FOR all those with SARCOIDOSIS.......

Chest and lungs
1

I was invited to a Facebook page called SARCOIDOSIS and it has been wonderful.

Almost 6000 people on there and everyone just talks and helps each other.  I find it easier then going on here.  Please find it and put in a request.  

 

2

Ok I will try and find it thanks

3

Hi Rachel,

thanks for letting us know!!! I just checked and there are two groups called "sarcoidosis." One is spelled "Sarcoidosis" and it appears to be a closed group. I already sent them a request to join the group. The other one is spelled "sarcoidosis" and is a public group. Would you please be so kind to let me know which one is your group?

Thanks!!

Magda

 

4

Magda, it is the closed group. You have been excepted 😊

5

Yes, I've been accepted and already posted my questions there. Thanks for getting back to me. You rock!!!

6

You will love all the feedback.  Welcome to the Sarcoidosis family.

7

Hi Magda l have been trying to find this group on Facebook I have put the Sarcoidosis word in in different ways no luck. Is there a symbol I can look for. Or the best way to find the site any info I would be grateful x

8

I can't get on the fb either but anyways I had my ct scan done Aug 24 and it showed my lymph nodes are larger than last scan June 8 even after being on prednisone 50 mg daily now I'm going to see another specialist in Hamilton Ont on the 8th and I might have to go through another biopsy has anyone heard of thier lymph nodes getting larger

9

Try using all caps.

If you can't find it look for me on FB send me a friends request and I will tag you

10

Try using all caps.

If you can't find it look for me on FB send me a friends request and I will tag you

Rachel Hawley