Has anyone experienced swollen limbs due to mono/glandular fever?

Ears, nose and throat
1

Hi there, 

I have recently been diagnosed with EBV/ glandular fever or mono as some call it. 

My symptoms started back in April and after months of muscles pain and weakness/fever/joint pain/nausea etc I have finally been diagnosed with EBV/glandular fever.

One of the symptoms I have had since day one has been swollen legs and upper arms. Has anyone experienced this? 

Thanks in advance. 

2

Hi,

I didn’t have this symptom and I don’t remember reading about swollen hands or feet on this forum??

Take care 

3

no … i have never experienced this. many other nasty side effects .

4

hey there/ while i haven’t had noticeably swollen limbs I have had all your other symptoms and continue to have them at 14 months in. You might be having some water retention problems? This virus causes all sorts of weird symptoms and I don’t think at this point any of them are out of the range of normal.

5

hi there, thanks so much for your reply. Yes, something i have learnt having this virus is that the symptoms are random. i was thinking the swelling maybe connected with lymphatic system/drainage.

Do you feel as if you have almost recovered after 14months?

thanks

6

thanku for your reply

7

ok, thanku

8

hi there, thanks so much for your reply. Yes, something i have learnt having this virus is that the symptoms are random. i was thinking the swelling maybe connected with lymphatic system/drainage.

Do you feel as if you have almost recovered after 14months?

thanks

9

yes 14 months is such a long time! have you at least improved ? and are you taking lots of supplements ?

10

yes it could be! also I feel a bit more swollen if I have been in bed for several days. Even just getting up and doing light cleaning or doing a grocery run helps kind a loosen up everything. No I’m not recovered. I’m not anywhere near as sick as I was the first 3 to 5 months but no. I seem to be in a series of recovery and relapses. I’ll tend to have a good week and overdo it and then be sick all over again for a week or two and then the cycle starts all over again. My most recent testing showed that I have reactivated herpes virus 6 as well as high EBV antibodies. I’m going in for an in-depth Lyme disease and coinfection‘s test to see if maybe that’s what I contracted and what triggered the mono and all the viral reactivation. It’s been pretty frustrating and disheartening. But luckily I don’t have brain fog so I can still watch TV and play games and write and read. Unfortunately things that help people – like Epson salt baths and massage and acupuncture - all make me super sick and flared up.

11

hi Lori. i’m not bedridden all the time which is some improvement. I tend to go in waves. I will start to get a little bit better and then try and go see a play or take my daughter to the mall and then completely relapse and I’m back in bed for a couple days and then the process starts all over again. My main struggles are extreme fatigue and muscle weakness, flu like feeling and sometimes IBS. On and off I get shaking and twitching and sometimes numb arms and legs. Also night sweats. I just went in for an iron infusion because my ferritin was low and I might revisit high dose IV vitamin C. I am on supplements – I had a micronutrient test done as well as genetic testing so I’m taking things I’m either deficient in or have shown to have a genetic mutation which causes deficiencies. Right now I’m taking probiotics, glutathione, folate, B 12, vitamin C, vitamin D, L-cystine, Co Q 10, biotin and I am on an antiviral medication called Valtrex.
I tried chinese herbs last month. I was custom-made them from a Chinese herbalist and while they helped raise my blood pressure they also were a little too stimulating for my adrenals. So I took a break from them.

12

Yes, I had all of your symptoms. the edema in my arms and legs was mild. I contributed it to the effects of the virus on the lymphatic
system. It stayed for quite a long time.
The ability to be active also makes the lymphatic system sluggish.
Take good care of yourself. This virus attacks us in many ways.
Prayers, Rhonda

13

thanks so much, what was it that contributed to the symptoms going?

the edema was one of the first symptoms and altho muscle aches/pains have improved the edema is still present.

thank you

14

yes it is such a frustrating condition! its taken since April for my doctors to diagnose the virus!

were you diagnosed early? i have started to see a homeopath as totally lost faith in doctors.

15

We all can speculate on the turning point for symptoms to began to fade. One thing everyone seems to agree on is that they fade and return many times throughout the course of recovery period for each person. Recovery periods seem to vary greatly along with severity of symptoms. I feel that gentle Chiropractic treatments and massages helped…but did not cure. personally I think time , acknowledging and accepting the ups and downs of this virus is the starting point.
I spent thousands of dollars on supplements…they did not help…I really think they prolonged the recovery journey…I do know that everyone is desperate to get well and go back to their pre virus state
state of health.
It will get better. I know that seems like empty words…but they are true.

16

ye s im seeing a homeopath too … ill try anythiing at this point and she swears that she can get me better . may take a few months … however naturally curing somebody takes much longer than drugs .

17

From falling ill to diagnosis it was five weeks. I had a positive mono spot test.

after four months of conventional doctors I completely gave up as well. I have two amazing naturopaths that I love. And they are convinced they can help heal me. If I end up having Lyme I will have to see another specialist though.

18

I am hopeful that Naturopath helps you both. I also had one that told me she could help me. I spent $5000.00 dollars with her because my insurance would not pay for Naturopathy physician. I took IV Vitamins and glutathione. This took it’s toll on my veins. So be very careful. It is also important to know where the glutathione is manufactured.
Best wishes.
Rhonda

19

Oh man that’s a lot of money. My insurance covers this naturopath thank goodness. The only thing I’m out of pocket for so far is the vitamin C IV’s. I take glutathione because it showed up as deficient on my micronutrient test and also as a genetic mutation on my genetic test. But it’s a capsule form (lipospheric). I’m being careful. Right now it’s trying to pinpoint exactly what’s going on. So far we found two activated viruses (EBV and HHV6) and I’m trying to test for Lyme.
Rhonda you recovered yes? After how long? And was it just one day you felt better or was it gradual?

20

yes ive spent a fortune too on many different drs. my new dr an infectious disease dr does infusions but when i asked for a vit c iv he said 'waste of time you just pee it out ’ ‘better taking a pill he said’ go figure