Just been diagnosed with fnd (functional neurological disorder) and finding information difficult
I'm awaiting mri scan to rule out ms but if it's all clear this is my diagnosis.
Has anyone else been given this diagnosis?
A similar condition is conversion disorder, apparently.
Beginning to feel like I've been given this result as they can't be bothered to look for anything else, and as far as I can tell many medical persons think it's 'alll in your head' and therefore not real 😕
What are your symptoms ?
From what I am seeing it is an umbrella term. It's kind of like saying someone has "a bug" which could mean anything from a cold to flu to pneumonia. I have a diagnosis of myalgia which means muscle pain. Until they find the cause that is what they are going with.
You have to love the vague diagnoses they provide when they aren't sure..
From my experience the most popular diagnoses you get in this kind of case is anxiety or depression. Once a doctor send me to a specialist for Autoimmune Disease. Well the specialsit could not fit my symtoms into any of his drawers and was complaining why I was refered to him.
If you haven't done so already please find our support groups on Facebook and have a look at our website fndhope.org. It is a real diagnosis with neurological symptoms and with awareness doctors are slowly moving away from the it's all in your head outdated theory, in the same way many health conditions have. Hope that helps
Hi.
I was misdiagnosed as having FND but turned out to be vitamin b12 and vitamin d deficiency.
My b12 level was 140 but it was initially dismissed. B12 is not a routine test. Ask for the test and ensure you receive a printout of your results.
What have been.your symptoms?
Hi sorry been away from the forum, symptoms are and have been:
Tremors in arm shoulder leg and hands,
Dragging my right foot
Let weakness and arm weakness and both hands
Sight issues. Blurry and cross eyes and kids of left eye vision in waking during the night
Dizziness
Forgetting words in speech and writing
Tingling and kind and needles
Facial painful caps
Burning feet
Crawling skin
Overheating
Insomnia
Let pain
Back pain severely
Think that's it lol
Sorry that should say neck pain not back
Are you under alot of stress or have you had an accident of any kind leading to all the symptoms? You look such a young woman to be experiencing all this trauma. I'm trying to be helpful but only you know what your own situation is as regards the relationships you have with family and friends, are they reasonably ok? I know lots of psychological causes can be at the route of what is really wrong. Question yourself as to what you truly believe is wrong with you. Do you have any gut feeling or is there any medical history in the family which might point to what is causing all your symptoms? I think there's usually a message you get yourself if you look into your own soul as to what is at the route of your problems. Do you believe they are purely physical or do you think they are partly emotional and tied up with your past? I ask this because I think we're all victims and products of our past to some extent and the body reacts according to our coping strategies. We're all unique human beings, but I think listening to your own intuition may be the secret to all of this. I am just going by my own bad health issues. I've have always found that whenever I have had them they have always been when I am going through too much stress related stuff. Did you have a happy childhood and a good start in life or am I barking up the wrong tree? If I am forgive me me for my take on all of this, but I just welcome the day when we all take more responsibility for our own wellbeing. I just believe that it's the only way forward now and in time perhaps that's the way it will become instead of the NHS being expected to wave a magic wand to cure us of everything we suffer. They are not magicians after all. I hope you get to the route of what's causing all your physical symptoms anyhow and I trust it won't be anything life-threatening. It could be a genetic illness when it's diagnosed properly.
My husband collapled in January and left him unable to walk or stand then last night while sat on the bed his legs just wouldnt move at all for a good few hours has any one else had this
I have the same issue. They diagnosed me with fdn on wednesday. They were able to rule out MS, Parkisonns and a brain tumor, which is awesome, but i still don't understand what the hell is going on with me. It is very fustrating. They told me to go and see a nuerophyscologist which i can not see until sept. 20th. All I want to know is how to deal with this and if there is a better explanation of what is going on instead of them telling me ot ignore it and it will go away. I have had tremors in my right arm, slurred speech and now i limp when i walk.
Hi Bubblelelicious23
My fnd diagnosis i think is wrong .
I've since been given a different diagnosis by someone else which seems totally
All I can say is keep asking for answers. Find a gp that will send you for more tests
Hey! I don't know when this discussion was, but I hope you have found some help.
I started two Facebook support groups for people suffering from this condition; one geared more towards younger audiences but if you feel young at heart, or are a parent or carer of a younger sufferer of it or a friend of someone with it then it may be of benefit. It's called Younger FND Fighters. In the group we support one another, discuss symptoms, top tips, share advice and have cool events specific to the group
I also created another group, more geared towards Nordic patients with FND or patients who live there with it, as it is not so well-known there. I study there and wanted to spread the word that we can all support one another and that people are not alone. This group is called Funktionella Symptom- Nordiska Gruppen.
An admin from the younger group has also just created her own website which is a fantastic mixture of informed advice and is thoroughly researched. It's a great source of information and top tips, along with comprehensive guidance, scenarios, fun ideas and personal accounts, struggles and achievements. I would highly recommend it for people with chronic illnesses and especially FND, but also a great read for their families, friends and anyone trying to gain a deeper insight into this often challenging world. The website is called www.fndlifewithoutlimits.com
Hope this help in some way, and that you are doing as well as possible.
Take care!
Hi, I have to say I have the same symptoms as you and I also getting a ringing in the ears, tire quickly and get fatigued. I had a stoke and since then I have all of the above symptoms as u. Regularly I have a non epileptic symptom. U feel very weak quickly, slured speech, weaknes in the left arm and leg. Migrains u wouldnt normsly get and when its all over I sleep for up too 3 hours. Stroke like symptoms. Drs say its Functional Nurological Symptom Disorder. Google it and look under Wilkapedia. I have been told if treated early u can recover. Its been 9 months now and still no treatment. They dont say what time frame is early and my symptoms are getting worse. Hope this helps.
Hi
I have the same symptoms. Nothing shows up on ct scan or mri. The problem is where your brain is normal but functions incorrectly. Its usualy caused through a stroke, anxiety or high level of stress ofset from a severe migrain. Its called Functional Nurological Symptom Disorder. U will will need an anti depressant and go see that physiologists as they can diagnose and treat u. You will need to do rehabilitated testing to help u. Hope that helps.
You are right on that one , FND is actually extremeyl rare Id suggest flying to mayo or filling out a form
same here been suffing with headache over sweating then cold crawling or something up my legs i get jaw pain brain not feeling there i cant stand for long numbness in fingers & hands legs also shake sometimes & no energy always tired & no mood no happy hormones
always feel like i’ve got flu 24/7
This just happened to me . Any advice?