Hard to sleep

nh_user_697824 · April 28, 2015, 4:55pm

Hi does anyone find it hard to sleep I try to lie flat but my breathing start playing up I really don't know how much of this poxy Bronch I can take 😂

nh_user_698425 · April 28, 2015, 5:20pm

I only have trouble when I am in an exacerbation or am on prednisone. Melatonin helps me in both instances. However - when I am in an exacerbation, I have to play around with sleeping positions. Personally, my breathing is better at those times when I sit up perfectly straight, or lay down almost flat on my stomach. I use a pillow lenghtwise under the left side of my body to prop me up just enough so that my face is not planted on the mattress or pillow. This works most of the time. But - there have been times where nothing works except what I call the "baby sleep position". You know the one. Facing downward with knees tucked under chest and butt in tihe air. Not a pretty sight - but works when desperate. cheesygrin

anon53727290 · April 28, 2015, 5:31pm

hi Jayne, thankfully I sleep pretty good most nights, I do'nt know if it's relevant or not but a year or so ago somebody advised me to raise the head end of my bed by 4-6 inches for a good nights sleep.......... seems to work for me! you nailed it in one with poxy bronchy, mine is doing my head in big time.

nh_user_697824 · April 28, 2015, 5:37pm

I haven't even got no meds yet I don't get much phelm so I'm glad for that but it's just my breathing thanks for the tips

nh_user_697824 · April 28, 2015, 5:40pm

Great idea David I just want yo see the specialist now and get my life back to near enough normal .Should here this week . Take care

nh_user_39510 · April 28, 2015, 5:44pm

You say you have no phlegm?? Maybe the phlegm you are not producing is sitting in your lung as it does with bronchi. Until you expel this your breathing will surely suffer. Have a look at the discussions on here as to how to get rid of it. There are also some You Tube videos which may help.

nh_user_697824 · April 28, 2015, 5:48pm

Thank you Mo

anon53727290 · April 28, 2015, 6:33pm

I did not sleep well last night...I had to do my Nebulizing Machine take meds and go back to sleep...I just got up 1:00 in the afternoon..I do not work so it is not a problem..I feel better...Yes sleeping is a big problem of this disease...you lie down you wheeze...

anon53727290 · April 28, 2015, 6:36pm

mo 69 you are right about the phlegm...it stops up the bronicial tubes makes you wheeze....

nh_user_595375 · April 28, 2015, 8:53pm

Drink plenty because it keeps the sputum more liquid.Learn to take deep breaths in and breath out until you cant breathe out any more(you get a rattle )then do some huffs. Having a steam shower sometimes helps.If you have an affected side then lie on that side so that your good lung is uppermost.

anon53727290 · April 28, 2015, 11:01pm

charles it is funny but I find it hard to breath on my left side...I have told my doctor about this and he had no answer...I don't feel so dumb anymore...so glad you said that...

nh_user_595375 · April 29, 2015, 11:56am

I have mine localised to left side so I sleep on that side so that the muck, sputm does not drain into the right side and also I get good ventilation in the good lung.I have sometimes tried to sleep on opposite side but I turn back.I am not as good at doing physio as others on this forum.I think they must be finding it hard.

nh_user_378815 · April 30, 2015, 11:22am

Jayne, you def need a acapella or flutter device. I bought a flutter which Twas hard for me to use so have acapella now and its great. My hospital gave me a deck chair type back rest that is portable and I can put it up in a minute if I can't sleep. I have a great sofa that has hard upright sides so most nights prior to getting the back rest I was sleeping downstairs. TV isn't good in the night!!!!!!!!!!!! All suggestions on here are great. Only a couple of weeks, to see your specialist but start now making a list and make sure he answers all your concerns. I am in UK and I have been given some medication which releases the phlegm. Its really good.

nh_user_697824 · April 30, 2015, 11:27am

Well thank you I will mention it all too him , how much phelm do you get I don't get that much I get pain in my back and chest so I don't really know what's going on .

nh_user_697824 · April 30, 2015, 11:44am

Cc what questions do I really need to ask the specialist I'm so confused could you give me a few tips thanks so much

nh_user_378815 · April 30, 2015, 12:43pm

Oh Jayne, it depends on your symptoms. Are you UK?? You need to say you can't get up the phlelgm and you can't sleep and can you have meds. UK is Carbocistene that brings up phlegm..Ask about an Acapella device to help too. Have you had a CT scan if not see if he will do that to see the extent of your problem. The MOST important is to take a sample of your phlegm preferably from the day of your appointment. You can buy a sterile pot at the chemists/pharmacy. Must be sterile. Then take it with you and ask them to test it. My phlegm production varies, because I have other issues. You must have you phlegm tested often and do not let them give you anti biotics without they test the sputum to ensure you get the correct one for your result. You also need an appointment quite soon after for follow up

nh_user_378815 · April 30, 2015, 12:45pm

I get pain sometimes and its due to an infection normally ie the phlegm isn't moving either. You need a CT scan and a sputum test to see whats going on.

nh_user_697824 · April 30, 2015, 12:47pm

Yes cc I have mild Bronch but I think it's on both lungs hopefully I'll be nearly back to my normal self soon God bless

nh_user_378815 · April 30, 2015, 12:50pm

Mine is both, but worse in one than the other. I am in the North East and go to Freeman Hospital, Newcastle where the help is first class.

nh_user_697824 · April 30, 2015, 12:56pm

I am East Anglia I think I'm going to the new Norfolk & Norwich to see the specialist