hemochromatosis-feeling drunk/drugged?

I second that.

If your parents are around tell them what's going on and make someone take you to a doctor, this is not something you should sit on and just hope it goes away.

I have been diagnosed in August 2014, didn't get the phelobotomies started until 2 months ago. Ferrin has gone from 1675 to 1000. I feel not good either. I feel sorta foggy and nausea. I also am getting hot flashes internally. I was getting scared because I am thinking I have cancer, but when I see my blood counts every week, they are the same. Is that the feeling you are getting?

My brother had this symptom, though I never did.  His still comes and goes occasionally,  but it is substantially better now than before treatment.  Our experience has been some of the symptoms you experienced before treatment will occasionally be an issue after, but much less so.  

I also dealing with this same feeling of drunkenness and fatigue.initially had a false diagnosis of vertigo because I explained it feels dizzy.I am completely overwhelmed n lost and still have not been diagnosed. They continue to run test but I feel as if time is of the essence. I considered going to the American red cross to donate blood in a effort to see if a hematologist can actually identify if my beliefs are true.

Donating at the Red Cross won't tell you if you have hemochromatosis.  You need an iron panel done. That shouldn't be hard to convince a doctor to check. 

Thank you mark.I am so scared at this point I'm at a lost.I did the wellness check and se things are very scary.I'm tired feeling drunk including my vision and also constipated. I started looking into this discussion cause too much iron can cause that as well as too little. It just seems like these doctors aren't moving fast enough and a miss diagnosis of vertigo has already wasted two years time.

I'm not a professional but you need some protein in your diet, some oatmeal, protein bars, and meat would PROBABLY help you quite a bit! Not that you will bother looking at this message considering your query was established over a year ago!

I always try to respond in a timely fashion but considering that a overload of iron in your blood can be a factor I don't know about the meat.oatmeal good cause regardless it helps the prostate.I will see what a gain in protein will do.thanks for your advice.

Get your vitamin levels checked. Do a full panel check.  My physician wouldn't do any supplemental testing other than B-12 and D (both of those were low), so I did my own after I still wasn't feeling like I had any energy after a year of supplementing with B-12. A panel test came back with  B-5 and Copper deficiencies, my other B vitamins were barely over normal range. Both deficiencis are rare and basically your are either starving, or have some other internal disorder.  I didn't find out I had Hemochromatosis (compound heterzygote), until I was 35 , but the fatigue and other stuff is real, even with ferritin levels under 500) If you feel like something isn't right, don't stop asking questions until you get an answer.....and it was only after being sick on and off for 3 months and taking high levels of Vitamin C that spiked my iron levels. I thought I was going through late stages of burnout, which could be true ,due to lots of work stress.

 

Thanks matt.So does the vitamin c and b supplements make you feel better? I've noticed how bread makes me feel worse.And its harder to digest. I bought some vitamin b supplements scared to take em don't want to do anything to make me feel worse.

I'm not a healthcare professional, so I can only speak for what I went through. I don't supplement with any vitamins unless the doctor has tested for a specific vitamin deficiency. Just taking things randomly is not a good idea. I don't use Vitamin C supplements as Vitamin C increases iron absorption and that is very bad if you have iron overloading disease.

Before I found out that I had Hemochromatosis, I was sick and taking a lot of Vitamin C, but usually felt worse, and that was a bad thing as it spiked my iron uptake and is what triggered the additional testing. I had really bad fatigue, joint pain, felt like I couldn't recharge my batteries no matter how much I slept. That's when I got scared and went to the doctor.

Too much of something can make things worse. If you suspect Hemochromatosis, get your primary care doctor to test your serum ferritin, serum iron, and total iron binding capacity (TIBC)...those should help clue you in if there is an issue with hemochromatosis or iron overloading.  There are genetic testing companies that can definately confirm if you do. I took a take-home test for $200 for peace of mind after my iron tests came back elevated.  If you've taken a genetic test for Hemochromatosis and are affected, you should not be supplementing with Vitamin C. B-12 helped me some, but I'm still low on others. I have an appointment with a Gastro specialist to discuss further. I don't supplement with anything on my own unless the doctor directs it.

If it's not iron issues, if you can't eat bread, you might want to get tested for Celiac's, gluten intolerance and allergies, maybe systemic Candida or yeast infection?...I've read that they can mimic the same symptoms as a hangover due to the toxins produced from yeasts... If you don't feel right, don't stop looking and testing until you get answers from your doctor, or if they aren't helping, get a second opinion.

Thank you Matt.

Very good advice from matts.  I must confirm that I discovered that I have a problem digesting sugars and starchy carbs, which includes breads, any grains, potatoes, root vegetables, pasta, rice, cakes and biscuits of course.  Now that I have eliminated them I really notice the 'hit by a truck' slump when I do have some (like when people put home baked goodies in front of me - I am only human!).

I since read among all the research about HH that we with HH are prone to this problem.  We also can have the symptoms of diabetes without having diabetes.  I wish I could find that research again.  I was in such a hurry looking for something else that I did not bookmark it.

