Please help me! I have one to. Big one... die you had the surgery? Was it successful?
Hoping people are still active here I just need to vent. My 9 year old daughter was recently diagnosed with an fnh 7.5 x 5.6 ×6.5 cm. I don't know how doctors don't take this more seriously. I am so frustrated watching her cry and scream her self to sleep almost every night and she is in pain almost constantly. Where it is located on the left lobe the doctors are not willing to touch it as it would be a high risk surgery. So she is just on pain medications and I am at my wits end.
Hi I totally understand how you feel. My daughter is 9 and just was diagnosed with one 7.5cm. Her's is cause alot of pain and I feel so helpless.
i have a large fnh and i feel i have syptima no one wants to listen to me not even in medical field what where your symptoms!!??
had it since 08 its 10 cm diameter … every 6 monthes or so i have digestive or abdominal issues .. could it be the fnh
Hi Serena - I’m so glad I came across your reply. I have had upper right abdominal pain going on 2.5 years now. I’m at wits end. The pain has taken over my life and no doctor can give me a definite answer. Like you, I ruled out every possible cause of the pain. My gallbladder was removed, endo/colonoscopy showed no problems, CT scan finally showed a 6cm mass on my liver which they told me was a hemangioma and to go for an MRI to confirm. MRI showed it was not a hemangioma and it’s either FNH or adenoma. Radiologist is pretty certain it’s an FNH, but they are sending me for another MRI to confirm that. Every doctor keeps telling me this is just an incidental finding and cannot be the cause of my pain which makes me feel like I’m going crazy. I wanted to reach out and see what your symptoms were? I have a CONSTANT pain under my right rib cage. I can press in a specific spot and it takes my breath away because I hit something. Sometimes it’s manageable pain and other times it’s like a deep burning pain and I need to lay down. It seems to get worse with exercise too. The surgeon told me if they were to take it out they couldn’t do laparoscopically which is weird to me if they were able to do yours and it was very large. I just feel so disheartened.
Has anyone had any luck with easing the pain through lifestyle changes? i sometimes make beetroot juice or green vegetable juices to help support the liver but sometimes they also make the pain more noticeable. I find that the pain is worse as i come up to my period and I assume that this is because of the oestrogen surge. The drs are not keen on surgery here so I’m trying to make adjustments that will help. I try yoga and walking but running or cycling always makes it throb. Any things that have helped you?