Frozen Shoulder My Experience and Should I Have MUA?

It appears that I am the lone male member of the Frozen Shoulder Forum.  I have been reading many of the posts and my heart goes out to all--especially those in the early stages where the dread, fear, pain and horror are at the highest levels.

I am a healthy 50 year old manly man, not a diabetic and I have no thyroid issues--no illnesses or diseases.  I am svelte and in good shape.  

The onset of the hellish Frozen Shoulder in my life began about 17-18 months ago.  The first 6 months were a true "Season in Hell".  Under extreme stress and darkness as a loved one had been placed in various I.C.U. wards I will always wonder if somehow the condition/disease appeared due to stress and stress hormones/reaction.

As my arm froze and I could not sleep I soldiered on believing that it was some sort of short term muscle issue.  Hoping against hope as they say--this "denial" continued until I had to prop my arm up in bizarre postions with pillows, laundry and contraptions in a "lost cause" attempt to find a pain free way to sleep.

All my positioning of my arm was to no avail.  I would lie in bed disconsolate and demoralized in agony.  No amount of Aleve medication would help and I feared to take too much after having seen one friend die of renal failure and another from liver failure after a lifetime of tylenol pill popping.

The pain and loss of motion became so intense that after about 4 months of absolute dark, horrific, hellishly nightmarish enduring the malady I sought out an Orthopaedic Surgeon.  

He administered a steroid injection into my left (non-dominant) shoulder and encouraged P.T.  His female nurses were surly, mean-spirited and officious types which served to make me feel worse.

After a few weeks of high priced and silly P.T. with a group of "money-makers" I gave up on going to P.T.

I went back to the Doctor and demanded surgery.  The nurses were even more vicious to me and the doctor agreed to do the surgery.  At the last minute one of my brothers intervened and strongly importuned me to delay the surgery.   He feared that the Doctor was merely after some easy "Cha Ching".

I delayed and sought out second opinions.  I was directed to a noted surgeon who devotes his entire practice to "The Arm".

Dr. Second Opinion or hereafter Dr. Arm Specialist quickly diagnosed the malady.  Dr. Arm Specialist told me that I had a "Severe Case" of "Frozen Shoulder" and that he "Would not do surgery for at least 3-4 months".

The Arm Specialist doctor told me that I had to perform months of P.T. and verify that I had done it before he would even consider surgery on me.

I went to a big strong P.T. lady who worked me and stretched me unmercifully---but it helped.

I would scream and yell as she pulled and tore the Hellish Adhesions inside my arm.  The office staff would close their doors because of my screaming.  The other patients would stare at me with pained and angry expressions--but I did not care because of the pain and the need to rip the Adhesions apart.

I would think of hardened super glue looking "Spider Webs" holding my arm in the  Frozen Postion as my P.T. and her helper would actually "Rip and Tear" the Adhesions as they pulled my arm this way and that way.

I had to do my own stretches and strengthening exercises and movements on my own.

After about 4 months (and several Cha Ching visits he demaned during the time!)  Doctor Arm Specialist said that I had regained about 60 percent of my motion.  

The "at rest" pain had diminished quite a lot but the stretching pain was still very much alive and well.

The doctor agreed to peform a "Manipulation Under with Pin Hole Arthro" during the manipulation if he felt it necessary.

He said that if he were advising himself or his son/brother he would say avoid the surgery and keep working the arm in P.T. and/or on my own.

He knew I did not want to miss work and he said there was/is no certainty that the MUA would/will work well or at all.  He also said that the Frozen Shoulder could come right back and become worse than before after the MUA.

I have waited until now and finally sought out forums and found this forum site.

I have about 75 percent of motion back and the pain is there when I stretch.  

I feel that I am not the full healthy person I was before because of this condition.

I am considering the MUA if Dr. Arm specialist is still willing to perform it or if he won't then I can seek out another Specialist who will.

I hope some kind readers will tell me how their MUA experiences/surgery and recoveries went and any thoughts they might offer on my decision on whether or not to have the MUA performed.

The good news is that my Frozen Shoulder Nightmarish Odyssey did improve to a degree from the worst Frozen/Pain stage.  But, the range of motion is still greatly diminished and the pain is there when I stretch.

It feels like a full and horrid Super Glue Hardened Spider Web Holding My Left Arm to a certain limited range of movement.  If I pull really hard the pain is quite bad and I can feel those Hideous "Adhesive Super Glue Spider Web Type Adhesions" being pulled and pulled.

