Some people report benefits in particular the ones that suffer from CFS too.
No
But would try anything. The pain I am feeling today is getting somewhat unbarable and I just don't no where to put myself
I have take co-codomal diazepan anitripyline naproxen and now have been give a suppository!!!!!
And still in horrendous pain
Just googled it and has no referrences to fibro or cfs but does change thought process. Hope this helps.
Hi Jodal. If your pain is so unbearable why no try LDN? There a few discussions here about it. Have a look!
Piracentam is more for cognitive function and stamina which are also important issues in fibro patients. X
Hi Alanah. Piracetam is not for pain but for congnitive function. I'm on LDN for fibro. At the Cort Johnson web site about FibroM and CFS’s there's plenty of alternative therapies reviews one of them being on LDN. Maija Haavisto is one of the site’s contributors and a young women who’s been on LDN for over 8 years and also on Piracetam.
Not a lot of people know about this combination....
Is this in america or uk? Is there alternatives to pain and tiredness rather than pills?
This is "The World" Alanah ! The things mentioned are pills or similar, although they're considered "alternative" in terms of medical use. They're not painkillers, if that's what you mean.
It goes either for UK, US or anywhere.
There are also other things in the world for fibro that are not drugs but I wasn't reffering to that.
Of course all things are available depending on how much money you've got.
What's your point, Alanah?
Thanks T for highlighting this drug. I haven't heard of it before. I was asking the gp if I could take dexedrine for a cognitive boost (after brain haemorrhage) but have hbp so apparently not. Will be following your thread with interest, thanks!
Gosh Jane, I'm so sorry youre going through all that. I'm going to try to make my GP prescribe Piracetam for me. I've no idea if someone like you could have it. Nonetheless have a look at a scientific article Piracetam in the treatment of acute stroke. by author Orgogozo. XXX
Guess this doesnt apply to me cos I dont have money. In lots of pain and can only go to my gp. I need positivity not negativity!
Don't no if I have fibro or not now
Very low
Now signed off of work for 2 more weeks
Am in agony with leg
Been to gp this morning was agony getting there but they have give me oral morph
For this "blood clot" which in all fairness had no scan so how do they no. They are going my pain in leg with a positive crp blood test result
I have a scan for Friday morning booked in
Oral morph has not done a thing
I'm injecting myself with the blood thinners so if I have the scan on Friday and it shows nothing - i don't no what the next step is!!!
😞
Hi Jane , How're you doing? Just by accident I came accross this nootropic (brain function enhancer) that perhaps would be of use to you: Citicoline. It's good for the brain all around and it seems to lower blood pressure too. X
No, no, I didn't make myself clear,I'm sorry! We all need positivity, we're all in pain, right?
To clarify: I'm in Portugal but I'm being followed by a local NHS GP + consultants. That is inexpensive medical care just like in the UK.
About the drugs: I'm on LND - Low Dose Naltrexone which is a prescription drug. My GP acepted to prescribe it because i've reserached extensively, printed out the sutudies and gave the tohim. He knows me for over 11 years and he knows I'am a alternative health freak.
Some doctor's don't know LDN so they don't like to prescribe it. But they can if they want to. I've posts here about this and I'm reporting regularly to the forum on my experience.
LDN is quite cheap.
The other one, Piracetan, for cognitive function is also inexpensive and widely available.
So there's hope,Alanah!
The other things for fibro that imply more money are new treatments of different kinds such as:
- Guaifesin + diet. They believe fibro is caused by kidney phosphates;
- "Lemeterapia" a Brazilian treatment based on a special type of osteopathic sessions. There's an office in Portugal too. This can be expensive altough they "promise" cure. They believe fibro is the result of lifelong muscle and joint injuries.
Both can be expensive.
Is there anything I can do for you Alanah?
X
Alanah, I'm sorry I didn't make myself clear. Have I offended you? Sorry, that was not my intention !
I'm on NHS treatments out of the UK. I just wrote you a big message and our lovely moderators deleted the message because ther was a "g" word there (no, not a swear word).
Joda, I'm sorry for you.....the first priority is to get the diagnosis. You must really press to be valuated by whomever's necessary to get a proper diagnosis. Just be very firm.
I would write down everything i've been feeling, like a report, date it, print it, sign it a give it to the doctor.
X