please tell me your stories/experiences.
what did you do to aid in full recovery?
sorry i keep posting
just needing a boost here!
thank you
Hey Starr,
First of all, I second this. There aren’t nearly enough positive recovery stories on this forum (I know you’re out there!). But the thing is, both of us probably won’t be spending as much time on here when we’re fully recovered. I’m sure the people who have recovered were eager–just like we are–to put this all behind them. I don’t blame them, but let’s promise each other that when we’re both fully recovered that we will post our stories here to lift the spirits of those still struggling.
Second, I’m not fully recovered yet (going on month 5), but I will say that the most helpful thing I’ve done for my body and mind is learn to accept the situation. I’ve changed my lifestyle in so many ways because of this virus and this has been by far the most difficult thing to do, but also the most beneficial. This virus feeds on stress, which makes it self-perpetuating as being sick is stressful and the sickness thrives under that same stress it causes.
For this, I would recommend a meditation practice and a therapist (who will also recommend a mediation practice), to learn how to keep the stress at bay. Also, if it’s an option for you, maybe consider taking some time off from your work-related responsibilities and focus on diet, sleep hygiene, and doing things that you enjoy primarily. I’m a college student who had to take this semester off because of this virus, so I’m currently living with my parents and doing nothing full-time (which probably sounds great to a lot of people but I was very active, high-functioning person before this took me out). I definitely get a little stir-crazy sometimes (especially when I’m feeling pretty good), but with the constant swinging between feeling good and feeling awful, it’s comforting to know that when those awful times come, they won’t reflect poorly on me. I just accept that I’m feeling terrible and do my best to pass the time with things that I enjoy (reading, watching movies, etc).
I also hope that you have strong support system of people that will listen to you and acknowledge that what you’re going through is really hard. One extremely valuable thing this virus has done for me is shown me who genuinely care about my well-being. I’m incredibly fortunate to have been able to distinguish people like this in in my life.
I know that we want to be in control, but unfortunately we are not. This virus just needs to run it’s course. The only thing that will speed it up is to have a healthy mind and body. Nothing special. Just take care of yourself and look forward to the forthcoming days of health where you have completely forgotten that you were ever sick. And when you do remember, don’t forget to come back here and let all of us know that you’re doing okay and that we will be soon too.
I hope this helps!
this was nicely said willis…im in the same boat was a college student had to take this semester off and am still living with parents i am blessed that they are very supportive of me also during this rough time im 9 months into this now and still feeling overall pretty weak and fragile my blood sugar drops at random times..this virus does crazy things to our bodies…i agree with starr just needing some encouragment lately feeling down about it all but i also know that a lot of people that have recovered do want to put this in the past and not even think about it any longer i know thats how i would feel too…but i also know how hard this is so once we recover i agree its super important to at least share our stories and shed light to those suffering too i cant wait to post a recovery story and im sure yall are eager to do the same…gosh i am praying for us to all have that recovery story just right around the corner!
There is a thread with 251 replies that I read through to help let me know things will get better.
It doesn’t hurt to start a new discussion though!
Willis, you hit this right on the head. There is no point to stress about something that cannot be cured with anything but time. I have just recently changed my outlook towards this and I have to tell myself that it can always be worse (cancer, etc.) and that I will get through this! (You all will too!)
Sorry for all the posts Starr, a combination of things helped during my recovery, taking vitamins and herbs, finding the balance between rest and activity, trying (hard as it really really is) to be patient, just managing things day to day and not looking too far ahead, and most definitely praying and trusting God was the no.1 thing, it’s not at all easy to hold onto strong faith during trials I really do know Starr and have been finding it difficult at times myself lately, but knowing that God is there looking after you and will pull you through is something to hold onto, great hope.
There is a British man called Phillip Day who is into vitamins and herbs a lot and recently I went to see a talk with him and learned a lot of useful new things - he advised taking much higher doses of Vitamin C and Vitamin D, particular during times to stress, his company website is www.credence.org I have learned a lot it’s worth looking up his views / thoughts on vitamins.
Craig
yes
agree!! thank u so much
i hope this wraps up! 100%
ready for life!
take care
what are your symptoms? curious
My symptoms are off and on. Most days I’m just incredibly exhausted and require 10 hour nights of sleep. If I get that much, the fatigue is manageable–any less and I feel like I was hit by a truck. If I’m having a bad flare up, my heart rate spikes, I have a crushing headache, I get hot with this really strange/uncomfortable tingling sensation on my face/around my nose, I get moderate pain in my right shoulder (weird) and in my spleen-area, but all of those things are things I can work through. The fatigue, malaise, and brain fog are the real problem. It’s a difficult feeling to put into words, but the best way I can describe it is feeling like my head was zapped/electrocuted by something. It’s really uncomfortable.
have that same feeling in my head very weird nothing like a regular headache the fatigue brain fog and malaise are the worst too for me as well as getting hot flushed and feverish
i made a full recovery, but i already wrote about it lots so click on my username to see allllllll my posts from sickness to latest update.
i am now 95% normal
So pleased to hear you are doing much better van - this is wonderful to hear. And that 95% will get back to 100%, there is more improvements to come I do believe!
