I had this operation done on friday it was the most dreadful experience ever still yet I have severe back and groin pain it just wont go away anyway had a lot of polyps burnt off and sent off for pathology and histology. I still think my pain is due to my fibroids and ovarian cysts so why the hell am i being sent from a gynae to a gastroenterologist ive had enough of living in constant pain I cannot lay down therefore I never get any sleep......when i went to the doctor a month ago about this pain ive had since january he said i quote "what do you want me to do about it" in a very angry tone....i left very upset but did complain....now yet again my doctors are on the front page of our local newspaper with a girl saying they ruined her life they have a very bad history and no other doctors are taking on new patients the girl in the newspaper has been chucked off her doctors list for complaining! The doctor I saw was very moody seemed angry with me for having a private scan and when i asked if I could have a hysterectomy (as if anyone would want such an awful operation by choice) he laughed at me! What to do where to go I just want to know what is causing this severe lower back pain travelling around my waist into my groin area i have read on google that it can be caused by cysts or fibroids the cysts pressing on nerves that would explain why its most severe when i lay down for a while i wake up at least every hour all night long yet nobody can find out whats wrong with me im starting to give up on life as living with this pain is unbearable........helpppppp x
I totally understand Melissa. Frustrating when you are treated like an idiot and not listened to. I get it. It's awful !
I too have been ill and in pain since January. Had 7 hospital admissions since March. Had CT scans, ultrasounds, MRI scan and blood tests... All they found were cysts cropping up mainly on the right side and I also have small multiple fibroids the largest being 12mm ... So small. They consultants do not believe the fibroids or the cysts have been responsible for me becoming ill and in severe pain. Currently according to a MRI scan I have no cysts as I have been put on microcynon pill to try and control my cycle.
To cut a long story short I had a laparoscopy done in May by a gyne surgeon who said my pelvis looked fine as did my ovaries and all he could find was adhesions scar tissue all over my appendix and right side. This has hinted at a problem appendix... So therefore he has referred me to a general surgeon with regards to having the appendix taken out. They think possibly I had an appendicitis and now the appendix could be dodgy. I'm having it removed Friday and scared to death as its yet another laparoscopy !!
When it all started I had severe right sided pain low down also in my side going round into my back. Pain also bladder n frequency and pain almost groin/vagina area. Felt like it could have been cysts causing it but they were not sure. Now it's possible that the appendix has caused it all !! They'll know more once it out and they do tests.
As I say fibroids are small so they think
Not causing me the overall pain.
Not sure if this helps at all but maybe just maybe get your appendix checked out...
Caroline X
Hiya Caroline x
I have been up A&E too many times to count even morphine two viles of it didnt work and a paracetamol drip didnt work on the pain i have no idea whats going on they took my blood as you i suspected appendicitis however they said my blood showed that i didnt have that however when i saw the consultant in a room with my witness a friend the consultant said my bloods came back fine....but he hadnt even read them yet!!! I said to him well i can see on the computer im red flagged and you havent read my results yet! He then looked at them he didnt seem to know much I had to point out my white blood cell count was high as it always has been for the last two years......he then sent me down to a very rude junior gynae who said to me what are you doing here you should have gone to your doctors when i went to my doctors he said what are you doing here you should be in hospital i cant win i cant do right for doing wrong......i truly give up this pain in my back is like as if its in my kidneys however they reckon (dont trust what they reckon) nothing wrong with my kidneys but their levels of blood tests and my levels or rather googles levels dont match up they allow far higher scores on the bloods than recommended therefore i no longer trust doctors especially GPs they are absolutely stupid one doctor called me ODD for having a high white blood cell count.....i have swelling just below where my appendix is but they said I would be dead by now if it were my appendix.......i dont know i really give up.....im not surprised you are frightened and its also a myth you dont need your appendix its actually vital you keep it unless it really is so inflamed or about to burst as you can actually die from this....they reckon if you have appendicitis you would be on the floor in pain well i have been on the floor in pain i have had gas and air via paramedic ive sat up A&E many times and still nothing same as you since about January but i also went to the doctor who called me ODD last year saying i feel my spine is going to snap in half when i lay down she said i can assure you your spine cannot snap in half.....gosh where to go from here seems like im gona be left this way however after my colonoscopy on friday im sitting here waiting for 3 weeks to find out if i have cancer 3 bloody weeks!!!.....I feel for you hun I would defo make sure they got it right because they seem to love taking out appendix for no sure reason I hope you are ok and try not to worry i know a lot of people who have had this done no problem or hardly any pain at all after are you having keyhole surgery? x p.s. thanks for your reply much appreciated
Hi Melissa
A problem appendix be it appendicitis or a chronic grumbling appendix, it doesn't have to show up on scans nor in blood tests for you to have a problem, honestly ...my surgeon has already told me that.
