I have reached a point where I m crying myself to sleep. my symptoms are literally making me cry. after lunch today I felt like food was stuck in the food pipe and gas was trapped. I have been burping so much today . my anxiety is over the roof and I m having some very dark thoughts. I am tired of having to fight this everyday of my life. having to look at food and think it might hurt me.😞 failing to socialize to avoid trigger foods and beverages. I was really hoping that I would manage this.
Do you use tabacco?
Don't give up hope. Keep searching for a doctor who will help you. Keep telling yourself it is only "temporary". Your anxiety around it can make it worse. Bless you.
I feel for you I really do, I was having a lot of pain from my hiatus hernia and decided to change my diet completely I lost a stone in weight and after going to the doctors was put on 40 mgs of omeprazole per day this was back in October 2018 I gradually introduced different foods and now I can honestly say I have had one flare up since then (It was a cheese and onion sandwich never again)the pain was horrific but can say Ive never had another flare up I know everyone's different but a lot of trial and error helped me, I sincerely hope that things get better for you take care xx
There are many things to try - apple cider vinegar, going gluten free, dairy free, etc Have you been tested for food allergies/intolerances? Do you know what is causing the GERD? I have gallstones and I think that contributed to my issues. Find a doctor who is willing to help. Taking Omesrapole long term isn't good I have an ulcer and was told it could improve but may cause issues with swallowing I think you need to get it checked.
my first two replies were deleted can't think why. I was not promoting a Book I was genuinely trying to help
my first two replies were deleted can't think why. I was not promoting a Book I was genuinely trying to help
hi, your story sounds all to familiar to me. my advice is to get a good gastrointenial physican. he can direct you in the right direction. if you are not on medications AFTER SEVERAL TESTS SHOULD BE DONE. example: gastric emptying, PH TESTING, i suffered for a long time, meds helped for a while but stopped. you also have to watch what you eat. small frequent meals, no heavy spices, gravies, red sauce, liquior, fats. do not eat late, no chocolate etc. finally after it got unbearable i found a THORASIC SURGERN THAT COULD HELP ME. i had a certain surgery for severe gerd that was a lifesaver. please keep in touch, anything i can help you with i will. good luck
hi christelle i have been following this forum for a long time and i have also suffered with all your symptons . i am free from all the symptoms . i weaned myself off the ppi s. I think that in my case the ppis stripped all of the acid from my stomach and symptoms are very similar to having too much acid or too little . It has taken about 4months and lots of gaviscon when having the heartburn ect . But persevered with it all and also drank kefir .(a liquid yogurt) I have mentioned all this before . i still very much watch what i eat and drink but all that is getting easier . It takes a bit of courage coming of the meds and you really need to take it slowly. I was diagnosed with a hiatus hernia gerd and lbs in jan 2018 . so like you have suffered a great deal too .Also affected my social life . please ask me if you need more info . best regards
I am interested in the weaning off process. I tried it several years ago and was not successful. I experienced a metal taste in my mouth for several weeks even after going back on the ppi's. My doctor said due to hiatus hernia I will need meds for the rest of my life.
Even with meds, I have to watch carefully what I eat. Did you experience the metallic taste thing?
hi Adrea35 yes i did have a metalic taste and brash and a cough too The metalic taste ect is the acid coming up . And yes doctors told me i will have to take meds for ever. I have googled about long term side efffects . PPIs strip you of all the good things your body needs . I forgot to mention that i am taking 20million probiotics and i am sure that they helped me when coming of meds read about what they do . Ihave been taking them for nine month and still do . with my hiatus hernia l found bending over would set it off so i have giving up pilates and gardening . But things have settled down and have started light gardening . Occational i take a gaviscon . im able to eat more at meals times but still sit up straight after food . It has taken about four month to wean off meds . Just start very gradually like 5days normal dose then a day a lower dose keep alternating . you get a bit of rebound affect but stick it out . it just takes too long to write all this but its trial and error . But of course do all the right thing like eating and drinking as i still stick to all that . Hope this is helpfull let ne know if you beed more specific info . take care
no I dont
thanks Andrea.
thanks Janis. I will keep pushing until I get a doctor that is willing to get to the bottoming this. struggling with my diet as I am a stress eater. I pray I manage this whole thing soon .
thanks fanbrew . do u mind sharing what you excluded from your diet?
contact me anytime
hi my diet is very simple perhaps a little boring . No processed foods , no hard cheese just cream cheese not any rich fatty food or sauces , i can get away with a little bit of onion in a casserole. No hot spices . Eggs done any ways . Im fine with a little butter, milk ,but no cream . No tomatoe based sauces but now i am able to cope occosionally as i have no more symptons of heart burn ect . But very small portions and eat something every 3to4 hours . But that has now improved i can eat more normal . Sit up straight for at least two hours after a main meal useally evenings . if possible a long walk after a meal is best . So chicken any fish and not too much red meats . Drinkin kefir (a drinking yogurt) before bed also the probiotics 20 billion friendly bacteria one in the morning with food .I havent given up my 2 cups of coffee a day as that didnt affect me . No alcohol and fizzy drinks just camomile tea and lots of water . no acidic fruits . Hope this helps . It trial and error , but i do think that its the probiotics that helped me . PPIs strip your gut of acid , not enough acids can give same symptoms . Coming of them isnt easy and if you do come of them gradually and get symptons after stopping just take one for a few days then try again you will find that you can go longer and longer without them ,thats why it took me me four months but taking gaviscon in between helps . So sorry that this is so long but im trying to explain how it worked for me . Hope this will help everybody who reads this and give you hope that you will find relieve from this painful condition Just believe in yourself and have courage . Take care
Thank you franbrew. It is hopeful to hear you have weaned off of the ppi's. I failed the first time but I am going to try it again. The metallic taste really got me. I also noticed I had to be very careful with my diet. I regret the day I ever took a ppi. Now it almost seems like I don't have enough stomach acid to break food down. I am a teacher and have gotten the stomach flu six times this year. The children seem to get over it in two days but it lingers with me for 2 weeks. I think this is partially due to my stomach ph which can't rid my body of the virus.
Thanks for sharing your experience and happy for your success! It is a big deal! I am hopeful knowing it can be done!
youre welcome .Do try taking probiotics 20billion friendly bacteria about two weeks before you start coming of ppis . They will balance your gut out and help with youre immunity .If you google and read up about them it will make sense why you should take them. And you are right about not having enough acid to break down the food you eat ,lack of stomach acid can cause a lot of our symptoms . Take care and if you need any more info or support i will try and help you.
sorry andrea my message to you i sent to cristelle by mistake but i know it can be read by all .