In a bizarre psychological/emotional form of what Emerson called "Compensation" I have tried to find some joy in the recovery and the process of struggling to get better.

My faith in Christ and God has increased during this episode.

I may have neglected to mention that the onset was "Idiopathic" and "Insidious".  I did not sustain any memorable injury and I was not involved in any accident.

I am aware that men are afflicted in about 30 percent of cases and that usually folks with Diabetes and/or Thyroid issues are afflicted.

I have no diseases or maladies and I am very very manly and male.

I empathize with all who are reading this post and who have suffered with the vile and insidiously horrific malady of "Frozen Shoulder".

One thing I try to keep in mind is the idea of Albert Schwitzer the famous protestant missionary convert who said "if you are feeling sorry for yourself...go find some people or person who has "it worse" than you do and spend time helping and visiting with them".

Thank you!

Bobby you poor chap. Sorry you have had sucha  rough time.

Many people have no idea how they got it - but in hindsight remember some heavy lifting (as now they wouldn't offer to lift a bag of cold hard cash - because it hurts)

Manual handling training teaches us all to bend with our knees and lift portecting our back - but we need to warm up and stretch our shoulders too - rolling shoulders, rolling neck and windmilling arms. I tell everyone to do this now.

there is deifinitely a link between stress and onset and this condition has aserious impact on mental health too - so make sure you get the right support for your mental well-being - stress and depression come hand in hand with the pain, sleep deprivation and medication dependency,

I had 2 very different experiences with my 2 shoulders. So all I can say is that it is a bit like a broken leg - some people have 3 weeks ina cast a nd 2 physio sessions and are back playing soccer - others have operations, pins put in, traction, onths of physio and walk with a limp/use a stick forever more - but it is still a broken leg.

For both shoudlers i had arthroscopic release (key-hole surgery). With one I was off all meds 2 days after surgery - with the other, I am 4 weeks post surgery and really still in as much pain and dependent on morphine, although my mobility is better.

Wishing you a speediy recovery.

Gosh Bobby....are you by any chance a school teacher. That was almost an essay you wrote.

Sorry you are suffering....every one of us on here has suffered pretty much the same way. I must admit the medical system in your country and I'm presuming your in the UK seems to give you the absolute run around with medical attention. Sorry your still not 100%. I've had successful surgery for a torn rotator cuff and been told I won't be back to normal or full range for 12-18 months. So good luck with your journey...hope it improves soon 😊

Hi Bobby (hi everyone else!)

Your experience to date sounds nothing short of horrific, the therapy in particular. 

I'm always amazed and more so every day of the varying opinions of surgeons on the treatment plan.  I'm in the UK and though I work in the NHS I had my capsular release surgery privately via health insurance we contribute through via my husbands employers.  I was very lucky. The surgery on the whole has been a success, immediate relief from 'that' pain but full mobility is not back fully but I can live with it, physio continues for another 3 sessions. Your description of the therapy you have had I almost gasped, my surgeon had said to me no matter how much physio I had it would not have made it better, maybe even worse prior to surgery and although I was too far gone for injections I would never hesitate to recommend the same procedure to others.  My surgeon was diplomatic about manipulation (always under anaeasthetic I had thought - not you?) and even in my surgery the manipulation was minimal and only one direction to reduce injury, risk of tear or fracture. I don't know what to make or your surgeon to be quick frank and find reading the whole experience quite hideous, I really feel for you.  I'm sorry I cannot help you any further than what we have all done with one another in sharing our experiences and supporting one another through this awful, awful, very misundestood condition.

Hi Bobby,

I agree with your frozen shoulder may have started due to stress from the trajedy you were experiencing.  I have spent many sleepless nights on the computer studying everthing there is about frozen shoulders. 

I am also a very healthy athlete (but a woman) and I lived 3 years, because of 2 frozen shoulders, in the hellish nightmare you lived in recently.

My husband is a Physical Rehabilitation Doctor so I had him to reflect with throughout the nightmare.  He is the 1st to admit that 1) there is no definitive answers regarding frozen shoulders and 2) many people are overdiagnosed with FS and therefor when people like you and I are living in hell others don't understand  believing we are exagetating.  To me that was the 2nd worse part of frozen shoulder.

My opinion is don't get the surgery Bobby. YOu are 75% there as I am with my 2nd and at this point you experienced the worst part so be patient, keep doing your exercises and stretching and it will eventually get better.