The only time in all my times in hospital since March... The only time my bloods came up with something was the once, where my WBC count was raised and I also had high temperatures in the hospital. All the other times nothing else has appeared in my blood tests and nothing has shown on the scans.
My appendix has quite obviously been a problem because it was covered in scar tissue... So that means it's been trying to heal itself. I keep getting the pains, had them again yesterday ...and it almost feels like it's flaring up.
You do not have to be dead on the floor to be having a problem with your appendix !!
They can tell by removing it via laparoscopy.. Yes I'm having keyhole ....so they know once it's out by looking at it and by then doing histology tests on it. It shows if it's inflammed or an issue on the tests they do on it.
I fought and fought with the doctors as in March in hospital I was in a lot of pain and they assumed I had a kidney infection... Wrong !!!
Then I was under the gyne dept who then said it could be cysts etc ,,, then was told under no circumstances would cysts cause that pain.
Now I've had the laparoscopy at least I know the findings and they were adhesions right side abdom wall n smothering my appendix ... This is why they feel it could be my appendix causing my pain etc. It all ties in really.. Right sided pain.. Sometimes stabbing ... Bloating... Pressure in lower pelvis.... Bladder pain if it flares.
The surgeon told me if your appendix isn't happy then it can cause symptoms and pain in nearby areas .. Such as bowel and bladder, rectum and back.
I've learnt a lot over the last few months and it has been lonely and depressing and highly stressful. Not actually knowing what's wrong with you.
So appendix only has been flagged because of the lap I had done in May where he could actually see inside.
All scans etc haven't shown a problem !!
X
omg Caroline x huni you have really made me think now...i didnt realise this didnt show up and they basically lied to me saying i would be dead by now! Stupid comment to me they are idiots I even told the gastro why is my groin swollen i found it in the shower when washing myself its still there now......im so bloated i look like im about 8 months pregnant......you have left me wondering now there is no definite test for appendicitis or inflammed appendix? Gosh this is a shock to me if I find out all this time i have been through all this to only find out its my appendix which will take them another 4 years to work out coz they all seem a bit thick i will go crazy about it .......I cant believe what you just told me perhaps this is what is causing my pain yes right sided stabbing pain constantly bladder problems i.e. bladder weakness having to wee every five minutes driving me insane no infection in bladder according to them but who knows they cant even read a blood test i also have a high white blood cell count my doctor once rung me to tell me this and he seemed worried about it.....the other doctor said im ODD for having a high white blood cell count....ODD? lol....are they serious........the stupid paramedic told me if i had this like i said earlier i would be on the floor almost dead but as I have just read from your comment that is not necessarily true what the hell is wrong with these doctors.....i wont go up A&E any more they just give me morphine a blood test then send me home on a bus to walk another mile down a hill with great difficulty....I hope you get better soon and hope your op goes well im glad to hear its keyhole so your recovery will be quicker you poor lady i know exactly what you are going thru and you have alerted this to me so I dont know what to do about this next.......im thinking now it is my appendix coz of the constant pain and where you describe your pain is like mine.......they never even bothered to scan my appendix they seemed to not know what they were doing im getting past from pillar to post here after that awful colonoscopy on friday im so angry if this turns out to be my appendix i will freak out if thats my diagnosis finally I cant lay down I cant sleep and my doctor said to me when i asked him for sleeping tablets (i never take prescription drugs in fact i usually refuse them) he said sleeping tablets dont help you sleep......what? Say that again doctor moody lol.....he was such a terrible awful angry doctor I made a complaint on their website horrible man how dare he say to me after i told him of my pain and how its so unbearable because its constant i never get any relief from it "what do you want me to do about it"........in shock still they dont care and now im watching the news and apparently doctors GPs are being told not to refer anyone for basically bugger all any more so no wonder im sitting here in agony yet again......i dread laying down tonight after all these months same old same old I can only sleep on my sofa for a while my bed is too soft....so appendix does cause lower right back pain they said it wouldnt they are stupid ive had enough of the lot of them...good luck with your op dont be worried its a very common op and you can guarantee whoever is doing this has done it thousands of times before they could probably do it with their eyes shut good luck huni and thanks for your feedback you got me thinking now x
P.s. I also have a constant fever ive been to the doctors about it they gave me a menopause test lol came back negative i wake up sweating in the night pouring off me the sweat is my pillows are soaked unfortunately my thermometer has run out of battery so i must get another one tomoz to see how high it is good lucky girly x
Hi Melissa
You must have it looked into and really you should have laparoscopy.
