Hiya, I was diagnosed with HMS a few years back, my problems are mainly my knees, right shoulder, hands... well, you name it, it's a problem at some point. Im 36 and feel 90. I don't have any medications/treatments for the HMS, do any of you? Also do you claim Disability or anything like that?
Anyway, the point of this is that i think i have EDS and not HMS. What should i do? Lea x
Hi there I think you must have other problems! I too have that diagnosis. I informed my consultant. JHS is of course seen in Rheumatology. I had autoimmune problems already so I think for her it was an easy diagnosis. I would look at Patient on JHS, that should give you an idea. Really whether you are able to walk, how far, can you cook, clean, dress your self. Look at Gov UK re claiming benefits. Then you will see the criteria for PIP!
They are now considerd one and the same now by most professionals, (jhs and eds), certainly in america. The diagnosis criteria is being rewritten this year to incorporate new mutations found for eds...im waiting to see too. Jhs diagnosis here at present
Hey,
I'm like you. JHS at present but a lot of the EDS symptoms apply to me except the stretchy skin!
I'm going to watch this one with interest.