Today is the first day that I am not using prednisone . it's been 2.5 years since I started prednisone . I am so happy to finally be done with that devil drug. In the two and a half years since taking prednisone I have had eight fractured bones including three fractures in one location. I've also turned from pre-diabetic to diabetic. All because of the prednisone. so I am very happy to be off and I really think my PMR went into remission a few months ago but I wanted to taper very slowly because I did not want it to come out of remission. so think happy thoughts for me and I will think good thoughts about you as well. I hope you get to write something like this in the near future.
So pleased to hear that amkoffee - all the very best for the future and hope it stays this way!
That’s awesome, amkoffee!!! Well done!! Hope you continue to drop us a line from time to time - as encouragement.
Keep well!
CLUB ZERO, yay!!! Very elite club, please keep us posted, as your membership gives us hope.
Very best of happy thoughts for you. Don’t go mad and think you’re 25 again again, will you? I found it was more than a year after getting to zero before I felt my muscles were somewhere near ok. Be kind to them.
Good for current patients to hear of your success. Very best wishes.
So pleased for you. The very best of luck! 
My days is nearly over and I haven’t had a single PMR symptom.
things did not work out like I thought they were going to. My PMR symptoms started up about 6 p.m. and I had to take some prednisone to get rid of the pain. I took 4mg I have no idea why I took 4 instead of 5 I just did . But it did get my pain under control and that was my ultimate goal. To say I was disappointed that it didn’t work out is the understatement of the year. I guess I’m going to be stuck at 1 mg for a very long time.
Absolutely wonderful news Amkoffee . I will be thinking very happy thoughts for you, and I look forward to hearing from you occassionally . Good news …Yeah
Nice!!
Oh Klanger ! I saw your positive remark and somehow missed your last remark. I was so excited for you. But on the positive side you are only on 1mg. We will be thinking positive thoughts for you all around the world.
It happens to a lot of people - but 1mg is nothing, if it works, why worry?
So disappointing . If 1mg. works for you and that’s what you’re stuck with for a while common sense tells you that that’s ok but common sense isn’t what makes us feel euphoric, I know.
I’ve posted this before but relevant so I’ll say it again… I was down to 1 when I had my hip replaced and was told on no account to try reducing for at least two months afterwards so even the low doses are regarded as significant. I think I went ultra ultra cautiously but did get there and so will you.
Hey! I have a friend also with pmr who has been on 1/2 mg. pred for a very long time. she says she can tolerate going without pred only every 7th day, so her dsns is 6 days 1/2, 7th day 0. everytime she tries to shorten the time frame, her symptoms return. so she is most happy with her routine. i would be too. she was on 1 mg for a very long time, but she is getting there and has a pretty good life, id say. hang i there–youll get there and way ahead of me.
Yeahhhhhhh! Well done. They told me I would be off pred (for GCA) in 18 months and that’s what happened. Haven’t looked back since.
Congratulations.
You were very very lucky!!!
Thank you Eileen. I had excellent guidance by the hospital rheumatologist, support from my GP and very helpful advice - and support - from forum friends. Without this, I would have been a confused mess!
I know that 1 mg is really no big deal, it’s just disappointing. These past 2.5 years prednisone has made me diabetic and I now have osteoporosis. In 2018 I fractured 5 vertebrae in my back, broke my left ankle in 3 places and fractured 2 ribs. And I think I may have fractured another rib but see no upside of getting an X-ray or CT since there is no real treatment for a fractured rib other than ice. I just want nothing more then to stop this devil drug.
How in the world does she cut a 1 mg tablet in half? Whenever I do it, with a splitter, it disenagrates. Some times I get on good half and the other half is in crumbs.
Do you use a pill cutter?
And yes, I DO get how disappointing it must feel. Don’t you think I have my down days too?