Humira stopped working

Digestive health
1

Hi everyone,

I'm 28 and have chron's disease. I have been on humira for 2 years which had worked well. The past few months, however, I have been suffering from a debilitating flair up. My Dr upped my dosage but it hasn't made a difference and am now back on steroids. I was wondering if anyone else had expereinced this with humira? And if anyone had had success with any alternative medications? Thanks. 

2

Hey Susannah,

I'm exactly the same age as you I've only started Humira. If you don't mind me asking: How did you find it? Did you have any bad side effects? My doctor told me that the alternative to immunosuppressants is anti-map teratment. so you can ask your doctor about that hope it goes well for you

3

Hi Justyna,

good to hear from you! thanks for the advise, I hadn't heard of ant-map tretaments so I'll ask my Dr about that. When did you get diagnosed with chron's disease? Had you been on any other medication previously? 

I found Humira really good. I had 2 years in remission with hardly any side effects. The only think I noticed was getting colds slightly more than usual!! Good luck on the humira, it really was the best treatment for me.

Good luck with the humira! 

4

I'm glad Humira worked well for you. Did you take any other  immunosuppressants with it? I'm currenlty on combination of Humira + Thioguanine. I was diagnosed when I was 14 so long time ago They put me on Pentsa for about 10 years but it didn't do much so later I was put azathioprine and then methotrexate but i couldn't tolerate any of them. Anti-map treatment is not that popular in the uk but yeah deffo worth talking to your doc about it  

5

Hi Susannah, I have crohns and I am 41 years old. I haven't been on humira, I'm on Azathioprine  for my flare up, hasn't work yet. Good luck 

6

Hi Stephaney,

Thanks for your message. Good luck with the Azathioprine. I hope it starts to work for you soon!

7

Hi Justyna, I couldn't tolerate azathioprine or methotexate either which is how I ended up on humira. I'm not on any other immunosuppressants at the moment, I've taken note to research the Thioguanine! Best of luck with the humira. 

8

Hi Susannah, I have the hospitail on 23rd of this month for a follow up appoint to see how I'm getting in with the tablets. I hope you find meds that work for you.