¿Alguien ha tenido una biopsia por su LS?

Salud de la mujer
1

Hi Ladies!

I was referred to Gynae recently and saw them 2 weeks ago re LS.  I was told I would have to have a biopsy.   The consultant I saw didn't even examine me!  I was actually in and out of that consultation room within 10 minutes.  So today I receive a telephone call from Admissions saying they were sorry they have only just received my referral and could I attend in the morning!!

Has anyone had a biopsy and did it make LS worse and what was the outcome; did they offer anything other than the Clob?

Thank you!

2

Hi,

mine didn’t make it worse.  It came back inflammation though a lot of the times it doesn’t show LS..  you could ask if they are testing for Lichen Planus as well or ask what other things if any they are testing for as they don’t seem to say.  I couldn’t feel the biopsy the needle stung a bit for the anaesthetic and it was bruised for a few days.  If you have a dissolvable stitch it takes about up to 10days for it to dissolve.  Just take it easy when you have had it done and I’m sure they will give you instructions as to not wash there for a day or two and not to use clob for a while as well afterwards.  I hope everything goes ok for you, you’ll have to report back when you are finished x 

 

3

Me hice una biopsia. No creo que pudiera haber empeorado las cosas, ya que estaba en un lío de todos modos y fui a la ginecóloga por un sangrado. Ella hizo una biopsia, pero yo creía que estaba comprobando si tenía cáncer. Me recetó el clob y lo usé de inmediato. Funcionó muy rápido. También confirmó que tenía LS, no cáncer, y me dio un discurso sobre higiene, por ejemplo, no usar bragas, no usar perfumes, no lavarse el pelo en la ducha (algo que aún hago).

4

Hi, I actually dont think there is any need for a biopsy unless you are showing something that looks VERY different to LS. 

Lichen Sclerosus can be visually diagnosed, many many women don't need to have a biopsy but end up having them anyway due to their doctors lack of experience with LS.  In some cases, it can make matters worse, as you already have problems with your undercarriage.  My LS was visually diagnosed, it's not that difficult, that's what makes me cross when I read of so many women having to go through this when it really isn't necessary in most cases. 

The telltale signs of LS  are white plaques of skin, often in the shape of a butterfly.  Cuts and tears in and around the Vagina.  Sometimes small blisters or red spots/rashes will appear. These are the very obvious and clear tell-tale signs of Lichen Sclerosus, which any competent doctor  should be able to diagnose. 

I would imagine 20 years ago that his would quite possibly be the first line of treatment, but now, with so many women having this condition there is no excuse for the laziness of doctors not to know about it.

5

¿Has probado una crema de esteroides de venta libre para ver si mejora?

6

Hi Sue,

Many thanks for your reply, I will certainly ask questions when/if I have it done as it is now to be rescheduled!  

Kind regards. 

7

Hi Fran,

Many thanks for your reply.  I think they are checking for anything sinister going on; I suppose it is better to be safe than sorry.

Kind regards

8

Hi Guppy,

I totally agree with you!  The consultant didn't even have a look and referred me for the biopsy.  What worries me is if it makes things worse.  I've had this for 13 years and only recently has it become troublesome.  I am wondering whether the menopause has anything to do with it.  Oh the joys of being a woman!!

Kind regards

9

Hi Ben,

Yes, have tried the steroid cream and it does help, thank you.

Kind regards.

 

10

Si los esteroides ayudan y los has tomado durante 11 años, casi con seguridad no es cáncer de vulva. Por lo tanto, no creo que sea necesaria una biopsia.

11

I recently had a biopsy on 11/01/17. I'm awaiting the results. With the exception of some minor itching (tested and do not have a yeast infection) and the fact that my vulva and area around my anus lost its pigmentation, she said she couldn't say it was LS or not, hence, the biopsy. I can tell you, the shot to numb the area was very "uncomfortable", but not the worse discomfort. I am hoping that I don't have LS and more importantly, no vulva cancer, but why at 57 would I lost pigmentation in my genital area.

12

Buenos días Toni

Yo, a diferencia de Guppy, creo que una biopsia es la única manera de estar completamente segura de que es LS

Por supuesto, el consultor que ni siquiera se tomó el tiempo de examinarte es espantoso. ¡No solo hay que abordar el aspecto físico de las cosas, sino también tu estado mental!

Prepararse para una consulta ya es bastante difícil. Dime Toni, ¿era un hombre o una mujer? También tu primera reunión... ¡Indignante!

De todos modos, fui diagnosticada hace casi 16 años por biopsia. No había cambios arquitectónicos entonces, y no sabía con qué estaba lidiando

El tratamiento no ha cambiado en décadas simplemente porque no hay investigación sobre esto

condición sigilosa, silenciosa, a menudo dolorosa y con picazón fea 😐

Este foro es probablemente el ejército más informado de mujeres que pueden discutir libremente sobre la condición de sus vaginas 👨‍👩‍👧‍👦👨‍👩‍👧‍👦👨‍👩‍👧‍👦👨‍👩‍👧‍👦 y pueden hacer una diferencia en las personas que son diagnosticadas con LS y quitarles los sentimientos de ansiedad y preocupación al estar ahí y ser solidarias.

Toni, las mejores cosas que tengo para ayudarme a manejar con éxito el LS

Es mi bidé portátil (❤️ Lo amo) y 20 Mule Team Borax (Hay un enlace para contarte sobre los beneficios del Borax y el LS, pero no sé cómo hacerlo) 💁‍♀️

Ungüento Betnovate en caso de brote y aceite de coco como humectante. ¡Hablar de interés en bricolaje en mi Ladyship!

