As a man with Penile LS. I found the information on the site very poor. Plenty on the vulval form (big thumbs up), not much of any use on the penile form (big thumbs down).
Had circumcision but failed to stop spread of LS - also I have another complaint that could lead to cancer - so steroid creams may not be the best option!!
Sex isn't much fun since circumcision, and left worrying about long term problems.
As other people have said - it's a nightmare.
We really do need much more information, particularly for men, and more money put into research.
Hi, I can see why you might feel frustrated as this site tends to draw more woman than men..
I dont know much about treatment for Penile LS, but possibly some of the veterans members on this site might,and therefore be able to offer you some advice.
You say your LS has spread, what creams are you using? May I ask what is your other complaint that could lead to cancer? is it somehow connected to LS.
I would have thought sex after circumcision should be fine, is the LS interfering with that do you think?
Anyway, welcome to the group, sorry you had to join us here, but this is a good place to vent and share worries, and fears too.
Katie
Hi there, guy. I feel for you. I know it's even more rare for men that women. It's so essential to have an anonymous forum where sufferers can feel comfortable talking openly about something so hidden and scary. We always welcome men here, but so few have ventured in.
We did have two or three men on here a few months ago. I think the real problem is that Lichen Sclerosus is nested under 'Women's Health' in 'Discussion Forums'.
You can certainly start a 'Men with Lichen Sclerosus' discussion here and monitor it closely to be sure newbies are welcomed. Google will direct them to it with a title so clear. It's all about making newbies feel comfortable so you have a critical mass of participants.
Alternatively, If you approach Alan, our intredpid moderator (he posted the pinned topic, "New to LS – start here" – you can message him by clicking the envelope under his avatar), I suspect he'd be more than willing to start a whole forum for men's LS. I imagine only the bravest of men would venture among all of us yakking about our undercarriages. Men and women have some things in common like doctor experiences and meds, but we often get very explicit about what's going on where.
Hi,
The original post was from 2009 and I think the user probably meant our information on LS in the content on patient.info which would have been addressed.
The LS group is nested under Women's Health as it is more common in women but it does also appear under Skin and Nails category. I have also now added it to the Men's Health category. I won't create a new group for LS in men as we are trying to not have too many groups in order to make the froums easier to navigate. As stated above if any men do wish to start a discussion about male LS then using a title as suggested by Morrell is the way to do it.
Regards,
Alan