You may find these twin sites worth looking at as they have a fair amount of Research Information and Support for DISH/Forestier's Disease which is an unfortunate unrelenting condition that we have! You must request to join each group, as both these are closed groups.
Burjis Shroff MD
https://www.facebook.com/groups/DISHRESEARCH/
and
No thanks on the FB sites. I stay clear of FB all together.
Deborah46099 unfortunately that is the only place that has a decent research site with lots of data available, I too am not a fan of FB in many ways, but if you do find something else please do let us all know.
Your right that there just isn't much out there. I had a site at one time but forgot the name of it. I'll be sure and let you all know whenever I find something new.
Thanks for that information
Please let me know if you find it. Thanks