Hello all

Chest and lungs
1

I have recently been told that I have sarcoidosis in my lungs. My cough is driving me mad which I have now had for 2 years. I had a broncoscopy and lung wash 6 weeks ago and have an appointment at hospital this week. 

At at the moment I am really struggling with cough and feeling so uncomfortable as I think I have pulled a muscle in my right shoulder blade..

any my suggestions to help please.  Feeling very vulnerable.  

Thank you. 

2

I also was diagnosed with lung sarcoidosis last summer after complaining of persistent cough.  I was prescribed a steroid inhaler which has really helped the cough.  Hope you will get relief soon.

3

Hello Flo. Sorry to hear that you have also been diagnosed. What is the name of your steroid inhaler please ?

do you find the cold weather also makes cough worse ?

 

4

Hi Sue

I have also had a persistent cough of two kinds. One is a dry cough due to lung issues and the other is a more productive cough due to a constant nasal drip from rhinitis. Besides being extremely irritating for me and those around me I also pulled muscles and got a sore chest from coughing.

I was recently given a steroid inhaler called Clenil (beclometasone) and also a beclometasone steroid nasal spray. Both have given much relief from the cough.

Hope you can get some relief with treatment.

Mairie

5

Hi Sue, it is Clenil modulate 100 mcg (brown) inhaler on prescription in uk.  No I didn’t notice my cough much over the winter.

6

Are you also seeing a pulmonologist that knows sarcoid? Good diet helps 😁 cut back alcohol and if you smoke try and quit 👍🏼 Eat plenty

Anti inflammatory foods, drink more water per day and add more exercise 😁

7

Thank you Maisie much appreciated. Hope you keep well. Sue

8

Hello Big Mack

he is not experienced in sarcoid so I am going to ask to be referred. Alcohol not a problem and luckily never smoked.  Not a good water drinker. But will put this top of list. Exercise.  I go to gym but struggling at present. 

Thank you Mac. Keep well. Sue

 

9

Thank you Flo. I will suggest this to doctor. All the best. Sue

10

THe coughing can cause pleurisy inflammation of the lung lining it’s painful, some will treat it with antibiotics and anti inflammatory meds. Please let them know. God bless

11

The water and less stress is very important so however you accomplish that go for it!

12

Thank you Camey. Sue

13

Hi Sue, when l was first diagnosed with Sarcoidosis and following a biopsy l was prescribed with an inhaler called FOSTAIR, its a steroid inhaler hich certainly has taken the cough away for me. And is available on prescription in UK, so ask your doctor to get you taking it. I simply do not have the painful cough any more and the cough would have me on the floor in painful fits at the beginning of my journey with Sarcoidosis.

I wish you well

Kind regards

David.

14

Thank you David for your advice. 

In wish you well too and a little luck thrown in 

all the best Sue

15

No worries Sue, sometimes it can be a lonely place battling this debilitating condition on our own. Having the opportunity to chat with folks who have also experìenced the symptoms and pains is a great step forward for me too.

Bon Chance to you too.

David

16

HEy Sue same without David, I take Breo inhaled steroids I have been on steroids so long I’m really trying not to use any thing I don’t have to it did relieve the cough and pain. I was told several times I had pleurisy since 2012 I know now it was sarcoid I as well ended up in the floor from pain in my back like a major muscle attack. Spent all day in the ER to get a pain shot, the dr’s Here make you feel like a junky!

17

Amen brother! God speed! You are right on all accounts! But I hope know you aren’t alone helps?