As I mentioned in my post a couple of days ago, I was dreading seeing my GP today.
ve just come back - No Rheumatology referral YET - But she is not ruling it out. I felt more empowered this morning and was determined to be heard. I gave her a list of my symptoms, and asked loads of questions.
She has agreed to write to the neurologist to bring my appointment for september forward. She also stated, that because I'm under so many specialists, (Menopause/Endocrinolgy/Neurology/Gastro) it would be better for me at this stage to rule out other causes before she refers me, to another specialist
I'm ok with that, it makes sense at the moment. We will know more after the MRI and muscle tests results come back. I was brave and mentioned my suspicions about Fibro and she didn't scoff or roll her eyes. She actually listened to me today (I was her first patient this morning, so I took full advantage of that). She did say she would refer me to a rhuematologist IF everything else is ruled out. So like most people on here I have a bit of a wait - the appointment went better than I had anticipated and that's made me feel better.
This forum has been a great source of support for me.
Whatever the outcome, Thank you all for being there and giving me the courage to keep going.
We'll done to you ela, it's great to empower yourself, makes you feel like you have accomplished something today...that sooo must make you feel good and less stressed ..and that can only help..keep up the good work, sometimes we just have to take our health into our own hands..especially being as informed as we can..must make dr's think..mm ..well she sounds like she knows what she's talking about...great to hear she hasn't ruled out your Fibro suggestion and will refer you on to a Rhumo..after all tests come back...well done ...give yourself a gentle hug..be blessed, have a lovely day........:-) xx
Hi ela I am so pleased for you that your drs appointment went so well. Drs like to rule out all other courses before they refer you to rheumatologist. The reumatologist Is the person that normally diagnoses fibro. It took me 10 years of different tests and seeing different specialists before I finally got my diagnoses. What ever the out come is for you, I wish you all the very best, Its nice to know that us ladies have been able to give you some support. Take care
Hi just out of interest has anybody had abnormal blood results with fibro,
I have been diagnosed with this only recenlty after many many years of suffering but the rheumolotolgist is sending me for more tests, ie bone scan, stomach scan, chest xray, more bloods as my blood levesl are not consisted with fibro, my white blood cells are high, raised crp and inflammatory levels,
I am also diabetic and suffer with skin abcessess which they have put a lot down to but still the investigations go on and on,
Hi lindsey the rheumatologist sent me for blood test bone scan and also did the pressure point test on certain areas of the body. their are 18 in total. my bloods showed I was low in vitamin d so my gp prescribed vitamin d tablets which brought the level back up. Buts thats the only blood test I had that didnt come back normal.
I've had Fibo now and other autoimmune issues for 25 years or so now....diagnosed that is...sick long time befire diagnosis though..about 10 years at least..but never have I had anything come up on blood tests..not to say that it's the same for everyone...though..I also glad full body bone scan...just showed up where I had arthritis..which my doc was aware off..but the Rhumotologist did the 18 point check...plus corrallating all my symptoms over the years then he diagnosed me..my experience here, not at all everyone else's.we are all soooo very different....hope it has helped Lindsey..be blessed..have a lovely day..:-) xx
Thank you for your reply. I have been low on vit d and iron and been on tablets for a while for both of them, but this is relentless test after test just wondering if any body had the problems with the blood.
Out of interest only just had the bone scan this week so not got results until September, did anything come back on yours.
Hi lynsey the mri scans I had showed that I had arthritus in my neck back spine. All the tesst I had over the 10 years came back normal I saw many specialists and loads loads of tests done before I was finally diagnosed in 2014.
Hopefully it will be fine, but been back and for to hemotolgist, and no got to see an encronoligst wasnt even show what that was, but not till November, just feel im back and forth all the time but nothing is ever resolved.
Sorry moan over.
Glad i have found this group i have learnt a lot from this
you can moan all you want, I got sick of seeing specialists and having tests done it all coming back normal I was so desperate for an answear. I thought I was loosing the plot at 1 point. in the end I told my gp that I had, had enough couldnt take no more so she then refered me to the rheumatologist thats when I got my diagnoses. all you want is a simple answear getting 1 is easier said than done. dont give up hope the day will come when you get it. youve got us ladies for support
You made your doctor listen. She all gave you a wise answer, in saying to wait and see the outcomes from all the other specialists, as it will get rather confusing.
One step at a time and one day at a time.
Take care and do keep us posted. We are all here for you on this forum. Even if you are having a down day, please docome and share with us all. xx
I'm so glad things went well for you today. I think part of the battle is just trying to get someone in the medical arena to listen and take our concerns realistically. So many of us have been dismissed for so long it's now wonder we begin to doubt ourselves and what out bodies are capable of.
Best of luck with it all and remember there are plenty of us on here for support if and when you need it.
It is good if you can keep a positive attitude, as it helps us to cope. what doesnt help if theirs negative people around you sometimes their not easy to get away from but trying to stay strong is the key. but easier said than done some days especially if you have other problems going on in your life. but battle on we must this forum and you ladies are a god send take care gentle hugs
