Hi, For those of you have seen my comments on here already, thought I would ask the question, but has anyone been unlucky as me. Seen consultant Monday to be told I need third operation, arthroscopic capsular release - revision. Have lost count of the amount of steroid inj I have had. The pain is still awful and keeps me awake at night like the rest of you. Only been back to work 4 weeks on phased return and have been signed off. Tuesday 13th is operation day hope it is the end of it then. Has anyone else experienced such a tough time and finally got to the finishing post.
I am heading back to have mua with a steroid and numbing injection on the 13 I hope this works cause the surgery in June didnt
Oh I do so sympathise! I'm still at the physio phase, and while it makes a difference for a while, just lately I have been doing a lot of work in my garden as well as gardening for other people and the result is I've done my neck in as well. I can't remember the last time I had a good night's sleep!
I have had this done and they paralised the arm too for 48 hrs. Strange feeling. It helped for a few months and then I was in deep paing again. So we are both being operated on Tuesday 13th. Best wishes and hope it is resolves it.
Oh! have you trapped a nerve in your neck? I have had that at the start of the frozen shoulder. A simple test is to move your neck to the side and if the pain increased that is a sign of a trapped nerve. Sleep deprevation is a killer. I seem to wake at 2.00am and that is it then. Managing on four hours sleep. Gardening! not sure I would recommend that with a frozen shoulder.
Take care not too push it as you know it is a painful condition to deal with. Best Wishes.
Thanks for your concern Jay. Yes it's awful not being able to sleep for more than a couple of hours at a time.
As for pain on turning my head, that's just it - I can't turn my head, at ALL! I'm really hoping my lovely Physio, Laura, can work her miracles tomorrow. I LIVE to garden!
Hi Jay, I havnt been following your thread, so I'm just asking have you had an ultra sound of the shoulder? And are you in England?
Mine will be done by Dr stanfeild I hope it at least kills the pain in need of sleep
It would be interesting to know how long you were into the frozen shoulder when the capsular releases were done. The Frozen shoulder is time limiting and it is said that 96% have a full or almost full recovery when no treatment is given. It seems from reading these posts that the time range of F S is between one year and four years. If you have say a one year FS doing a capsular release at ten months may work, but if you have a four year cycle then nine mothe would be far too early and my feeling is that it may be in year three to be beneficial. In the early stages it seems that patients have difficulty sleeping on the affected shoulder. Perhaps treatments should be done just as the patient begins to notice it is less painfull to sleep on that side. Anyone noticed this? It could be that any treatment will be useful at this stage of the cycle? What I do notice that most patients are encouraged to exercise in the early stages and even through the pain and this can't be good.
Frozen Stiff
Hi Kerri, Yes I am in England. Yes have had ultra sound with guided steroid injections, x ray guided steroid injections, two ops - arthroscopic capsualra release- MUA, and two MRI's Followed by steroid injections again now another op for arthroscopic capsular release revision.
I was two years into FS when capsular release was done and then 6mths later MUA. With steroid injectios between op and after. I am 3 years this month and next op pending. I am about to lose my job as I have not been able to work and having just returned on a phase return they gave me 3mths to get to full time but now I am off again, also had scoliosis surgery in Feb which took me off work too. My pain did seem to reduce but not at night when on that side. It is now down in my arm again and movment is so painful even to drive. So aprt from FS I am now jobless effectively. Unless you have FS noone will understand the pain and exercising through it is more than just OUCH!
Best wishes
This FS is the most painful medical condition I have encountered, I do not understand why even four months after surgery and three days a week therapy I am still in so much pain and extremely limited range of motion, does it ever let up. I have been off work since June 02/2015, with no return any time soon
I am hanging on to the fact it can't go on forever. I hope your company are more caring than mine. I work in the pharmaceutical Industry so thought they would be caring. All my time off coverd by doc notes. So struggling with a medical condition I am not struggling to find a job. Can life get any more brutal. I feel your pain all the way. This morning it feels like I have an elephant sat on my shoulder. Role on Tuesday for the op.
I'm sorry to read of all the pain and misery you ladies are going through. But at the same time, it's good to know I am not alone.
I was in our local newsagents on Wed, chatting with the lady behind the counter. She is our next door neighbour's sister and I know her well. I told her I was suffering with my shoulder at the moment. Another lady overheard us and chipped in. She has had FS too. I have seen her around (it is a small town) but never spoken to her. She is now my new best friend!
Hi Jay.........I'm in Australia. I'm not a fan of your medical system over there. Early this year when I thought I had a frozen shoulder I spoke to many many people on this forum from England and they pretty much all were unhappy with their treatment and ability to get good strong meds. It turned out I had a tear in my rotator cuff, before knowing this I had steroid injections that did nothing at all, physio, X-ray, MRI all showed nothing till I went to an orthopedic surgeon who did his own ultra sound and found the tear, he booked me in for surgery 3 weeks later. All the symptoms were the same ad frozen shoulder.......no range of motion, couldn't reach behind my back pretty much just kept my elbow tucked into my hip and didn't use it at all. Nights were the worst.....that constant deep bone ache that you just can't get relief from. I remember it well. But I had the op, spent 6 weeks in a sling, no movement while it healed, then very gentle physio twice a week. That was back at the end of March, I still go to physio once a week now, working on getting full range back but they say 12 -18 months. But I have NO pain, that's the main thing. Just make sure you don't have a tear in the rotator cuff that everyone is over looking. Good luck, hope you get some relief soon 😘❌❌❌
HI Kerrie, I have had all my treatment privatley except at the start when I was sent to a musculoskeltal clinic who told me that there was nothig wrong with me and the pain will go. That was when I switched to private. I do have a small tear on the underside but the consultant has said it will not give me the level of pain I am getting and will no operate as it is too small about 1cm. I have noticed the cold weather affects it so dreading the winter unless the op is a miracle. Thank you for your kind wishes. I need some of your sunshine. xx
Ps I have sister and niece in Tasmania and niece in Perth.
I am a state tested nurse aid, my company paid me up to Aug 29 now workmanship comp is paying me now I'm praying Tuesday works for both of us
Private is definately the way to go Jay 😄
My tear was only small but the pain was mind numbingly agony especially at night.
You wouldn't want our sunshine at the moment, we had 2 days last week at 34 degrees Celsius, we are heading for 26 today, 28 tomorrow and 29 on Monday, very warm already and we are only in Spring, predicting a very hot summer. Tasmania is lovely, have you been there? Perth isn't bad either but that's a 4 hour flight from Sydney which is a one hour drive north from me.
😘❌❌❌
Oct 2014 @ onset of fs
Jay,
i came down with frozen shoulder after a labrum surgery 14 months ago. I had a capsular release 8 months ago but the pain never left and it froze up quickly.now the dr wants to do a second capsular release in December. I'm not sure what to do.