Hi All finally off Antibotics after a month now 5 days into dropping pred from 37.5mg to 30mg feeling face tingles super fatigued slight head pain right side and back & forth from left. Doc wants me to stay on 30 mg for 2 weeks then drop to 25mg could some of these symptoms be withdrawal from pred. Feeling confused on if I'm having a flair up or just going through pred withdrawal anyway whatever it is I'm back on the vouch & not been on it for a while any advice would be of help?
I was on 60 mg pred in June, now I'm on 30 mg. and now every 14 days my dr tapers me down by 5 mg, but the next taper will drop slower from now on. I also have had pain in my eye n face on my right side since I dropped to 30 but I was thinking it was due to less steroids in my system and it doesn't last all day, it's off and on. I have had horrible withdrawal from the beginning. I have tremors ever day, off n on. It sounds like a big drop to me, going from 37.5 to 30mg. Perhaps that was
to much at once. I'm thinking it's just that you have less pred in your system n might be having a flair up. Call your doctor n tell him, he might have you go back to 37.5 for a bit longer. Good luck n feel better,
After being on anti-biotics you have successfully knocked out all the good guys as well as the bad guys. So you need to replace the good guys and you can help this along.
I discovered this to my cost after an operation and being on a whole load of anti-biotics and kept on feeling grim. Finally a Consultant told me that if I could afford it to buy VSL#3 and take it for at least a month. (Not available on our NHS).
I did and it worked. It replaces all the good guys that you really, really need.
I also took a Yeo Valley Pro Biotic Organic Yoghurt which contained L.Acidopolous (you won't get that brand in Oz but perhaps you can find one similar. I keep on taking it as I like yoghurt.
If I have to take an anti-biotic at anytime in the future I will also take either of those again and help replenish the good guys.
It is no good taking it whilst on the anti-biotics - you have to wait till the course is finished.
Hello yes I have been taking probiotic I think it helped but your right I hadn't though of taking anything since finishing antibotics I'll look into getting what youve mentioned thankyou.
Along with the things suggested by Lodger you can consider incorporating into your regular diet a number of other fermented foods, as they all contain helpful microorganisms - like kefir, sauerkraut and similar fermented vegetables, and a few other things. Start small, give your gut time to adapt by only having small helpings to start.
I could not tolerate any of the fermented foods whilst I had the problem.
VSL#3 contains 450 billion good guys in every small packet.
I didn't seem able to eat sauerkraut when I first tried it, but now I think I was eating too much. It was before I was diagnosed but already ill with PMR. There is a producer at our local farmers market now who makes small batches of all sorts of interesting fermented vegetables, including ones containing such goodies as seaweed or turmeric. I really enjoy trying the different things.
Hi, I also have had simlar : I am just finishing my antibiotics and will be taking a pro-biotic tablet to get all the good stuff back.
I went from 40mg to 35 in a month and I am getting pain back, and also my eyes have been sore. I am just hoping it's not GCA coming back. Seeing Dr Wednesday... But I think yes, a lot of what we are feeling is the coming down off the Preds> I hope you feel better :
Hi Again : Are you in Australia? I have been trying to find a group here, I am in Cairns :
( GCA groups in Austrslia (Kingaroy) Qld ) Cheers Dea
Hi I am in Qld 3Hours from Brisbane be good to find a group here in Oz.
I was taking Pro biotics while on antibiotics but stopped when finished antibiotics do you keep taking the probiotic? The ones that where recomended from the pharmacy was SB Floractiv. How long have you had GCA?
Hi Alley, I have sent you a private email Dea
I have GCA disease, was diagnosed in June. I'm confused, what is the antibiotics all about, is this part of a treatment for GCA. How long did it take you to before the GCA was gone?
Hi, the antibiotics are for a chest infection, nothing to do with the PMR or GCA : Sorry, I also just had PMR and GCA since April this year, and it's not gone, and wont be for years I am told. I am on 35mg of Prednisone a day now. This site has great information, it has helped me to understnd it all better, as it can be very scary and a whole new life change for us.
I wish you well....
Hi I was on antibotics for an infection that got into my jaw through my rear tooth which got so bad ended up having surgery to remove 2 rear teeth and be in icu for 24hrs cause of the swelling of my face they think it came from the trial drug i was having monthly infusions. There was nothing wrong with my teeth just keep a close watch out for infections with teeth cause the pain is in the jaw we got confused with it be the Gca or tooth. I spent 8 days in hospital.
Thank you
Wasting your money taking pro biotics when on anti-biotics, the anti-biotic just knocks all the good guys out with the bad guys - they don ot discriminate between good and bad. You wait till you have finished the anti-biotic course and then help your body to get the good guys back.
I had GCA for 5 years, now into 6th year of remission.
The pro biotics works for me I don't get thrush while on them while taking antibiotics. Why do the specialists and chemists highly recommend taking pro biotics I don't know all all I know it works for me?