Sarb that interested me so I looked it up… articles seem to like to start with severe fear and worry sentences.. and THEN go on to say…
Borax can also cause skin, eye or respiratory irritation. In rare cases, prolonged exposure can cause infertility or damage to an unborn child. **Now, the amount of Borax used in most homemade slime recipes is small **(usually about a tablespoon, which is a little more than 14 grams) and it is diluted in water and glue.Mar 21, 2017
Is homemade slime safe? | Children’s Hospital of Wisconsin
and of course WE use a pittance in a whole tub of water. … and our bodies REQUIRE boron/borax as part of our biochemical make up.
the best article i read some years ago from a biochemist was to explain that borax has even less toxicity level than common table SALT!
so you see, it is all a matter o DEGREE.
Ah just saw this Biscuit… that is Mic who says she knows she has a Vit B deficiency.
But personally for me, I discovered it many years ago by just living and learning. Graduate school was the kicker - the time on architecture drafting board and over nighters and stress of wanting to do well… if I forgot my super B complex for a few weeks, oh geesh… depression, irritability…
about immediately fixing the vitamin deficiencies! - ya got it -
that is exactly WHY I keep harping on here, and have for 15 months, about paying attention and selling your house if that is what it takes to afford your vitamins …
who the heck wants any of those other 150 known autoimmune diseases. LS may be annoying - it isn’t gonna put us in wheel chairs or dead etc… etc
hi Nancy, did you test to see what you were deficient in vitamin wise first or do you just take vitamins to ensure you wont be defiicent in anything across the board? before i had LS i thought i might be deficient in b vitamins as they are linked to cycle length or so i had seen online when i was trying to get pregnant. i stopped taking them (i think i was taking b6 and b12) once i had my kids but reading this has got me thinking xx
Nancy, I agree - it is all about the amount we use. However I do use it daily as a swab and a couple of times a week in sitz bath (about a tablespoon in that). No idea if that’s risky, but I know it helps and after all we are all using steroid which has implications too.
HI there dear Emmy,
Ah good question. I take them all with confidence BECAUSE I first studied up on all the cofactors to each supplement I found out about, and then Part 2 was to find out the proper RATIOS that science has discovered for each of those. As long as I keep the ratio relationship between the critical ones mostly on target then there is no reason to worry about “too much” of this or that.
ans that is the list I’ve posted for everyone here. I’ve finally come to the conclusion that we don’t need to be able to afford a FM Doc - the internet and my 3 months has found I think a really good baseline. I’d love other to add to the knowledge base.
See? These are all MICRO nutrients. We Americans, on the standard American diet, “poison” ourselves with sugar and salt way more than any vitamin will ever do so.
OH! but about your intuition about the B vitamins for you; ANY women of child bearing age who is taking BIRTH CONTROL PILLS needs to add Vitamin B6 and a couple others that science knows perfectly well are stolen from us. IT is in the literature as fa back as I was a young woman (I’m73) WHY this is not mentioned strongly by every doc and nurse beats me. well yes we do know. the science may be there, but the students aren’t taught the science of nutrition in med school. Do look up about that more to find the others I’ve forgotten.
HI sarb, what stood out to me in that quote was the word “irritation”. irritation does not mean poison risk to me, it means the same as showering off after swimming in the sea… salt water is itchy.
Ah, I’m one of those who have never used a steroid, yet. But i"m very interested in - who said ?- that their doctor told them that tacrolimus is better to be used over long term than clobesetol.
Nancy - can I ask why you have not used steroids?
Nancy - also tacrolimus is used to stop immune systems rejecting a transplant. Sounds a little drastic for LS but i take your point - it is interesting. Does it ‘shut down’ an auto-immune response? If so why is it not prescribed more for LS and other AI diseases?
ah, hi, Sarb… well it started out simply that I couldn’t afford the $180 price tag. I’ve changed medicare to United Health type Medicare and maybe they will take now… but in the mean time I’ve found that my vitamin and mineral protocol for building health is taking care of things.
