. One day my father took my older brother and myself out on a car ride. My father and brother were in the front seat and I was in the back. My father pulled over to the side of the high way and came into the back seat with me. He was all over me , kissing and rubing against me. I yelled at him. He told my brother to keep his eyes forward. There I'm sure my brother knew what was going on. Not fare on him either. I got out of the car by pushing him away from me. He speeded away with my brother. I went to the nearest store and asked for the police to be called. When I got home my mother was not there. She was visiting a girl friends house. I got a beating in front of her friend. My mother did not have mercy on me nor did she leave her husband. How confusing is that to a child? Bad memories are just that. The time back than was so different than now or is it. How many children right now are suffering throught trauma. I remember my traumas . The bad and the ungly. I love who I am because I am one of a kind in this world. I'm a health care aide for the elderly . These ones are someones father, mother etc.
When I was at the worst of my seizures I couldn't go away because they happen all the time. Pip is the new disability payment. Ours is called WSIB. I hope you get the coverage from Pip. It's chilly outside here but the sun is shining. Big hugs back at you.
Dear Hazel,
Just saying hello and how are you doing. The weather here is warm and sunny. Was in hospital with a painful blander infection. It has cause me to be feeling weak and sore. On meds for it. Give your puppy a hug for me.
Mary , how very painfull for you. Bet you feel awful. Sending you a big hug. And a big big hug from charlie. Weather here is cloudy but warm. Well i hope you take it easy. xx
Dear Hazel,
Hope you are fine and seizure free. Hazel, found out that you can't personally get each others e-mail by looking at another person's message. They informed him that he can't give his email on this forum. Oh well. No seizures still. Good news. My right arm is very sore in the shoulder joint. Going to the doctor about it. Maybe related to meds or just old age. Life can be such a pain in the behind sometimes.If it's not one thing, it's another.
Just had a memory of seizures while running on a bus home with my daughter. Everyone looking at you. The clonic seizure tightens up the chest muscles so breathing can be differicult. Being already asthmaic my dear daughter tried to help my breathing with my puffer. The situation was most trying. I had a hard time walking home after the seizure stopped. No one on the bus said any thing or help my daughter .People really do not know what to do. If you ever tire of me, just let me know. Thanks for caring.
Dear Hazel,
Just wanted to tell thank-you for sharing your time with me on this form. I feel I am just some what over whelming to you because I disclose too much about myself, sorry. I hope only the best to you. Mary, seizure free so far.
Dear Mary, dont ever appologise , you never overwelmed me. Its been good to comunicate with you. I am still having seizures, had one today in the middle of town of all places my Aunty was with me and some very kind people helped. I wish you all the best and you enjoy your cruise you deserve only happiness. You know where to find me. Been a pleasure to share with you Mary. Hugs xxx
Dear Hazel,
It has been a differicult two weeks for me. As they say when it rains, it pours. True. I had a painful bladder infection and ended up in the ER because it was the week end. My doctor doesn't work the week ends. Was put on meds. Than my right are joint started up with pain. Six days later I ended up going to a walk in clinic because my doctor was booked up. Had ultra sound done and x-ray. My arm muscles were injuried at work on night shift. There are two of us health care aides . My co-work makes a nest and sleeps for four hours and I don't do that. She also doesn't work together. So I change 26 residents by myself. Some are not happy when they are awoken . They want to kick and punch your lights out. My doctor doesn't not want me to work until he says so. That's in a nut shell. I'm some what depressed or up set etc.
Yesterday I went to Centre Island, beautiful park. It is a man made island in Lake Ontario. I took the ferry over. I just walked around looking at things. Nice place to enjoy some nature.
I'm so sorry to hear about your seizure in town. I have had many seizures being our and about in front of people. It's a terrible feeling of no control. I'm happy that you were with your aunty. Can't live in a bubble. I do feel for you with all my heart.
Sometimes I feel like not having seizures for 3 months now is so unreal. It's like waiting for the cat to jump out of the bag. My future air flight will really test me if I'm really seizure free. Brave girl I am?
Hugs from across the big blue pond.
Dear Hazel,
Excurse me I pressed some wronge keys on the key board. I hope you can make our what I meant to say. Yours truly Mary. The weather here is so nice. Bye.
Dear Hazel,
Hope you are doing fine. Haven't heard from you of late?
Hello Mary, been a while i am still the same. Weather here is good at the moment. Been walking charlie with my daughter. How are you now?.
Dear Hazel,
We have been getting alot of rain but it's great. The garden is growing so much and besides I don't have to water it. Today is humid 22c.
What's new with me. I had a asthma attack this morning but I use my puffer and was able to pull myself out of it. Still no seizures, four months. I wonder if it will last?
Went to Centre Island on the ferry. It is beautiful over there. My daughter and I went down to harbour front. We watch highland fling dancing. Beautiful dance. We ate lunch at a Irish pub. The food was so good. Today I will be working a night shift. I asked my head nurse for how long. She said maybe 6 months. There's no life like it because you have no life Painted my washroom by my living room a purple pink colour. Looks good. Need to retile the floor.
My grandchild came for a visit. We all went to Edward's Gardens. Flowers everywhere. Nice day.
Two months and some for our cruise and air flight. Oh I so hope I will be O.K. on lift off and landing.No seizures, please.
Charlie must be growing so big now. My son Johnathan is planning to move and work in the U.K. next year. He is 23 years old. He has two jobs. Assistance vet and Perina Company supply dog and cat food. He does dog training for this company. I just told him the best if you do move to the U.K.
How are you doing?
