Hi everyone, I'm Tracey from Lincs. I was diagnosed 2 yrs ago. I feel really wiped out at the moment and its so frustrating not to be able to do a much.
Saw my doc on Monday and he wasn't very helpful, how the heck can i exercise when i can hardly move in the first place?
Sorry for moaning, i know there are others so much worse off. Thanks for reading
Tracey
Hi Tracey!
Saw your message but have been so busy at the moment with my daughter in hospital.
It is frustrating when you are really tired and can't do too much! Its just finding the right balance and taking it day by day. Wish though I would listen to my own advice as I have been so busy this week and have made my pain worse.
I do some gentle exercises that the physio gave me to do after the doctor referred me to see him. They do make me feel better. If your doctor is not helping you with your fibro maybe you should change to another doctor at your practice. That helped for me as I wouldn't have been diagnosed even now with fibro it I carried on seeing the same one.
Don't worry about moaning this is a place where you can get it off your chest and say how you feel. Come on anytime and have a moan. It you go on the thread that says PACING to chat you will find myself and others. There is Linda, Lizzy, Win & Jeff. We are not all on all the while as with our families etc we do get busy but come on when we can and catch up.
It you come on after I have gone on holiday to Scotland will catch up with you when I get back on the 20th June. I am off on Tuesday.
Have a good weekend.
Tess
Hi Tracey!
See from your message you are in Market Deeping. I know where that is as I live in Whittlesey near Peterborough.
Tess
Hi Tracey
I hope you are not feeling too bad. This is the best place to let it all out and get it off your chest. we all try to help each other.
Will chat later.
Take care.
Lizzy
I was daignosed 8 years ago with Fibromyalgia, but had the symptoms and them saying it was this or that, then eventually they appologised and said I had Fibro and have had it for over 25 years. It does however feel good when at last there is a name for it, and not in my head, at one point I thought they were thinking that I was inventing symptoms!!
I live in wales, and have been campaigning for better support and services in wales, for people with fibromyalgia, so that diagnosis is quicker and support is there for them, and their families. It has been a long journey, but we are finally getting there, with Assembly and Government, so hopefully wont be long before GPs ACTUALLY believe that the condition exists, and it is not a pleasant journey, has its highs and lows,
Perhaps you could contact your MP and start a campaign in your area, to get the support and services, improved, especially the Education to your GP !!
I have good days, and not so good, (I tend not to say bad, as it is really low word), some days I take about half an hour to get my brain into gear to move my legs out of bed, then I have to sit at the end of the bed before I can stand up, as my legs give way, and it is sometimes really painful to walk..
Other days well it is only 15 minutes to get brain into gear.! Then I cannot remember what to do next (FIbro fog as some call it), I get my clothes looked out on the bed, then spend about half an hour in the wardrobe looking for what I can wear today !!
Today is a fairly good day, except I have my partners jumper on, as it is cold, and I couldnt find my one, although I have hot flushes, as having early menopause (I am only 44, and no children), so may have to take it off soon, but then put it back on....! never ending..
:wink: wants to be part of your family?
xx gentle hugs..xxx