just an update since my last post had first appointment with heamatologist this afteroon got to go back tommorrow and have a bone marrow biopsy done dreading it everything ive read says it really hurts next week ive got full skeletal xray and heart scan ande then on the 6th backn to see heamatologist and neph for results possibly got al amyloidosis but hasent been confirmed yet and apart from kidneys dont know if any where else is affected yet said my creatine was at 225 at last check been to see what help i can get financially when i go on the sick and all im entitled to is sick money 89pounds a week minus tax and ni so about 80pounds and only 74 pounds housing benefit my rents 110 so after paying difference for rent water gas electric etc will have 10pounds left a week for food toiletries clothing bus fares etc so cant manage on that council wont help and landlord wants his rent in full and on time or im out been told i wont get pip either so dont know what to do looks like choice is pay rent and starve or eat and be homeless worked all my life and first time i need help theres nothing keep you updated as i find out more
Hya,
Who has told you, you can't get PIP? Unless you have applied and been told no, asked for a reconsideration and been told no and gone to appeal and been told no, there is no way of anyone being able to tell you you won't get it so get your application in!. After 26 you will qualify for ESA too. Go to your council and ask for low income vouchers you will be able to get food vouchers. I am keeping my fingers crossed for you that it is confined to your kidneys. Good luck with you bone marrow biopsy, you can do this I have every faith in your ability. Keep us posted on diagnosis x
Hi Helen benefits advisor and then citizens advice told me I wouldn't qualify for pip the haematologist said I would maybe get some help from my million nurses if I start chemo
Nah I would apply for it anyway, it would put you in good stead if you are on chemo. Phone up the line and they go through the questions with you and then send you the form to complete in more detail PM me if you need assistance, obviously I can't do it for you but I can help with wording