Craig
Hi Starr,
I was diagnosed with mono in Ocotober of 2017, I have recovered, I drink green tea for anti inflammatory properties and take Advil as needed and plenty of rest. I did take monolaurin,
thanku
good to hear
so you said you rink tea and rest /advil etc
does that mean now or past tense? is this a prevenative measure?
youre 100%?
im so ready for life/body back
it feels like its coming…glimpses of normal
but not a full symptom free day yet*
the normal moments seem more and closer than ever at this 1yr timeline of mine
will my body cont to heal
??
thank u so much
you have helped me a lot
my jelly legs scare me so very much
the head stuff too
ugh
thanku again!
thank u well put
im on 1yr
stronger
but fragile
still having issues
i will be here helping others
i will not leave even when well
although its taking so long
i feel like is this it
tough
take care!
I can’t say fully recovered but pretty close. I’m on year two of this fantastic voyage month 18 was the major turning point for me. Up until that point the progress was slow and then all of a sudden I started to feel better. At the 18 month mark I got frustrated and said to myself the hell with this I’m just going to have to get used to this and move on. Not sure if that’s all I needed to do but this is when I really started to get my energy back.
One other thing I did was go on antianxiety meds for about three months. I tried on my own to control the anxiety that comes along with this but couldn’t. I think this also had a big part in my recovery.
I still have the occasional day that I just don’t feel right but they are far and few between.
Kelly what a journey you’ve been through by the sounds of it - so pleased to hear that you’ve been feeling better lately - I know words can’t sum up the pain and frustration and frightening experience of the journey of this virus and how it affects you mentally, physically and emotionally.
Hoping and praying for better times ahead Kelly -I’m believing there is more breakthrough and further elements of recovery to come for you, and that the worst of this is behind you - praying that in Jesus’ name. Thinking of you.
Craig
Hi Starr,
Yes pretty much recovered, have down days now and again, especially after a virus. I would say I am 95% and very grateful for that. The weakness in the leg lasts for a long time. I was 54 when I got this, so i think it lasts longer when you are older.
When I was sick I thought I would never get my life back, it is a very slow process but you will get there.
hey, i had mono in 2017 october and made a full recovery.
my story is quite long and ive posted it before if you wanna check it out
basically, what helped me the most was a short course of steroids prescribed by the doctor aswell as any anti inflammitorys youre allowed to take.
my worst symptom was the sore throat, if youre experiencing that too, i cant even begin to explain how useful yoghurt drinks are, they rehydrate you and make you less hungry, and they soothe your throat better than any painkiller, buy alot of them.
it gets better, dont worry
Hi Everyone, I am 2 1/2 years now since diagnosed with Mono.
It has been an awful journey. I had my tonsils removed in April 2019 which was a massive turning point for me. The worst two weeks of my life but since then I have not been getting tonsil stones which were developing in crypts in my tonsils as a result of the Glandular Fever initial infection. These were bringing my energy levels right down and now I have slightly more energy.
Generally I feel better and I would say around 70% recovered but I still am not anywhere near the person I used to be. I get extremely tired early, struggle to travel, cannot tolerate alcohol, can hardly exercise at all and generally have aching pains in my neck all of the time. I still remain positive for further improvement but after so long there are times when I lose hope.
Has anyone else on here been on this journey for as long as I have and still not had full recovery? They were talking about GF and ME / CFS on the radio the other day for about an hour and it was interesting to hear many others discuss their stories and how it had knocked them out for a year+. Just getting a bit disheartening now after so long and still not feeling up to travelling the world which is my true dream.
Any advice / feedback very welcome. This has been my first post in almost a year on here.
Many thanks,
Sam
Hi Sam,
It was really good to see your name pop up on the forum, goodness you’ve been through a terribly long struggle and journey, one that I know that no words can do justice to in describing how hard it must have been.
I still really hope and pray and believe that you are going to see full recovery ahead. It is good to hear there has been some progress but I can only imagine how frustrating that you just can’t get back to full health at the moment. Sam it really can be true with this virus that it can take a few years for some people to reach full health again, but it definitely comes. I remember after 3 years feeling much better than at 2 years, even though I was doing a good bit better at 2 years anyway, recovery still comes as time goes on with this thing, so don’t give up hope that you will get back to 100% - I believe that you will. Just so sorry it’s been so tough for you lately - thinking about you and it’s great to see a message from you.
Take care and hang in there,
Craig
thank you
agree!!!