Vivo en Warwickshire y mi consultor es el Prof. Sean Kehoe en Birmingham y es el especialista más honesto que he conocido

Él me dijo que el LS no causa cáncer, pero el cáncer puede causar LS. ¡Francamente Toni, sabemos más que cualquiera de ellos!

Escucho historias horribles sobre el LS, pero debemos mantener la calma y tratar de ser lógicas con las opiniones que escuchamos.

La comida de uno es la de otro y todo eso. Sabes lo que le conviene a una 'Ladyship' puede que no le convenga a otra.

Nosotras vivimos con esto 24/7

También, lo siento por seguir, pero este es mi pensamiento del día 😊

Con el tiempo he cambiado mi dieta

He eliminado el azúcar, los lácteos (ambos son un gran no-no en cuanto al LS, ya que ambos calientan el cuerpo y el LS ama lo caliente)

El alcohol también, pero bueno, dos de tres no está mal 😌😌😌

Enviando ❤️

13

Hi Angela and thanks for your reply.  The consultant told me they would take about 5 samples, how many did they take with you?  I still can't understand why he didn't even examine me and then refer me for biopsy.  Do you have white patches?  I wish you all the best with your results x

14

Hi Toni,

sorry, I have only just seen this post.  Just wanted to say I’m post meno six years and I’ve researched so much on it now that definitely lack of oestrogen plays a part in development of L S amongst other triggers.  Pre pubescent girls or babies can get it, I’ve read they give Oestrogen cream to the girls to aid before menstruation and it helps the architecture come back.  I think we probably have a mixture of age related atrophy and LS as LS is prone post menopause.  I aren’t sure if you are on any HRT or local estriol or anything.  I’m too scared to apply cream there in case it causes bleeding or breasts to become sore.  When they do the biopsies ask which areas they are doing, I know they’ll hate that but I didn’t and I’m certain they biopsied the wrong areas.  Xx

15

Hi Sedg, and thank you for your reply.

Oh yes, it was a male consultant and all he was interested in was getting the paperwork done for the biopsy!  I wouldn't have wanted an examination done by him anyway!! 

I have read that article on Borax and it seems to help a lot of women.  Do you know where I can purchase some, also what coconut oil do you use and where do you get it from?

My GP told me to steer clear of forums, but I think they are so good for women like us who are suffering from this debilitating condition.  GPs don't have a clue what we have to put up with on a daily basis.

Thanks again, best wishes.

 

16

Hi Sue,

I am post menopausal, well surgically menopausal!  I had a hysterectomy last year.  I've had LS 13 years and have managed fine.  It's only in the last six months things have started to change; itching, tearing and bleeding and it got me wondering if it is related to menopause.  I haven't tried HRT.  I find we have to do our own research as GPs don't really help.  Mine tells me to go and have a massage!!!  

Thanks again and and best wishes.

 

17

Hi Toni, she only took one sample. I dont have the white patches that others have described. I am an African American, not real dark skin, but it's as if I lost the color or melatonin. My gyno is new and I was grateful that she did an exam, then recommended the biopsy, which was done in office. i still have some minor itching, but pending diagnosis, I am using organic coconut oil, that I ordered from Amazon. Your gyno sounds like an insensitive turd!! I hope that you are able to find someone who is at least empathetic regarding what you are going through and truly interested in helping you. God Bless.

18

Hola Toni

Médico de mente cerrada diciendo que te alejes de los foros !!

Quizás la próxima vez que lo veas/la veas podrías pedirle que se una. Así él/ella estaría más informado para realmente ayudar a los pacientes con esta condición tan desagradable.

Le pregunté a uno de los médicos de mi consulta y me dijo que sí 😊. También dijo que tenían varias mujeres con esta queja. ¿No es tan raro, eh?

Consigo mi 20 Mule Team Borax 99.9% puro de eBay. Por favor, ten en cuenta al vendedor.

Este vendedor es Bio Aquatek con sede en Stoke on Trent.

Los llamé y hablé con un caballero muy servicial que confirmó lo puro que era.

Dios lo bendiga, le dije que era para bañar a mi 'Señora' debido a un problema ginecológico !!

Él tartamudeó un poco, pero se mostró muy compuesto cuando dijo, al preguntarle, que dejaría que su esposa/madre lo usara si fuera necesario. Sello de aprobación para mí.

Uso 3 litros de agua tibia-caliente en mi bidé portátil (de Amazon) añadiendo 2 cucharaditas de Borax.

Esta es la parte en la que menos es mejor hasta que encuentres la proporción adecuada para ti. Demasiado puede quemar 😈

A menudo me pregunto quién pensó primero en usar un agente de lavandería en su 'Señora' 😊

Funciona para mí aunque solo lo uso una o quizás dos veces por semana.

Compro aceite de coco virgen orgánico

La mayoría de los supermercados lo venden y dura mucho tiempo.

Aunque a veces lo uso como crema hidratante corporal.

Además, a menos que tenga un brote muy grave, prefiero usar un esteroide menos intenso, que es la pomada Betnovate.

Dermovate o Clobetasol es un esteroide muy fuerte y me causó más malestar que alivio. En mi opinión, Betnovate es más suave

Perdón por extenderme. Me siento como escribiendo Guerra y Paz. 😆

De hecho, eso es lo que es el LS.

¡Felices días!

❤️

19

Toni, ¿puedes vincular nuestra discusión con una señora llamada Bellazia? No sé cómo hacerlo.

Necesita consejos sobre el uso de Borax, etc., y dónde comprarlo.

Gracias.

Espero que estés manejando bien ❤️

20

Ah Angela, you are so right about the insensitive turd!!!  That make me chuckle!

How are you getting on with the organic coconut oil?  It seems to be quite popular amongst the ladies.  I haven't tried it yet.

Thank you for your kind words, best wishes x