I did not do surgery with either.  I do wish I had with the 1st because the extreme pain and no sleeping lasted almost 2 years. But yours is past that extreme stage.

Sorry for your suffering.  There is always the beauty of needing God more during our darkest hours so we can hold onto the only good part of this horrific infliction!

Sheila

Hello Bobby , your not the only male and we are the same age , firstly your account of PT would be enough to put me off of revisiting the place , I can't begin to imagine the agony of having my arm terrorised in that manner without being put to sleep first . 

I'd  been suffering with FS for around 3 months and managing at work and life with changing the way I did certain things . That was until two weeks ago when I was in a road accident , basically two cars piled into the back of mine , this slammed me against the steering wheel and now the damage is hell with almost no movement , I've just had my medication changed and referred to an orthopaedic consultant as urgent .

i had before the accident a visit to a private PT he actually said something that surprised me , he diagnosed FS and said that I would be wasting my money having continued PT when I could do this myself at home ,, he demonstrated some exercises . 

Thats was of course before the accident and in my particular case .

hopefully this living hell will be treated soon , I really can't imaging living with this pain for months even years from what I've read , I sympathise with every post I read from people suffering with this condition .

i hope everyone gets the treatment they need , quickly ...

Totally agree its stress related.......... I was going through such a stressful period in my life when this awful condition struck  

You so deffo need surgery - no one needs to 'exsist' with this condition longer than necessary........... You wont look back  

Blimey you have certainly been through it.  In my opinion Bobby have the mua,you are obviously at the end of your tether with this wicked thing.  MUA is not a major surgery, especially for you, you probably have one side still stuck and since you have had it for such a long time, it is very unlikely to come back.  The op is very quick, you are only out for a few minutes, then home with your feet up feeling fab.

Dont waste time suffering, take control of it, you wont regret it.

Kerri,

I am an American in the U.S., not a schoolteacher, I write too fast and without proof-reading anything (keeps it real).

This "disease" of "Frozen Shoulder" is just vicicious, painful and debilitating enough to be maddening and nightmarish but not bad enough to cause one to "give up" into self-pitying dispair.

I have found the adage about "time healing all wounds" to be sort of applicable with my case of Frozen Shoulder.

One slightly unique (not entirely unique to males) part of being male is that we (I) tend to have the expectation of constant and daily full strength and full faculties regardless of and without any thought to a "calendar".

So--when some unforeseen "speed bump" or "bad days" come along regarding physical health we tend to have a rougher go of it than many females that I have known.

As my sister, mom and nieces have made known to me--they grow up with several days a month of feeling bad.  While most men suffer these "bad days" only when they have a cold or allergies.

So--as the "Minority" suffering gender in this god-awful disease/malady I have to say that males have it worse than females if only because we (certainly "I&quot are not usually experienced with any degree of physical debilitation or "bad days".

My first real taste of "Cryptonite" to borrow the metaphor from "Superman" comics/movies/pop culture.

I Re-Read C.S. Lewis' phenomenal work "The Problem of Pain" for the 14th time and as always it helped me understand what and why such things occur.

I suppose all who have the FS "Badge" have a sort of civilian purple heart if they deal with the injury with courage.

One last thought---I saw a bloke in the Wal-Mart and he was perambulating along with a markedly and distinctly bad gait and shuffle.  As I watched the unfortunate fellow (a man of about 40) I realized that he appeared to have suffered some type of major stroke and that he was "Frozen" on half of his body.

His face (half frozen) and his limbs "Frozen" as he used one of those Aluminum or A LOU MIN YUM as my British Bloke Friends would say!

canes to help his balance and to prevent his sometimes deeply listing gait to turn into a full "Capsizing" of his person.

I smiled at him and he flashed a pained, nay a "tortured" grimacing smile at me.  It was all that I could do to hold back a sudden and nearly uncontrollable flood of tears and sorrow.

It became suddenly clear to me that my seeming "horror" of "Frozen Shoulder" is/was a mere triffle that has and will improve over time---while the afflicted bloke I observed smiling back at me in a grimaced way has to endure his "Frozen Half" condition probably for the duration of his years left on this Earth.

