I have spent a couple of years and thousands of dollars trying to figure out what is wrong with me. This site has helped me understand and self diagnose that I seem to have Menieres. Has anyone else been passed around ENTS, GPs, dentists, neurologists and never gotten a diagnosis? What had been your best resource for help? And yes, I've had MRI's, CAT scans, and complete audiology work up. Many people mention medications, but I can't even get a diagnosis. The biggest mistake was getting cranial chiropractic treatments that increased the vertigo. Wondering if anyone has had this happen. I just want a treatment plan and to live life again.
Hi Betsy,
I myself am also waiting on a diagnosis that to me and my GP point to Meniers disease.
But so far I been sent neurologist had the CT Scan blood work and other tests so now they are finally sending me to an ENT.
But I basically had to put the symptoms together myself just as you have and mentioned to my GP I think it may be Meniers Disease and she said she's thinking the same thing also so we'll see soon I hope!!
The only thing that confuses me is with Meniers it say the dizziness only lasts upto 24 hrs and I've had it an the disequilibrium for over a month.
I've had these symptoms 5 years ago and they said it was BPPV and that lasted about 3 months.
So I don't know. How long have you had the symptoms??
Please let me know what you find out and I'll do the same. Good luck!! Sue. =)
In my experience it's hard to say or the doctors try ruling out md first rather than just label someone with it but after all you have been through I would at least have thought they would have tried a diuretic for you ear or something.
Nine started with a whooshing sound in my ear. Different than ringing and I lost some low frequencies in rhat ear which is typical of mennieres Then maybe 6 months later I had two episodes of vertigo two weeks apart. After that just fullness and noise in the affected ear now for four years.
Do you have vertigo? Hearing loss? Constant noise in ear? Good luck. There are many things that emulate md
Had long did your vertigo last???
I've had sharp ear pain, mainly I one ear, for 4 years. It is usually relieved with ibuprofen, but that means taking it every day 2-3 times. I have fullness of ears also everyday, both ears for 4 years. For most of that time I was being treated for TMJ dysfunction. Then I started reading about the symptoms of Menieres and realized, yes, I've had the vertigo attacks but only 4 in 4 years. I'm lucky in that respect. My Adiology test, which lasted over 4 hours only indicated I had weakness in one ear. I was referred to vestibular therapy. When they couldn't get any problems to reproduce, they dismissed me. The most recent ENT I went to said allergies. But he also said just because the test with the audiologist didn't show Menieres didn't mean I don't have it, I just wasn't having an episode during the test. I do get occasional ringing in one ear. Then I started reading about Menieres, and starting putting the symptoms together myself. As I mentioned, I went to a chiropractor who did some cranial work on me and now for almost 3 weeks, I get naseaus, dizzy, much more bothered by certain sounds, crowds, stores which all can make me feel fuzzy headed and unstable. Most of you reading this will know exactly the feeling. But the hardest part is not having a dr to work with, because so far, I'm the one that has put this all together. I can't afford to go to any more dr's, running this down, filling out yet more paperwork of everything I've tried, until I go to the right one. Of course my husband is patient, but tired of hearing me talk about it, and I'm getting more and more depressed and frustrated. Sorry for giving you this long history, but don't we all have one.
My initial vertigo was got dizzy nausea vomiting and about two hours later each time I felt fine other than feeling worn out and my hearing actually improved only to have the noise return after a few days or weeks.
This sounds like the initial symptoms I had before I had some serious hearing loss in my right ear. It is not easy to diagnose without the typical hearing loss, evidently. The best thing that happened was finding an ENT who was experienced in MD and knew what was going on. I know it is frustrating not having an answer, but there are many things that can cause these symptoms early on. Make what ever adjustments you need and get back to enjoying life. You can't let this consume you, you may be in for the long haul. Be patient and find your joy again.
That's very nice encouragement Donna, as I do feel sort of stalled in my life trying to figure this out.
I am getting on up in years and one of the things I have learned is that you can miss out on life if you are always worrying about the bumps in the road. Hang in there.