7 weeks ago I was a healthy vibrant woman, I had felt unwell for quite a few months could never get a dr app. Anyway for someone who never ached or had headaches or suffered tiredness I turned into a zombie. I was originally signed off for 2 weeks pernicious anaemic b12 injections followed the tiredness became unbearable the weightloss uncontrollable my voice hoarse for the last 6 weeks. My symptoms became chronic I have been in hospital a week only now have they controlled the awful back pain my obs are that of an extremely fit woman. My ct scan has shown bronchesties over the last year I have cried at the dentist I have lost two teeth n have a failed root canal. My doctor suspects Sjögren's syndrome. I also have dark pigmentation in my gums. Itchy skin dry skin bald patches. Please help I am at a loss and feel like I'm going mad. Oh I'm also not digesting certain foods
Hi Ally...that's my grandbabies name 
and in here, my name is "frustrated61" odd!
Ally, you're not going mad. I do have sjorgen's syndrome and sarcoidosis. It has definitely effected my eyes, lungs lymph nodes, thyroid nodules which led to an partial thyroidectomy...I have scars all over my neck and 12 inch up the back w/fusion down from L2-S1 and C456 fused....was almost blind in my left...that is another topic! I also suffer from burning tongue, deep indentations on both sides of tongue, black gums, on the bottom and top...you can't see it unless I pull my lips out to see. I have white spots all over the gums (to which one can see). I hear and feel your frustration. I've lost one tooth and I know there's two more that have to be addressed.
Your back may be suffering from lifting something too heavy or perhaps hernated discs, which can happen if you train with weights...it makes your back strong but can cause unseen/felt herniation of one or more discs...which means it can be fixed!
I'm going to a new rhematologist which will deal with the inflammation of both my back and neck(which it was injured severly from an auto accident)...sjogrens and sarcoidosis also can contribute to some of the pain).
Have you seen a Rhematologist? If you do, some of your problems will lesson or go away. I was put on Methotrexate and plaquenil. I also was put on steroids for almost two years...I ballooned up like a s Also, I'm using DE food grade which is crushed sea shells from ancient times...it has minerals and other wonderful benefits. I'd be here all night! You can google and read all the comments and benefits. It has helped with my arthritis. I just got out of the hospital...two days last week and three days this week because of my sarcoid and sjogrens...I haven't been able to use DE grade at those times, but, it gave me a chance to ask many doctors about DE FoodGrade...if you have time, check out the reviews on it...just put in the google search engine...DE food grade...and the entire name will show up..the entire name is:Diatomaceous Earth Food Grade 10 Lb. I've been taking this for a month and two weeks...its close to that anyway!
I ordered through Amazon...the best deal was purchasing the jars of 4. I was afraid to get that much for fear I would just give this up. I found that if I drink it before a meal, I get full quicker and eat far less.
Well, once again, I've written a book....I hope some of this was helpful!
Good luck and keep conversation going
frustrated
Hi Ally...that's my grandbaby's name and in here, my name is "frustrated61" odd!
Ally, you're not going mad. I do have sjorgen's syndrome and sarcoidosis. It has definitely effected my eyes, lungs lymph nodes, thyroid nodules which led to an partial thyroidectomy...I have scars all over my neck and 12 inch up one part of my back and another 9 inches in another part of the back, w/fusion down from L2-S1 and C456 fused and the 9 inches was to put in a pain stimulator..which it was in a state of dysfunction after 2 years so it had to be removed also because it set off shocks even when turned off (can you imagine...me: Hey AlleEeEeEeEe) sorry my stimulater wants her attention and, with sjogren's, I was almost blind in my left eye...that is another topic!
I also suffer from burning feeling on my tongue, deep indentations on both sides of tongue, black gums, on the bottom and top...you can't see it unless I pull my lips out to see. I have white spots all over the gums (to which one can see). I hear and feel your frustration. I've lost one tooth and I know there's two more that have to be addressed. I have some kind of a cyst which could very well be full of parasites also, another area to be addressed.
Your back may be suffering from lifting something too heavy or perhaps hernated discs, which can happen if you train with weights...it makes your back strong but can cause unseen/felt herniation of one or more discs...which means it can be fixed! You might want to ask your doctor to refer you for an MRI...or CTScan...however, the MRI is my choice. :P If you're claustrophobic, I know there open MRI's as my husband is very claustrophobic and he's had an Open MRI.
I'm going to a new rhematologist which will deal with the inflammation of both my back and neck(which it was injured severly from an auto accident)...sjogrens and sarcoidosis also can contribute to some of the pain
Have you seen a Rhematologist? If you do, some of your problems will lesson or go away. I was put on Methotrexate and plaquenil. I also was put on steroids for almost two years...I ballooned up like a suma wrestler :P I'm using DE food grade which is crushed sea shells from ancient times...it has minerals and other wonderful benefits. If I named the beneftis, I'd be here all night!
You can google and read all the comments and benefits. It has helped with my arthritis lol not the comments and benefits...the
frustrated
Ally...I'm so sorry this somehow posted twice...I can't delete it either. sorry 