Sorry if my format is terrible. I am doing this from my phone. Information about me. Age: 26 (issues started at 22 going on 23) Sex: female Race: mix- Caucasian and Native American Height; 5'6" and 1/4 Weight: 116.2lbs Location: US. NE and SE states Current conditions: scalp psoriasis, internal external hemorrhoids, calcified cyst on left ovary, hemangioma (liver) and focular nodular hyperplasia (liver), gallbladder removed Hi everyone, just over three years ago my first symptoms were randomly vomiting for no apparent reason. I wouldn't feel nauseous or have any warning. I would literally just puke. The first primary care physician I saw thought it was gastritis (spring 2017), and put me on some antiacid (I can't remember the name now), that didn't work. Some time went on and I ended up experiencing abdominal pain and bloating. The food I would vomit up would be partially digested. The second Primary care physician I saw had me do a bunch of tests, and some found that I had fibroids in my right ovary and a calcified cyst on my left ovary. But ended up referring me to a GI specialist who misdiagnosed me as celiac/gluten intolerant. An upper endoscopy (April 2019) found acute gastritis and general inflammation of my intestines.I also had a colonoscopy (November 2018) that showed internal and external hemorrhoids. In the beginning of 2019 I was experiencing acholic stools intermittently, which were just addressed as malabsorption. By September of 2019 I had lost a ton of weight, I was 141.2lbs in December of 2018 and dropped down to 125. It was chalked up to my diet restrictions (I was gluten free and dairy free all of 2019). But blood work showed severely low folate serum and B12. So I was put on injections. The first and second primary care physician along with the GI specialist were located in the state where I attend university. I'm December of 2019 I returned to my home state for the holidays and ended up needing to be hospitalized. At this point I was 118 pounds. It was discovered that my gallbladder was full of stones and a HIDA scan showed that my gallbladder was not filling properly. So I was put into emergency surgery to get my gallbladder removed. The primary care physician in my home state did tell me that it might take a minute to bounce back after surgery due to being so malnurished. By March 2020, I was feeling myself again. I could eat without puking, stuck to a low fat diet, took up yoga as an activity to get my strength back. I ended up putting on weight, I was up to 127lbs. My stools were healthy. Everything was great. Then in April 2020, I felt like my body hit a brick wall. I had a week of diarrhea and my stools throughout that week changed color. They became acholic again. Then a couple of weeks later the vomiting returned, coupled with abdominal pain on my upper left side, and I have pain on my right side when laying on it. I contacted the primary care physician in my home state and returned home for the summer for further tests. So far what has been found is that I have a hemangioma (1.5cm) and a focal nodular hyperplasia (1.2cm) on my liver. But my blood tests, ultrasounds, MRIs, upper endoscopy (I had last week), all come back "normal". My pancreas appears okay. However the two masses on my liver were not recorded during my hospital stay in December of 2019. It was recently discovered that I have low vitamin k and I'm on a prescription for that (day 2 of taking it). I've lost all of the weight I put on, and I'm struggling to keep weight on. My current symptoms are: Pain in left upper abdomen within 15-30 minutes of eating. Pain on my right side when laying on it, or doing certain yoga poses (haven't done yoga since May though). Sometimes pain will radiate to my upper mid-back. Intermittent acholic stools, when stools look normal brown they are fuzzy and pineconey in texture, sometimes it can be "stringy". Extreme exhaustion. Constant nausea Vomiting up food undigested. I've noticed I have a harder time with meat, veggies, and some fruits. I seem to tolerate carbs better. Low vitamin K. I have some beau's lines on some of my fingers and toes but I think it may be connected to my psoriasis. I drink alcohol on special occasions, I'm a former smoker and I have been using a vape/ecig since 2013. My current nicotine level is .3%. Please help, this has been exhausting, and I don't know what to do. Because of COVID-19 it is extremely difficult to see my primary care physician and specialists regularly. I'm personally getting frustrated with my body and losing hope with what's going on when these tests come back "normal" in general.
have the doctors considered cyclic vomiting syndrome?