Gallbladder, IBS, Colitis, Crohns, coarctation help please

Digestive health
1

hi, Can someone help please, 

GB removed Jan 14, after years of pain, the ultrasound reported the following "Posted over a year agoHi after years of pain that makes me very sick and being told i have IBS, I finally went for an ultrasound, the very next day the GP had the results. "Solid area of the fundus of the gallbladder measuring 2 cm which contains multiple bright foci. The gallbladder wall at the fundus is slightly thickened. There are several hyperechoic small foci in the rest of the gall bladder and some along the wall. The solid area at the fundus with bright foci demonstrates some vascular flow. Adenomyomatosis consistent.

2.6 simple cyst on liver. Cannot see pancreas as too much gas"

the six months following the op were horrendous, hospitalised four times for a week or more for the pain or bright green vomitting. CT showed a dilated bile duct, ERCp ordered but never happened due to more urgent admissions.  Eventually MRCP showed the bike duct was ok, one Dr said the stone could have passed another stated a mistake in the CT.  Endoscopy showed inflamation so I was given renitidene.  

My last outpatients clinic a different consultant as mine was on holiday stated the Dr wanted to discharge you but I can't as you have lost a 1/4 of your body weight weighing 40.7 kg.    ordered a blood test for Coeliac which was normal and a CT,  three weeks after the CT I get a letter stating the CT shows a thickened colon wall and lesions suggestive of Colitis. so within two weeks a flexible sigmoidoscopy was performed,  the Gastro Dr performing it asked me if I was having bloody diarrhoea, I said no, he asked me if my DR had looked to see if there was a link between my previous surgery for coarctation of the Aorta?   They have never been linked.

received a letter today from the usual consultant who stated that the Flexible Syg was ok and the biopsies were clear suggesting the CT findings did not represent any significant pathology and you can be reassured about that.  It does not give any clue to the cause of your symptoms and I think we will have to attribute them to IBS.  I will see you in clinic to discuss and discharge.  

Is is this normal, I am still in a lot of pain, daily ache that is more constant now.  It's very sharp on the right down to the hip and through to the centre of the back.  My eyes are constantly black like I have been punched.  My energy levels are so low I really have to push to carry on as I am self employed.  My sinuses are always blocked and the Fflixonase doesn't seem to help. My legs have started to ache,  squeamish part sorry but my stools are blacky/green sticky and some days I am frightened to leave the house especially morning as I am in and out the toilet.  Sometimes the pain is so bad and the Tramadol doesn't work it's like really pushing down. I did at one point ask about the liver simple cyst which they replied you haven't got one.  They were going to open me back up to look but changed there minds.  My dr is a general surgeon and Gastro.

my worry is that before they scanned to see the GB the GP thought IBS so I have done the diet,  mebiverine, fybrogel peppermint etc and it did not help.  He also ruled out SOD. 

Can anyone offer advice please 

2

I am certainly barely able to read and keep up with the many procedures you have had.  You have gone through so much and for what it's worth, I'd gather up my files and head for a big clinic in another state and start all over.  I sincerely hope there are good answers  and  I  believe some mistakes have been made along the way as well as some of them ignoring you.  It's time to sort this out!

 

3

Hi Sally, 

thanks for the reply I am sorry my post was so long winded.  I am in th UK and parts of the NHS are in disarray here.  I had the GB removed at a private hospital arranged by the GP as the NHS couldn't fit me in.  The advice on leaving was go and have a bacon sandwich and there is no need to change your diet,  I called and called and called the secretary with never a reply!     I have asked to change hospitals but the GP is not willing,  I don't understand why my GB was thickened as well as the ct showing the colon thickened?

thank you for your support Sally x

4

You should ask for a colonoscopy only way to check whole of bowel the flexi one only does a small part 

5

The colour  of your stalls suggests melena. You should see your GP without delay. You can google or search here on patient for melena.

6

Thank you Diane

I will when I see him, tbh I'm so fed up with it! I don't understand why a ct with contrast picks up the lesions and thickening but not the Sigmoidoscopy! I wondered if they were looking in the correct place! Since yesterday I have not been for a bm my tummy is so swollen and tender I cannot eat again! In the rribs it feels like I've got a heavy sharp hot tool wrapped in my ribs. Im at work rocking to try and ease it. I've decided these days unless it's easy to diagnose no ones interested! For instance as soon as any of the Drs see my eyes are black they immediately do a blood clotting test which is always negative and u tell them but they still do that test and do not try and work out another cause..

Sorry for moaning just fed up

7

Hi Tom

Thanks for your advice. I googled it but it states maelena is Black plum colour not black green, I will ask though thank you

8

U moan away hun I've had over 4 years so no how u feel with ur pains and problems x I have vulvar crohns which is rare in this country can only have treatment if I have crohns in my stomach to which they think I have, also have gallbladder problem thickening of the wall so go to see if they are going to remove it but they have just cancelled my app till November x 

9

Wow Diane you are going through it to! Vulvar Crohns ive not heard of sorry! Are they going to test your stomach for Crohns too? I feel so full from my chest to my groin, I wee all the time when its like this need to keep an eye on where the WC is lol. My GB us suggested Adenomyomatosis but the surgeon wouldn't refer me to a Heptobilliary specialist which the U.S. Report stated I needed, I called my GP and head of the practice but NO was the answer. I just wonder if there is a link or not. How do you cope with the pain? I was given gabapentin plus another "pent in'. But they spaced me out to much. I take tramadol now when I can't cope xx