Hi - I have been sitting here crying whilst reading these discussions. I have had LS since 2009. I am up to my 4th gyro and after the current one split me this week and for the second time gave me a printout and incorrect script sent me on my way. I can no longer have Pap smears because I tear so easily. Someone must be looking over me because the thought for looking up support groups has never been suggested and I feel like I have been given a chance to not feel so alone. I will definitely try baking soda - thanks guys you have made my day - by the way I am also an artist, mainly oils. Any one on this site from Brisbane?
Hi, what has helped me is vitamin E oil, perrin natural cream complete and I just ordered terrisal. I hope this might help.
Thank you - I'll give it a go
Deb, I'm so happy you've found us and I hope you finally got the proper prescription.
Baking soda baths are good, but more is not better. 1/3 cup in a bath, or a pinch in a bottle of rinsing water.
It's becoming much less of a surprise when anyone says they're an artist. Go figure. Looking forward to seeing you here regularly!
Hi Jennifer.. do you use the perrin natural cream with the clob or no clob at all?
Deb, there are more support groups on the web (I know this because I have been surfing and found this terrific one). If you belong to Facebook there are a couple of them and a really good Yahoo Group. (By the way, off-subject from LS, my great-uncle Stuart Blair emigrated from Scotland to Brisbane in the early 1900s. He had two children, Stella and David, wh may not even still be alive but my dad (first generation American, as his father emigrated here in 1909) remembers correspondence coming and going between Australia and here in Connecticut.
Hi, I use the Perrin Naturals cream complete ultimate strength. On the Perrin Naturals website, there is a forum for lichens and how the perrins cream has helped them. I hope this helps.
Good to find others who struggle the same as you do, isn't it Deb. This forum has become very important for me as well. Just so that you don't feel so alone. What's more, together we may actually figure out a thing or two for the betterment of our living with LS.
Glad you joined us.
We are all here for you Deb! Xxxxxxx
Thank you - I'll give it a try
thank you I'll check it out
thank you and yes. I really was at a very low point this week. Wish I had found this site years ago!
i hope I can repay the favour x
Coconut oil between application of strong steroid ointment (Dermovate in UK - Clobestaso elsewhere) works well for me. If you are being prescribed cream(even Clob) DEMAND that they give you the ointment instead.
Hi Jennifer, I really wouldn't muck about - experimenting is all very well, but you need something strong to get this under control.
Hi Margret, I am just giving information what has helped me. The clobatasol made me feel worse so I've been trying to find anything that would help me and am just passion information along, hopefully it will help others,
Moisture creams are a must, but they're not instead of clob. There are very mild cases of LS and there are patients for whom clob doesn't work. It's possible that Jennifer is an example of both.
In general the potent steroid, which works over a period of months, then needs permanent maintenance. Because clobetasol (and a list of equally potent topican corticosteroid ointments and creams) works to remove the thickening layer of dead cells and penetrated deep to turn down or off the inflammatory cells in the 'basement' layer, it can be drying.
Hi Margaret, i just want to point out that ointments arn't always better for everyone - I always get really sore with Dermovate ointment but am fine with the cream, and the same for the over the counter hydrocortisone cream which I use most of the time. It's a case of whatever works with this cofusing disease!
Hi Deb, Welcome!..I'm an Abstract Artist!..... there appears to be a lot of us on this site!
Morrell is correct regarding the Glob, I was diagnosed around March time this year, I used the cream for a WEEK, and then forgot about it, only recently did I realise the error of that as I have had some fusing going on..the best advice I can give you is to buy a small magnifying mirror and keep a regular eye on your undercarriage..
Glad you found us.
Hi Deb, Welcome!..I'm an Abstract Artist!..... there appears to be a lot of us on this site!
Morrell is correct regarding the Glob, I was diagnosed around March time this year, I used the cream for a WEEK, and then forgot about it, only recently did I realise the error of that as I have had some fusing going on..the best advice I can give you is to buy a small magnifying mirror and keep a regular eye on your undercarriage..
Glad you found us.