Hi everyone who has been communicating about CFS/ME dating and This Morning. As promised in one of my communications, I have just emailed the Health Minister in relation to benefits and the struggle people have in obtaining them. Just to let you all know I wrote to the Prime Minister a few weeks ago about the same thing, and the letter was forwarded to D.W.P. who sent me back a lovely letter pages long, but basically it still did not answer why we have to be put through so much and why it is so hard for us to get benefits. Too much to go into on here. Anyway, let us see where my email gets us. Basically, I have told him about the need of more awareness and understanding of the conditio.
I emailed the prime minister after you said you did as you know, and was also told that it was being forwarded to the D.W.P. They just deal with allocating funds and can't change policy so they're just fobbing us off.
I've read that the new Health Minister is against disability benefits so all the more reason to bombard him with our opinions and requests. A loud outcry is what is needed.
I totally agree, the only way to be heard is to stand up and be counted so to speak, and that is being as vocal as we possibly can. I would encourage everyone on this site to as you say bombard the Health Minister, a public outcry from all of us with CFS/ME is needed and soon.
I wrote last year and had the same kind of response Tina. If lots of us write, they may just sit up and take notice! I will put something together later today.
not so long ago ME/CFS/FM was one of the subjects covered on 'The Wright Stuff'. it was a rather good 'airing' for a change. Mathew Wright was v. damning on how ppl with ME/CFS were treated by the DWP. there was a spokes person from the ME Association on. she didn't do a great job in 'fighting the corner', so to speak, just the standard PR bite sound. i've seen other 'airings' i.e. This Morning with Fern & Phil. that one was good as Fern was v. interested/supportive. Dr Chris Steel (This Morning) is also sympathic & supportive.