I too had/have sweating n fevers in the night.. They tried treating me for menopsuse and I'm not even menopausal... Tests r negative !
The bladder issues started when it all kicked off in January. No infection. Just wanting to pee more and pressure on the bladder. I've had a cystoscopy to check the bladder... All normal !!
I have learnt lots about the appendix and in a chronic form how it behaves.
You also get the bloating. I get this also plus bowel pain and gas pain.
When it all started back in January I looked pregnant. My tummy was almost hard and my appetite was shot. I felt nauseous and fevered. Bladder issues there most of the time.
This really does sound very similar to my case I must say
X
Sorry for late reply somehow i signed myself out and forgot my password as havent been on here for so long......im looking into it and im starting to think this is it some stories on google did frighten me coz people just thought the pain would go and ignored it then ended up nearly dead........how can they not know about this pain and why ive got it and just dismiss appendix? They must see this all the time in fact im sitting here sweating now i feel so hot its like im being microwaved my stomach just became massive and if you feel it its a solid mass not fat at all....where did my six pack go? lol........I feel nauseas some days I suggested appendix to A&E and like I said they all said I would be dead but like you said in your earlier post it doesnt mean that at all.....if ive been living in all this pain all this time and they see this every single day but cant work it out then im very angry about it tbh thank you and i wish you luck for friday x Let me know how you get on x
Hi darlings, hi Caroline!
May I just say, weigh in from my experience only, (Caroline knows what is coming ;-) ):
that I rather have an appendix out than in,
if there is the smallest risk it could cause the pain (and be not disappointed, if it wasn't).
In contrary to ovaries, the appendix with its maybe lympocyte/immunesystem-help is everywhere else enough throughout the guts, the cecum - where the appendix attaches- is full with mucosal lymphatic tissue -, that the appendix might have sitting in it. There is back-up for an appendix. (I am pretty sure the appendix will disappear within 1000yrs in humans anyway. Appendix is like wings of the ostrich and the eyes of blind fish living in the darkness. Purely evolutionary rest in my eyes. Hugely discussed in other eyes. But since people live to very old age without appendix...I would not hang my heart on it.)
My daughter has her appendix out, the pain continues and yet I am GRATEFUL it is out (without a stump left, please have no stump left) to be sure, it cannot be the appendix, that might rupture at a point when she is actually rolled up in a ball on the floor.....
The appendix is often macroscopically (that's what the surgeon will tell you how it looked like) ok but microscopically not!
The appendix is often microscopically (histologically) normal and still 11% of those people feel BETTER after removal when they had appendicitis like pain.
Appendectomy is usually state of the art, when either white blood cell count is clearly raised and/or CRP plus the fitting symptoms.
It might not be the answer, but having those pains, it is one thing less to consider, one thing less to worry about, when it is taken out.
Yes, during an acute appendicitis with rupture one can die from it, of course, you would be dead,
but no one dies during a chronic grumbling appendicitis. The literature is full of it.
For me under the line: if pain could relate to appendix problems (and where the pain sits, depends in which direction your appendix points! It's not always classical right illiac fossa pain with this. Rebound tenderness, Rovsing's sign....there should be many clinical assessments done).
Also during diagnostic lap and appendectomy other issues could be seen.
(also benefit: never ever will you get an acute appendicitis during travel. When signing up for 3rd world country work, it was actually highly recommended, to have an appendectomy done prior starting work and flying off. Yes, really, just to exclude that life threatening risk of developing an appendicitis with rupture in a country, where you could die of it due to no surgery close by)
Wishing you all the best!
It's so, so frustrating
and Melissa, is there a different hospital you could go to?
Do you have print outs of your blood and imaging results?
You are entitled to have them. Hospitals usually send them to your GP and you can pick them up there.
It's ok Melissa. Hi again.
You need to get this checked out ASAP. Let me know how you go.
I'm nervous as hell about tomorrow but putting a brave face on. Just woken up and the nagging pain is there on the right and I'm boiling hot... Like you, it all just ends up driving u mad !!
Oh .. And listen to Sanya too. She has been a great friend and support to me on here over the last few months and she knows all about my story. A wonderful lady ..very helpful
Take care lovely and let me know. Keep your fingers crossed for me X
Hi Sanya...
I'll update you from hospital bed ...Lol 😆
Of course I'm dreading this but getting on with it.
Thank you for your continued support and help...