 

Whoa.....there you go with that essay writing again. I'm an Australian in Australia. Your right it is a god awful insidious nasty disease and no there is no point in giving up into self pitying despair......your right. And yes we females ALL know we are the stronger tougher sex and that most men don't handle being ill or incapacitated too well.......BUT.......you don't have a choice with F/S we all just live in pain hoping for a miracle. Hope your miracle is coming soon Bobby 😳❌❌❌

Hi Kerri,

Hope you are continuing to improve?  Waves and winks from the Scot in Scotland!!  Mandy xxx

Thanks Kerri, yeah, English Literature major! More Hawthorne than Hemingway in my writing....modernity is a 140 Twitter texting world! :-), Proust and Tolstoy would be appalled.

Brevity is the soul of wit!

Stay strong...I love Australia! :-)

Bobby

Hey Mandy...how are YOU doing my lovely??

my shoulder is improving every day....I'm at week 5 post op now....one more week in the sling. Coming off my last med at the moment....suffering a bit of withdrawal....body aches and pains. I've been on a morphine based med for 3 months and my body doesn't want me to stop it.......it is screaming for it, but I have to be strong and ignore it. It's only day one....god I hope it's over quick. Sending you gentle hugs and kisses 😘❌❌❌

Lol......Bobby, English Lit major.....well that explains your very descriptive essay writing I guess 😜

😘💚💛❌❌❌❌

I too devoped frozen shoulder even though no prior injury.   The kicker for me is that I have searched online and found that there is a significant group of people with MS that also develop this condition.   Probably the autoimmune and spasticity component that makes people living with MS more susceptible.  Lack of sleep due to pain can make you feel crazy.  when it is bad I take a trazedone to help me sleep and prop my arm with pillows.

I found the best think was to get the strongest biggest massager wand and stretch until it is uncomfortable and work over your arm muscles.   Try to run down the lenge of your arm and around the back of your neck and around the scapula area (shoulder blade).   Invest in a small heating pad and wrap it so it covers around the arm  (make sure you don't kink any of the pad.   Sleep with it wrapped around your arm.  (be careful you don't get it too hot to prevent burns).  I found I can put mine on the hottest setting.    I have got a lot more motion out of my arm that way and although I can't quite get my arm to go out to my side stretched out or be able to fully raise it above my head, it has reduced some pain.   You do have  to work your arm everyday at least once.   Push it to a bit of pain but don't push it too far as it just will come back anyway,. 

I was really unimpressed with the fact that since I have MS they thought the frozed shoulder was unrelated so would help me with physio generally but do nothing to address the shoulder.   As to the ms, and loss of movement due to MS they said just live with it,   Any loss or any pain to anyone should be looked at as seriously.   It is almost with MS  you are a second class citizen,  your condition is chronic - so go live with it.     Because of this attitude I have had to find my own resourcefulness to "fix" or work with these problems myself.  I have to say I have gotten pretty darn good with it.  

There are a lot of good physio therapy sites on youtube.   It is fine to push for a little pain  but if they are pushing it too far they may be exacerbating it.  I started with solid pain and no movement to some range of movement and pain only outside the range.   Like you I am waiting for the painful thing to resolve itself.    Having MS as well makes it very scary when you lose movement of something because it is harder  to regain the movement when you tend to have a partial paralysis from MS lesions to begin with.   I get all the pain and less ability to move.

 

Just now signed up here to read up on Frozen Shoulder recovery.  Yes, I am a male also so I guess that makes 2 of us here now . Mine started about 16 months ago in one shoulder and just as I was getting better, the other one started.  I've had nowhere near the pain Bobby has described and both shoulders seem fine now EXCEPT I still cannot get the full rotation with arm at 90 degree L and my hand up next to my ear. OK, I don't know how to describe that very well .  So I ended up here as i was doing research to see HOW LONG it may take to get that flexibility back or if it ever will.  

They say it can take up to 3years for this condition to fully 'heal' hang on in there and continue with your excersises! Mine is now 13months and I still can't reach up my back - its so frustrating!!!! The pain has eased so much though and I can now get some sleep

Jim,

At this point--I have suffered with the vile "Frozen Shoulder" malady for going on two years.

I never had the M.U.A. though my Orthopaedist was/is willing to perform the procedure.

I have approximately 80% of the normal movement in my arm relative to the movement I had before the onset of the insidious "Frozen Shoulder".

Regarding the rotational movement at the 90 degree motion--I don't have full movement there either--lacking about 20% and when I force movement in that position I experience pain.

Regarding your decision as to whether or not to have the M.U.A. I will share the following in the hope that the information assists you in your decision process:

My Orthopaedist (he is about 60 years of age and a specialist devoted solely to surgery on the "Arm&quot told me that he 'loves to do surgery above all else in life'.

