I have been on steroids for about 4 years following a diagnosis of polymyalgia. I had wet macular in my right eye at least two years before that and have been having leucentis injections to hold it back until last July when I had a mini stroke. As my sight had seriously deterioated I havn't had any more injections. I was down to 4 mg pred and had a bad flare up, my first, about a month ago and the doctor put my up to 10 mg. However sadly now I believe my macular degeration has started in my good eye (seeing the hospital tomorrow). Does anyone else have the combination of pmr and macular. I feel it may be the rise in the steroids that has triggered it off as its quite a coincidence. Now I probably will have to make the decision to start injections again and risk a stroke to save my sight. Its a hard decision to make. Any information from this group would be appreciated.
I am sorry you are having so many problems. This disease is just God awful. I have severe dry eyes from my Sjogren’s syndrome and I am constantly dealing with a braided Cortney has due to the dryness and reading issues ever since plaque when L I am sorry you are having so many problems. This disease is just God awful. I have severe dry eyes from my Sjogren’s syndrome and I am constantly dealing with a braided Cortney has due to the dryness and reading issues ever since plaque when L affected my retinas by crossing retinal Toxicity I hope you can get some help and relief and I can totally relate to your frustration and how you feel
Sorry you have such a problem with your S’jogren’s and thank you for your kind words. When you have an eye problem you are forever at the eye hospital, wither treatment or checking.