Grains and dairy are also inflammation forming and we usually suffer from that.  Some of us don't absorb Vit B12 via tablet form, so a blood test needs to be done to confirm and if so, injections are the only form of Vit B12 supplement which will work.  So far I have not found that other vitamin Bs are a problem via tablet.  Excess vitamin Bs generally leave your body if you take too much so don't seem to be a problem to take.

I do take a vit C supp last thing at night when hopefully I don't have any more food in my stomach, if not, I wake up with a sore throat leading to a cold because my immune system is fairly low.

Vit D is another important factor, I have found by experience.  I was tested low even though I had doubled up on my tablet form vit D.  My dr told me to buy a practitioners form of vit D3 drops forte (in my case, I buy Bio Ceuticals) and my D3 levels have increased dramatically.

Matts listed 3 parts of an Iron Studies test.  However, your transferrin saturation % is a telling marker with HH.  It is generally >50 (males) when you have HH and is an important indicator.  If you have a high ferritin iron but a low TS%, it is generally not Hereditary Haemochromatosis.

Get in contact with your country's HH association, and join a local support group (or form one - advertise in a free community newspaper, put up notices everywhere).  At your local library look for Iron Disorders Institute Guide to Hemochromatosis, and The Hemochromatosis Cookbook - not necessarily for the recipes but there is a lot of info regarding iron in foods and why it is ok to eat spinach and some red meat, etc.

It will also tell you that drinking tea/coffee, a small red wine (once per day unless your liver is shot), calcium products, etc with your meals to help reduce the uptake of iron.

 

Hello, Megan my names Nick. And I was wondering if you are still experiencing those symptoms? And if so, did you ever find out what it was? Because your description is spot on to what I am experiencing.

I recently started feeling this way. Maybe a week. I have been able to pinpoint the time of day. Usually late morning into the afternoon.  I feel more focused and better in the night. 

Hey all, 

I've been experiencing a similar thing for a few months now, exacerbated by lack of sleep or alcohol. I've tried detoxing from everything (Cigarettes, alcohol, etc) and been to the dr, but it still happens. It's worse some days than others, but it's really starting to get on my nerves. I had blood tests with the doctor, he said my iron levels were slightly low but otherwise there was nothing wrong. I've taken iron supplements and had no change. The front part of my brain feels heavy a lot of the time too. Any advice would be appreciated.

I've been feeling exactly the same. I'm an 18 year old male. Last Friday was our Christmas party from work, Saturday was just a regular hangover, I can't remember Sunday but since then I've felt exactly the way I feel when I'm drunk. Its now thursday, the fourth consecutive day of fwelling like this. I havent told anybody because its so hard to explain amd sounds stupid. I can't really see clear, amd when I try count or estimate how much of something I need I just can't do it. Everything seems blurry. I work at a place where we press hay for export. I need to focus on the hay to see if there's anything wrong with it like if it has foxtail or rot, but I can't tell unless I stare at it. But if I stare at it I get dizzy. I feel impaired when I'm trying to drive anything and don't trust my own judgment. I drive forklift most of the day. It's scary. I can talk and joke around just like normal, which I can also do wjen I'm drunk. I'm a funny guy normally, and still thinking of funny stuff now always, but it just seems like I'm far away. It's just like being drunk except I'm not clumsy. I look fine and don't look tired or sick. I don't feel tired and have been going to bed early anyway. Want to go to the doctor but they close at 5:30 and I work 7-7. Don't want to try tell my boss how I feel cuz I still seem normal to them and he won't believe me. I hope its as simple as iron levels or something because I don't feel like being like this my whole life.

This feeling seems slightly familiar to me...i had a few times about a year ago that I'm doing something and then suddenly forget everything for a second, then shake my head and I'm back. But never for a whole week. Yesterday I was drinking coffee with 4 sugars all day thinking it was just fatigue. But I felt like dying at the end of the day and started crying after I left I felt so bad. Everybody expectz me to be on my toes all day and paying attention

Sorry I accidentally hit send. Everybody expects me to be on my toes all day at work and paying attention but I can't focus. They're getting mad at me and everything. I can't take it but I can't explain myself either. I've been saying that I'm "just tired" for too long, and I don't show any symptoms of a tired person. This is not physical, it's mental. Something is wrong with me and I'm not going to go though life denying it. I can be a zombie at work, but not wit my friendz amd family. I swear If i find wjats wrong with me I'll come back and let you folks know. I'm gonna try go to the doctor tomorrow cuz my boss said were only working 8 hours. I'm gonna show the doctor this forum. Hopefully he won't shrug it off like your doctors seem to be doing. Thanks folks for sharing your experiences it makes me feel better.

I'm actually 19 but keep forgetting. Sorry

Need help! Feeling drunk upon waking without the use of drugs/alcohol. I'm staggering, a little shaky, and dizzy too.. Is there any condition for this?