YEp, I’ve got fusing… but apparently all you ladies have been mentioning that fusing happens regardless of whether one uses steroids.
also listened carefully and read back some years to notice that a fairly large number of women have mentioned that the steroid burned and they couldn’t use it, so there must be quite a few people who never use it and I didn’t feel so bad about not having the $.
We are also told that steroids thin the skin… so every time I hear of some of the younger women here talking about thin skin and painful tearing it hurts my heart to know that they are believing their doctors blindly without putting two and two together. That’s not to say I wouldn’t try it at some point argh - probably more than you wanted to hear… smiles
OH now you’ve gone beyond my capacity to grok human biology etc. smiles.
but or your last question, you know the answer.. Docs just like everyone get set in their ways.
I don’t know how long you’ve been on here, but I’ve seen quite a few women on here use tacrolimus instead. but yesterday was the first time someone told us of her docs telling her WHY… a life time of needing it for a chornic disease and it is less thinning to the skin etc…
Tacrolimus (Protopic in the US) is a calcineurin inhibitor that mediates out of control T-cells (white cells of the immune system). Sometimes our white cells go after our own tissue which is the case in autoimmunity. Some who have a bad skin reaction to the clobetasol are then put on a course of tac twice/day for 6-8 weeks to stop the bodies’ overreaction to the steroid. It’s like the game Whack A Mole. Get one problem pounded down and six more spring up.
biscuit
oh! Biscuit - thanks for teaching us about Tacrolimus + Protopic.
How are you feeling today by the way, sore throat?
I was watching a youTube video yesterdy from a dermtologist in Australia who goes een further to say that even tacrolimus is too strong for the long haul. that over the counter corticosteroid has been working well in her practice. It’s worth a good listen whean anyone has time.. BUT I don’t know how to gt the link to you all without being deleted - yet I’ll figure something out.
Got tonsillitis, Five days with fever is not fun. Saw two docs. “Well, we don’t know…” Roommate brought it home last week. We’re both sick. Taking D!
Some people will have to take tacrolimus all their lives if they’ve received a transplanted organ.
As far as the no link policy, why do you tell us the person’s name, the country, approximately what/who she is and we should able to find it. Hope you’re well. biscuit
Nancy nice to 'speak again, thanks again for all the work you do trying to help all on here with LS and associated stuff!
Anyway, the way I get around web addresses is this: for an individual you can PM / Message, obviously.
However, I take the approach that I want all readers of the Forum Topic, current and future to be able to access the specific web page.
For this I specify search terms so that any one using our google friends can search and get to the page we want them to. I will use a specific example here - so say I wanted you to see an academic article specific to Male LS, but I don’t want to use the web address as It may become deleted during Moderation.
So I look at who the web address provider is, the title at the top of the web page, and anything that will make it specific to that page, such as the person who wrote it. You can do this with any web address, pick out the things that identify the location and the topic of the page, then TRY collecting the intended search terms and do the initial search on google yourself to see if it links to the intended page. I use a particular format, or text layout, so here is my specific example:
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- David Clouston - Wiley Online Library - Penile lichen sclerosus - balanitis xerotica obliterans
… try it see if it works, perfect your own search terms for whatever web page you want to highlight and do the test search yourself.
.
Yes it is a roundabout way of getting the information across that we want, but it is better than it being automatically deleted. Then, as I stated previously as a tip, copy the entire message before you hit the “Post Reply” button so that you have at least a copy of the content of the text you have diligently typed, again, in case your message is deleted or goes to some protracted Moderation process. I do this for ALL the forum posts when I have had to give a detailed carefully considered response!!
hi, i was wondering if you tried anything to help? and if it has slow down the progression of LS. How were your flares like? what symptoms were you experiencing? by looking at the pictures, are you experiencing plain at the top area where it is pink? are you on steroid to help?