X
xxxxxxxxxoooooooxxxxxxxx
Thinking of you and soooo happy the little worm is getting out.
I hope so for you, that this 2nd lap will improve symptoms for you.
Wish you a good sleep and hassle free recovery!!!
I love this forum, too!
I rather should go and cook dinner though now. Byebye, oh sorry, should not talk of food probably. ;-)
All the best ladies!
We marked the one year anniversary just yesterday when emesis, abdominal pain, headaches started intermittent.....
next year at this day I would love it to be just a bad memory.
I guess I shall only know by having it removed. It probably is too risky leaving it in, especially that this week the pains have been flaring again.
I just need to toughen up abit, just scared that's all..
Thanks again Sanya and I'll be in touch and I truly hope you start to get somewhere with your daughter, It seems to be such a struggle... we keep saying the word 'frustrating'... its just awful, nothing worse than fighting to get help and answers.
Health is just so important, its number one !!
Catch you very soon.. I hope keep your fingers crossed for me.
XXX
and toes!
Hiya sanya pleased to meet you its taken me ages to get back on here dont know if its my pc or my connection anyways thank you so much for all your information im now convinced this is my appendix I would have thought they would recognise these symptoms but i suppose im a confusing case due to my ovarian cysts fibroids and toilet habits plus my sweats I think they are baffled so they decided to put me through this awful colonoscopy and want to do it again yes they did find polyps but i vaguely remember the surgeon saying they wouldnt be causing this pain im in thats about it! I asked him loads of questions whilst he was operating on me but he ignored me! Im still none the wiser and I have been to my GP about this intense pain for so long now I think they are sick of the sight of me.......ive woken up today after not sleeping properly all night again with such awful lower right back pain and it seems to be in my spine too radiating into my side and groin area.....my daughter is 20 and i said to her id rather give birth to her the size she is now than go through this every night I just want to cry because all I want to do I be pain free and know what is actually wrong with me but like I said whenever I mention my appendix their answer to me is I would be dead but as you have said in your comment that isnt true unless it burst.....im wondering if I have the same as caroline as we have the same symptoms. Ive really had enough now this has been going on for at least 8 months at first I ignored it like you do but now it has become unbearable I dont know who to turn to I feel like operating on myself lol......thank you for your comment I have read it twice. For me to turn up at a hospital and tell a doctor I think its my appendix they do not like they like to muck you around send you here there and everywhere give you pain relief that doesnt work then discharge you without further investigation Im in bits every day especially when i try to sleep at first I was blaming my mattress then I was blaming my cysts and fibroids then I was blaming my lumbar in my back as I do have degenerative disc disease im going round in circles here I just feel like giving up.......Ive woken up today and could hardly move to get up I now sleep on the sofa as its a harder surface than my bed but all night I wake up in excruciating pain. My GP is useless and just doesnt understand what im going through or doesnt care. Thanks for your input I am getting pretty scared as obviously If i do have what caroline has I need it removed asap x
Hiya Caroline I know Im feeling you are right and Sanya too.....why have they missed this obvious common cause of pain fobbing me off saying I would be dead if it was my appendix.
Try not to worry yourself too much Its better out than in lets hope that once its gone you wont be boiling hot (like being microwaved) and in pain any more.....I hope you get the results you need after all you have been through I really understand you are scared please keep us updated as to how you are feeling after your op and let us know you are ok....much love and good luck for tomorrow x
P.s. yes I do have my blood results with my back scan its around here somewhere! My white blood cell count keeps coming back elevated even the doctor rang me asking if i had been ill i said no have i had the flu i said no have i had a chest infection i said no......then i googled elevated white blood cell count and it comes back inflamation infection etc......so why are they ignoring this and calling me ODD!! Worst diagnosis I ever had being called ODD hahahaha my doctors are comedians x
Thank you Melissa. I am now getting very scared... packed a bag and the usual... yes, not sure I'll get much sleep tonight but then to be honest I havent really slept since January when it all started..! I can't get comfy no matter what position I'm in...
I shall update you from the hospital bed and Sanya...plus any news I get from the doctors and my surgeon.
PETRIFIED... but have to be brave and do it..!!!
So strange that you have the same things going on as me.
I believe you will need to have a laparoscopy soonish... and first and foremost a CT scan or MRI, mind you saying that my appendix hasn't shown up on any scan at all... as i've already said, the LAP was the thing that has given a red flag about my appendix...
perhaps you need to go and speak to doctor and see about a scan and about a LAP...?!!!!!
Take care for now Melissa & Sanya. I shall be in touch... Hugs.
XX