Dear mary , Thats great that you still havent had any seizures. I havent had any for a few days. Two months until your cruise bet you are excited. Weather here is good, few light showers cant complain. I love all seasons. Charlie has grown , every morning he looks bigger. We all love him so much. My husband didnt want another dog but he fusses over him more than me ha ha. I am in pain today after work, trying to look for somthing less manic. Just doing 12hrs now see how i get on. I hope your night shifts stop sooner for you. When is your son coming to uk?. If he comes to Chester i will have to get his help with Charlie. Sending you a big hug xxxxx
Dear Hazel,
My daughter has said I have most likely heal from too much exposure to iodine. I hope she is right. Those seizures were pretty bad to live throught.
Some work is better than no work. My head nurse told me only about 6 months of night shifts. I will hold her to it.
My son Johnathan told me that when his lease on his apartment is up next May he wants to go and live and work in the U.K. He is so good with dogs.
The weather here is beautiful, sunny and cool.
Sorry to hear that you are in pain. It can be so tiring.
I think this forum has more people using it now. I have read some new ones. The poor souls are so scared about having seizures out of the blue. I have tried to comfort them and reasure them that it is their bodies way of expressing that things are just not right. There are so many people suffering with these unexplain seizures.
A bigger hug to you.
Hello Mary , How are things with you? i am soooooo pleased that you are seizure free I wish i could say the same for myself had three last week worse one was Friday night muscle twitching couldnt walk properly or talk getting very frustrating as I had to take the following day off work, I only do a 12hr week as it is . After all that going on my fibro pain is at a 10 out of 10.But remaining positive you have to, its sink or swim 
. Well mary the weather here is muggy few on and off showers. need a good thunder storm. Charlie is growing fast , starting to get past that biting stage, thank goodness. when i am feeling good my husband and i take him out. I love him ( charlie ) and of course my husband , its nice to get out and about. away from the sofa and tv. I have toilet trained him so now my daughter takes him up with her at night now, but i always find him back in his room in the morning, she says he farts to much 
dont we all darling ha ha ha better out than in i say. well i am off to bed in a moment take the pain killers , things we have to do. work tommorow only 4hr shift but its enough. my boss is being very understanding, but i feel unfair to her letting her down when i get like this. All the years i have worked i have never had so much time off, apart from when all this started years ago. not long for your cruise now. big big huggies keep well Mary. 
Dear Hazel,
I often wonder if I am in some sort of remition with the seizures I had for a year of my life. Still on night shift. Days ago on the way to work there was lighting strikes. When I had seizures one evening I was talking with my daughter in the living room and there was a slight opening in the curtains. I notice for a moment that the lighting was flashing like someone taking pictures over and over. Suddenly I had a tonic seizure. I found out that flashing lighting can trigger a seizure... so on my way to work I was a bite scared that the lighting strikes just might trigger a seizure. I just kept looking at the ground. I'm still not sure that I am seizure free but the air flight coming up when we go cruising well be the proof in the pudding. Lifting off and landing. Last time we were on a plane was last November and I had a horriable seizure. You might say I could be a bite stupid to go back on a plane but I do want to find out if seizures will still happen when I fly. I always did llke flying.
Cat farts are pretty smelly too. Did you know that humans fart over 14 times a day? I read it in one of those believe it or nots. Will I must exceed that...ha ha ha-excuse me. Dog farts are deadly. Our poor dog was blamed all the time when my father would let one go.
It is raining here and chilly. My garden is growing very well with all the rain we are getting.
Charlie is doing very well it sounds. Training a puppy to pee outside is something else. I use to tell our puppy many years back when in the back yard "go pee pee for mommy, good boy " and hope the neighbours weren't listioning.
I was talking with my daughter about my seizures about when she knew I was about to have one. She said my ablilty to talk right when go just before one. Daughters are surely our right arms in our lives. I know we both love our daughters dearly.
Thank-you, Hazel for your friendship. Here's smiling at you kid.
Dear Hazel,
Excuse my mistakes when I am typing when putting the wronge words in. I see them when I have already replied to you...off to food shopping I go.
Dear Mary, I always look forward to our chats. Yes our daughters are very special to us, danielle can always tell when i am about to go even before me. She is 18 today cant believe where the time goes. Bless her she has just gone into work. Charlie was her main prezie off us. I know what you mean about Cat farts ha ha my cat will let a silent but deadly off and look at me as if i have done it. believe me everyone knows when i have ha ha loud !!!!!!. I can remeber my mum taking me to the doctors when i was younger about it, i had to take charcoal tablets but all they did was give me a black tongue and fine tune my farts hee hee hee. Well its very muggy here drizzley rain and hot. Thats interesting about lightening and your seizures. I had to have a test where they put attachments on my head ect and had to watch a screen with different things flashing ect and they stopped it as i started to go. The body is facinating . You enjoy your flight and your daughter is with you , its not nice having one but you cant help it if you do. I always worry i will fart or pee myself or follow through. 
. but what can you do. My Doctor has sighned me off for two months as i am struggling to stay in work what with pain and seizures its not a great combination. I had one in the bath Monday my daughter had to stay with me and then help me out the bath, that was a wake up call for me that i cant go on like this. I have the coil but they said might give me the pill also for hormones to balance. As for the nead side if i have to do a hand stand naked by a tree singing come by ahh I will. I have been referred to a phychologist now to work on trying to conrol seizures , they were unsure if it will work but i am willing to give it a try.Hey dont worry about spelling i am not that good, plus when typing my fingers press other letters. big hugs mary. i am smiling right back at you xx