Highest TSH level

Hormones
1

I was diagnosed a few months back and my TSH levels were 36 I was put on thyroxine 25mgs when I got tested again TSH levels were even higher at 75 doc put me on 50mgs I think I should of been put A much higher dose now Im afraid my TSH levels are gonna be thru roof what is the highest level of TSH any one has had Im scared mines really high and Im on my own with it thanks for any reply :tennis: :tennis:

2

Hi

I was just diagnosed with a high TSH, but my doc said it was 8.97. Does anyone know how the ranges of the TSH levels work?

I'm on 50 Thyroxone and going back for a second blood test next week as it is not working for me.

3

Donā€™t be alarmed my TSH was off the scale and was over 200. (They donā€™t really measure above that) as I had been Hypothyroid for so long...The doc can only increase your thyroxin slowly as it can harm you if it is increased too quickly, I was on 200mg but have now settled back to 175 mg, also be aware that your cholesterol may be high mine was 10.6 at one stage but is now back to under 5.

The levels for your TSH in the UK are between 0.5 and 5 but the USA does it between 0.3 and 3..in my view the nearer you get to 0.3 the betterā€¦Do what I did and find out all you can,

I did a post calledā€ thyroid v old git syndromeā€ further back have a look and it might helpā€¦but remember power is knowledge.. dont leave it to the doc you find out about the illness and help your doc to help you

4

Thanks jackfrost

I had my cholesterol tested and that was 5 which doc said was ok on top of my hypothyroidism I have high blood pressure.It was my blood pressure which kicked off all the blood tests Ive had to have since January the doc reckons the high bp is caused by my hypothyroidism but this week (i have a bp monitor at home)my blood pressure has gone more normal than its been for months so Im wondering if the thyroxine has started to take effect considering I was rushed to hospital with a blood pressure of 240/140 in January I am very very pleased it has come right down! Apparently all my thyroid problems are hereditery is this strictly true do you think. thanks for replying i was beginning to feel quite alone with this disorder. fleetwood

5

I take/eat beetroot for my blood pressure...google it and see what you think!!. dont feel alone as there are millions with this...find out everthing you can enpower yourself..knowledge really is power!!

6

Yes I looked into the beetroot thing and I do eat beetroot but the juice is very hard to find and very expensive . I cycle at least 6 miles a day and this is really good for my BP.My thyroxine is defo starting to kick in now after 7 months of taking it! Ive got loads more energy and Im starting to shift some of the weight I put on with it but I m just glad Im finally starting to feel better in myself. Fleetwood :peace:

7

[quote:dddbdab556=\"fleetwood\"] Apparently all my thyroid problems are hereditery is this strictly true do you think. fleetwood

Absolutely, if you have the autoimmune Hashimoto's thyroiditis as autoimmune diseases have a hereditary link. My mother and my aunt had Hashimoto's and so do I, and there is hardly a member of my mum's family that did not have one or other of the autoimmune diseases.

8

Thanks for that alicia this is all new to me so any info is gladly received The next blood tests I have the doc is going to request a antibodies test for Hashimotos disease so Ill let u know how that goes did your thyroxine take months to kick in like mine did . Fleetwood :peace:

9

Hi everyone,

This is the first time i have done this!!

I was diagnosed as having Hashimotos in 2000 (then i was only 22) now i am 30 and my thyroid has been so out of control. I am on 300 mcg per day(is anyone else on that high a dose?) and have been for about 6 months now. I also have just been diagnosed as having SLE Lupus which i take even more medication for!!

Sorry don't want to bore you all!!

Just thought i would post and tell you all i am so glad to meet people like you.

thanks

Angie

10

Hi Angie

I agree this forum is a relief to me as well to be able to talk to people who are experiancing the same thing as you is priceless I felt very isolated till I discovered this forum.

Take Care fleetwood :peace:

11

Does anyone know if your ok to drink wine when on levothyroxine?

cheers

12

I was on 250 mch for quite a while and realised I was feeling not much better. I asked for a referral to an endocrinologist and through him and also the charity Thyroid UK I learnt about T4/T3 conversion and started on combination therapy.