'But', he said, 'M.U.A. is not a 100% certain curative action'.   He said that he can perform the M.U.A. and when doing it he can peform some additional Arthroscopic surgery if he deems it necessary.

He was very direct about the fact that M.U.A. requires tremendous follow up Physical Therapy for 5 days per week and twice a day---OR RISK THE REALITY THAT THE CONDITION CAN RETURN AND BE EVEN WORSE THAT BEFORE THE M.U.A..

I asked him "straight up" the following question---"Dr. Arm Specialist, if you were advising your son, brother or close friend what would you recommend?"

He said to me, "I would NOT have M.U.A. now and I would do Physical Therapy for another 3-4 months and see how it appeared then".

He said that he would be willing to perform the M.U.A. at a later date if I requested it.

To sum up my decision thus far--I have done light P.T. and my movement is about 80% of what it should be.

The pain is gone except in certain limited positions.

I have some residual stiffness in certain positions.

My decision to NOT have M.U.A. was partially based on the possibility of further exacerbating and perpetuating a bad situation and on my inherent detestation of going under anesthesia unless absolutely avoidable.

I have thus far wagered that I have 80% of what I need and why "Roll the Dice" on 20% when I could lose more movement and be out of commision to work for a long time.

Additionally, going under Anesthesia (whilst viewed as "routine" and a "walk in the park", or "cake walk" or "gimme&quot is far from a 100% certain recovery thing.

I have been under total Anesthesia 3 times in my life for various surgeries (neurosurgery on discs, broken arm and broken skull).

Advice is cheap so I don't want to directly advise my thoughts for you.

I will say that I came very close to having the procedure and occasionally I consider the "what ifs" and imagine still possibly having the M.U.A.

I may return to Dr. Arm Specialist and have his updated insight.

I wish you success with your Frozen Shoulder malady and hope you are cured and recover full use of your arm.

I cannot stress enough the help given by a British bloke by the name of Clive Staples "Jack" Lewis in particular his phenomenal short book--"The Problem of Pain".

Sayonarra.

Hi Bobby,

my goodness, someone who writes essays like me for which I spend my life apologising!  Yours are far more lively and interesting I have to admit  but incessant pain has dulled all my senses and a sense of humour has gone out the window.  

I identify with your problem and decision process apart from putting myself through the hell with a physio.  

I suffered an injury - broken neck and damaged shoulder/wrist/hand without proper diagnosis on any of the arm as the neck appeared to overule everything in A & E, not surprisingly I guess.  Coincidentally I too then spent months in an out of resuscitation and critical care units in hospitals next to my fathers bed, driving many miles etc in round trips whilst trying to recover from my own accident.  The shoulder injury went into FS and I have suffered excrutiating pain for 15 months until the last couple of weeks when the pain has shifted and lifted considerably, ironically when I finally got an op date for MUA and shaving of the bone causing impingement.  the op is scheduled for next week and I was warned by the surgeon it may get worse, not work at all but hopefully will cure it and shorten the recovery time if left to its own devices.  The pain has reduced by 80% but still no movement but with little pain I dont want to go back to the original pain levels.  I want to know if the FS is left to its own devices will the impingement also recover or still need surgery so planning to enquire today. Feel I could start physio (on my own) now in this stage and work gently to my own limits.  

The surgeon said never to move it when causing extreme pain.  

I am off all painkllers and sleeping at night once more.  It has taken me ages to get on the list for surgery so hoping they will let me take a few more weeks to see how it goes before doing so. It is the NHS and not a private option but run along the lines of a private clinic.  I have severe wrist and hand pain with my symptoms too and likely carpal tunnel has developed since the injury but dealing with one thing at a time and the NHS has not allowed teh one clinic/surgeon to look at both in conjunction. I pushed to go through a clinic away from my GP's usual referral in the local hospital, this resulted in a long overdue MRI, diagnosis and improved treatment than I would have got.  

The trouble with a site like this is that those who had MUA early on recovered with no problems and are living their lives and not talking about it on forums - but we dont know the statistics to make informed decisions ourselves and also there are good and not so good surgeons as we all know.

wishing you all the best x

I will read the book!

 

I had the same surgery and was very fortunate of have an experienced surgeon, after therapy doing better.this is full time management . Always treat when necssary with heat an wear a apring splint if possible to work with the therapist.