Has anyone tried Low Dose Naltrexone for PMR?

Bones, joints and muscles
1

I just started LDN, am down to 2 mg of Prednisone, but still having muscular pain. Has anyone else tried it? I found a discussion from 8 years ago, but nothing current.

2

I have been taking LDN for about 6 mo.

I have noticed a tremendous difference

No more pain or fatigue. For the first time in three years I have been able to

Drop my dosage of pred without flares

And pain not to mention the fatigue

I started with 1.5 mg for a week then went to 3 and after about a month went to 4.5.

I also use Pulse electro magnetic field

Therapy twice a day for 8 minutes and I

Feel like a normal person again.

Audrey

3

Audrey, thanks for the info! I started at 1.5mg just two days ago, on a schedule to get to 4.5 in a month. Your information is encouraging.  How long was it before thought you could feel some results of the LDN? 

Also, I tried PEMF therapy for a couple of weeks, but stopped it because the treatments were $75 each and the improvement seemed to only last for a day or so. Have you found a cheaper way to get PEMF therapy? If you own your PEMF machine, which one did you buy?

 

4

In addition to my previous post it is

Important to take the LDN at night

around 9:00 on an empty stomach

for it to be most effective.

An on line friend with PMR introduced

me to it and she is also having good

results She also uses PEMF therapy.

I think for me the PEMF eliminated the pain and the LDN eliminated the fatigue.

5

If you can figure out how to

Personally reach me I'll give you all the info

In the meantime I'm off to Costco but I will get back to you

6

I did not know to take it on an empty stomach - thanks. 

​If you do not mind communicating with me directly, I would appreciate your sending the info about the PEMF (and any other info you might have on LDN) to: 

​Thank you!

Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

7

If you click on the envelope icon next to the person's name you can send a private message.

8

Shelly

I sent you my address on

messenger. Took me awhile to figure it out. At least I think

I figured if out.