I learnt that it is a pretty safe bet that if you are on 200 mcg thyroxine or higher the chances are you are not converting T4 to T3 adequately and you might benefit from combination therapy. Since I have been on it I have stabilised and it has made a lot of difference.

I also recommend you check out Thyroid UK at www.thyroiduk.org

13

Hi, I had graves disease then had the radioactive treatment in febuary this year and now go hypo my TSH level went over 100 iam on 125mcgs of thyroxine, My TSH level now down to 47 but i still feel awrful i have gain loads of weight i have very dry skin never feel like i want to do anything. Iam late again with my periods I just feel that i will never feel well again is this normal. Lynn sad

14

A TSH of 47 is still far too high. It needs to be between 0.5 and 5. I am not surprised you are still having all thy symptoms of hypothyroidism.

15

well after another blood test my doc has sent me a prescription through the post for a higher level of thyroxine 100mgs I am really starting to worry now this has been going on for 8 months and my tsh levels just seem to rise and rise can somebody please put my mind at rest and also my hair is starting to fall out HELP PLEASE ANYBODY!!! :cry: LOVE FLEETWOOD

16

Hi Fleetwood

Sorry you are felling distressed but 8 months is not that long in terms of thyroid problems. I was 15 years old when I was first diagnosed with hyperthyroidism and then in my 20s I went hypothyroidism due to the operation I had to remove a chunk of my thyroid gland when I was 15. I now take 150mcg at the moment but they have just put that up again and I'm 47 years old now. When any change happens with the thyroid gland it takes a while for the tablets to take effect - the thryroxine has to build up over a period of time and it does so slowly so the TSH comes down slowly too.

Things like your skin and hair etc will go back to nromal after the body has sorted itself out with your medication. It is a condition that needs patience. Some labs have different ranges of TSH and you need to ask your Dr what the range for your lab. Mine is between 0.4 and 4 and my recent test was a TSH of 5.96. Hope you feel better soon. Ann

17

hello, many of us seem to be in a similar boat and some treatment methods seem to vary greatly--but i am really surprised at how little discussion there is about the mega importance of iodine to our thyroids and health, how can any real health improvements happen when iodine is left out of the equation--the thyroid has an essential need for it--the world health organization puts UK and Europe in general on a pitiful scale...on the recognition of iodine's absolute role in thyroid function & health, well we can even see on you tube how many countries do all they can to foster the intake of iodine--the Japanese are so much better off in the thyroid health department; kelp-nori seafood etc.etc. of course since the disaster iodine is even more of a necessity for thyroid health -radiation-.. gp.s here need to school themselves on prevention-- on these mostly preventable thyroid problems, hey google in lack of iodine in a pregnant mother-to see the effects on the child. ps many different ways to ingest the amounts iodine our thyroids need.. google loads & loads and dr.oz is very informative as well.. sky

18

Hi,

I would like to share my wife's case:

Age : 31

Baby's Age : 05 months (as on 08th Sep)

Its our first baby. During pregnancy, my wife got Thyroid profile (T3, T4 and TSH) test done. The report was a bit high and doctor recommended to take Altroxin 25 mg (one tablet everyday) throughout pregnancy. Thyroid remained under control throughout pregnancy. After delivery, doctor recommended to stop taking Altroxin and get thyroid profile done after 03 months. We got it done and the report is alarming:

T3 - 47.6

T4 - 3.4

TSH - Over 100

TSH is really alarming. I consulted an Endocrinologist today and he asked us to get the Thyroid profile again along with Serum Cortisol test. We will get the test done soon and will share results here.

Doctor has also confirmed that high TSH value can lead to multiple problems, if not controlled and the medicine need to continue.

I am not sure if we are going on right path with doctor. Any suggestions will be very much valuable for us?

 

19

Thyroid TSH levels can affect people differently depending on each person, some with a TSH level of 4 may experience a more drastic effect sometimes than someone with a level of 19.