Hello fellow sufferers,
I visited emergency dept yesterday due to several days of intensified headaches, stiff neck and dizzyness. While there, I had a full blown seizure and became unconscious (what better place to have one than in a hospital). Has anyone else experienced seizure(s) with all this other crap we are dealing with or am I now dealing with two separate or connected health issues? The fun just doesn't seem to stop.
goodness Marie, that sounds pretty bad! i haven,t had a seizure, but am sure anyone on here who had will get in touch. wanted to ask though, what did they say about that? Did they do any tests etc. surely they have you I. Record from your last visit and your history etc? They must be able to tell you what caused the seizure surely and if it is connected to your dizziness . Let us know okay?
Blimey Marie thats terrible. Maybe youve got a bug of some sort. Did they do loads of tests and get anywhere with them ? Perhaps theyll take you seriously now. I wonder if anyone else has had seizure. I havent thank god. How do you feel now ? x
Hi Marie, O also had a seizure (although I didn't black out) this was after a through infection, my dizziness started a week later, nobody gavee an answer as to what was wrong with me, they thought infection had travelled to my ear and knocked you balance off, the good news is that this happened 18 months ago and I've not had another one, thank god as it was so scary, hope your feeling better soon x
goodness Marie that would of been shocking for you - like the other comments did they explain as to why you are having seizures? I also put this question out on a FB site that has 200 Aussie Members so I'll get back to you as to what they say! It's in all our best interest to know as to why this happened to you! 🍫 I think you need chocolate now!
Well thank you Donna, that would be great to reach out to your FB site. It would be interesting to know if anyone else had this experience.
As usual, no explanation, just more appointments and tests. Grrrr.
Chocolate and a nice cup of coffee would be nice. Oh and butter tarts...
Hi Lorraine, thank you for your reply. I'm happy to read it has not come back, that gives me hope. Unfortunately, I just had a mild episode with my body tightening up again but nothing close as yesterday. It is scary. The vertigo I experienced after I fell to the ground and the convulsing was nothing I ever experienced, I just screamed out and that's all I remember before I blacked out.
To make matters worse, and understandably so, I have now lost my licence to drive. I have to look in to this further, I hope it is just temporary.
Hi Paula,
just a CAT scan which appeared normal. However, although I couldn't speak, as I drifted in and out of consciousness, I could hear the odd conversations. At one point, while in the imaging department, I heard one of the nurses with me say, "what are the results?", the other attendant replied, "a collapsed cervical artery". Now when I questioned this with the doctor, he brushed it off and said, "no, I didn't see that, anyways your family doctor will get the full report". I thought this was kind of strange. When I got home I searched symptoms of a collapsed cervical artery and they are exactly the symptoms I am experiencing. Go figure.
Other than that, I am very weak from the episode and painful bruising on my chest, particularly when I breathe. Someone kept pressing deeply on my breastbone, trying to wake me up, I could hear them but I couldn't talk or move to tell them to stop.
Thank you for asking
Hello Gillian,
Yes, I most definitely will let everyone know the results. Neurologist on Oct 5 and EEG on Oct 10. MRI in Dec...ugh, such a long time to wait.
Take care my dear.
As promised Marie , I put it up on the FB website and no offers of assurance it related to the symptoms that you / we are having - it's possibly another side line or medication that you might be on ! Family history would be a really good one to look at as well!
You might want to,put a comment post on the Brain and Spine Foundation website I sent you as they have useful info in all the Kind,of stuff that goes on in our heads etc!,
Oh great idea Gillian, thank you
Hi Donna, thank you for trying. After scouring the internet, I did find out that along with epilepsy (which is what I may be deaing with), there are symptoms of dizziness and vertigo. My ENT dr is absolutely useless. I spoke to the secretary and asked her to notify the dr of this episode and a) whether he has heard of a connection and b) to indicate whether I can/should stop this Nystatin. 2 days later, I am still waiting for an answer. Ridiculous.
That,s,okay. I may be putting one on there myself too! I have had a headache every day lately, and at this very moment dizziness real bad, not sure of it,s the headaches that makes it worse or what!
Ho. Sorry to butt in on you comment with Donna, but I know all about useless ENT,s!! Tbh Marie,,if you can via your med insurance or however it works there, I would definitely be asking for a referral with a Neuro otologist AS ENT,s just do not 'do' anything Neuro in experience
Yes, and please let your family dr know as well. From what I have been reading, this seizure could also be related to a heart condition along with the headaches and dizziness. I don't want to put more things in your head (no pun intended) but I have come to the conclusion we need to be our own doctors. I just found out that the neurologist I am being referred to is the chief neurologist at the hospital with stroke/cardiology as its specialty. So I would think I am finally going to be in knowledgable hands. Please take care and I hope you get some relief soon
Hi Gillian,
no need to apologize, I welcome your comments and suggestions. We are here to support one another in whatever way we can.
👍👍😊
Marie is there any reason whilst in hospital before checking out they explained as to the possibilities of the seizure ? Gillian I haven't heard one good report yet re ENT's you would think all ENTs would be up with this crap! You just need to cut to the chase and ask for a specialist that specialises in vestibular or BPPV (vertigo) ! I was lucky my physio pushed my doctor into sending me down south to an expert in vertigo etc
yes totally,agree Donna. the thing is with ENT,s - Ear, Nose And Throat, that is exactly what they are and do, heRing problems, hearing aids wtc., children's grommets, glummer, throat problems Nd so in. they don.t do the Vestibular system in their studies. In fact ENTS,s only study for half, roughly.,the amount of years that Vestibular Neuro Otolgists, Otolaryngologists wtc wtc do. When I asked an ENT why my right ear continually popped every single time I swallowed (it is also "full feeling' too), he said that that meant my Eustation tube was working properly. so,I said, "so does that mean because my left ear doesn't pop that that means my left Eustation tube isn't working properly"!! If looks could have killed I'd have been dead! Ha ha!! Btw he didn't,t answer me,,wonder why?