As well as having myalgic Encephalomyelitis, I have now got show grins syndrome ( not how it's spelt) and lupus. Has anybody else got these. I have been put on tablets called hydroxychloroquine.
So sorry to hear that. May I ask how old you are and when you first got sick?
Hi Robin. I'm 50 years old. I was diagnosed as having myalgic Encephalomyelitis this year,but I think I've had it all my life,just not so bad. But now I've also been diagnosed with lupus and rheumatoid arthritis. I didn't think you could get both together. But obviously you can.
Also sorry to hear about your added pain. We have a brain inflammatory disease so it makes sense that we have serious inflammatory diseases. I have numerous ones. I have tried numerous medications, supplements, procedures and many surgeries. After 20 years I've learned alot how to deal with chronic health life changing issues. And at times to just be at peace about. That however has taken alot of Grace to accomplish. And never losing my sense of self and purpose. Even though at times I thought I was losing my mind. Hang in there stay strong in spirit sometimes that's all we can do.