Hello all!
So i'm new here and just wanted to get a second opinion from here regarding what i've been experiencing.
So a few months ago I started experiencing this random humming in my left leg. I just shrugged it off cause it was really random and nothing seemed to cause it.
Fast forward to 3 weeks ago and I have been having constant and random twitching all over my body. About 75% of the twitching is in my left leg (the same one that has been experiencing the humming feeling) but I have also been twitching in my arms, right leg, abdomen, back, and a few other places. I went to my doctor last week and he gave me Gabapentin to try. I stopped after about 10 days because it didn't seem like it was having any effect other than making me feel physically and mentally awful. My doctor recommended giving it a try and if the issue persisted that I see a neurologist and have a brain MRI to check things out.
I have not had any sort of weakness or anything in my left leg or anywhere else on my body that i've noticed. I am still running 3+ miles a day and not seeing any changes in that. Additionally, I have cut out alcohol and caffeine from my diet for about 10 days and have found that it has still been happening so I don't think that either of those are causing it.
The final symptom that i've been experiencing (that I don't know if its connected) is an issue digesting food and the urge to go to the bathroom directly after I eat. I was reading that this could mean that my body is not absorbing nutrients and that could be the cause of the twitching but I doubt that since, for the most part, it is isolated to my left leg.
Finally, i'm in the last 3 weeks of graduate school and i've been working a lot so i'm not sure if stress can cause something like this but I figured i'd include that as well.
I'll be setting up an appointment with the neurologist this week but I figured i'd come and get some additional feedback regarding my symptoms.
Thanks to all of you!
I hope it is just a magnesium deficiency. Get aome over the counter magnesium and take it see if it helps and or Gatorade. You may need to see a neuromuscular neurologist for a emg. You can try a facebook site called BFS recovery many people there with same symptoms. I hope it goes away and it is just something simple. I have had these twitches started all over 18 months ago then afyer 7 months they lessened but never went completely away. I was terribly ill when it started after 2 vaccines. It was theorized I had guillan Barre miller fisher variant but was lucky it hit nadir and stopped mild axonal damage now I have normal emg. Some people say it can be anxiety but if your not normally a anxious sufferer then not likely. Good luck.
Ps. Don't read to much on internet it will terrify you. I was very frightened after searching.
My doctor has already done a blood test and everything came back alright so I don't think its that. And yeah.. googling this online was an awful idea haha
Hello,
Congrats on School hope you succeed on your journey to a great life. Read your story , what do you mean buy humming? Twitching think you definitely need to see neurologist. Has your doctor not send you there yet and most of the time it takes a few months . I’m in Ottawa still I was there then after awhile they closed my case but because I still have twitching , numbness , sand paper feeling in my feet there sending me back I had gbs. Was in hospital a year . Question do u feel any tingling in your body like pins and needles ? Do you feel any weakness I n your legs body ? Any numbness? Have you had any blood work ? Mri , cat scans ? And how long have u felt you have this eating issue hun?
By humming I mean like a very subtle and constant vibration. It’s only in my left foot.
No pins and needles feeling, numbness, or weakness. Blood work came back fine and my doctor is going to set me up with a brain mri to see what’s what.
In regards to the eating issue, probably about a month or two. I thought I became lactose intolerant within the past couple of years so I thought that it may have just been that but I’ve been trying to not eat any dairy and it’s still happening so I think it’s more than that.
Make sure he does blood work to . Very strange maybe the setting thing could be an ulcer. I’m know doctor could be or a digestive issue . Do you have any pains around your stomach ? Keep that mri appointment get him to do blood work also who knows maybe they are related maybe there not . You know just like me you find you have 1 issue then u find out u have 2 or 3 lol. Sound your doing every thing right so let’s hope that the mri shows what ever is wrong hope you will be ok for sure .Have you been laying on that one side more?
Great suggestionswhat do u mean axons ? Permanent damage . Cause been 3 years this July and I still have numbness in my part of my legs to my feet . Sandy paper feeling so strange I feel it more by laying down my feet are up I’m not walking on them I’ll turn different ways I can feel the nerves inside my feet doing wiered things . I know so well about how I had flue shot and paralyzed , life support . Waiting for neurologist takes a while they should of not s**t my file specially when I still issued . Funny I check on google. Please let us know what is going on with you good luck .
I agree other wise we think we have every thing . 😂😂😂😊🙄
How have you been feeling ang?
I’m in the same boat you are Kyle. I just found a doctor that is willing to help me. Had about15 viles of blood drawn today. Had mri of t spine today. And getting c spine and l spine tomorrow. IBS issues with twitching everywhere. I’m also getting small cramp like feelings. In different parts of my body.
Seem to be getting better. How are you
Hi Caroline. I had axonal damage at first instead of demyelination or both. So when they do the emg they stick the needle in your leg or arm. Mine picked of axonal issues. Luckily for me my immune system kicked in and stopped the attack after three months and my next emg went back to normal and my reflexes were normal. In some people if you had axonal damage it may not completely repair but they can it can take up to 3 yrs or longer. Our nerves repair at a rate of 1mm to 5mm in a day depending on our bodies. Some people dony have a complete recovery in the axons. So you may still have fatigue problems walking twitches in the muscles numbness tingling etc. I had facial nerve issues and so my face stayed numb for 15 months until it started having brief periods it would fade. It comes and goes more now. I still have some muscle twitches but not as much as 18 monhs ago they were all over non stop after 7 mo they faded and now I may have 1 or 2 a day or none then 3 or 4 then none. I never know but hardly any. I hated them so much and not sure if they will ever completely stop since hundreds of people who had GBS still suffere from twitches many years later. I had gastroparesis tachycardia and postural orthistatic hypotension for 4 months in the beginning and blurry vision and weakness all over. I couldn't walk for some months and when I could I couldn't walk down a hall without sitting down. It was terrible. You sound like you had sensory nerve damage. That is why you have the sandpaper feeling. My feet still hurt. I have to wear shoes that cushion and support them well. Some days when I get out of he bed bottoms feel like I am walking on glass after a little while it gets better throughout the day. Hope you are well.
Kenny with the IBS I would check into celiac disease it can cause twitches and etc. Kyle may need to have that checked also. Try a celiac diet see if it helps while your waiting for results.
Thanks. But My GI doc said that he would have seen that in my ct scan or the colonoscopy and he ruled it out. Also did a stool sample. He again said anxiety. Funny thing is I’m pretty calm or as calm as I can be by going through this. When I saw my doctor yesterday for the blood work she actually said that for the doctors to stop at anxiety and depression was garbage and not fair.
I am gonna try the diet though
Also while we wait for answers. I bought something called earth grounding mat on amazon. It has helped me so much. As far as symptoms go. Helps with circulation and I definitely feel a difference. It’s better then popping pain pills everyday. And if you still need them I strongly feel you won’t need as much. I’m on day 6 of using it and it was worth every penny. It was around $120. It looks like you can get a full mattress sizes too. At least do a search on it and read about it. I feel like everyone would appreciate the benefits.
I don't believe anxiety alone causes these symptoms but does make them worse. I strongly recommend strengthing your immune system. I was told by my neuromuscular neurologist that my symptoms are not being caused by a disease. One neuromuscular neurologist at mayo told me it was a autoimmune response to a virus and would eventually go away. Then my neurologist told me it was guillan Barre syndrome. The illness matched guillan Barre and the catalyst was flu and pneumococcal vaccine starting prednisone at the same time. 3 weeks later gbs. I hope you get to feeling better.
Did you get a lumbar puncture for that?