Hypertension help and advice sought

Heart health and blood vessels
21

Cheers for reply MIKE
hope your doing ok in retirement.

the tumour is linked to what they were looking at in conns syndrome told me - however as per my lengthy update below - sorry for this :

my comical story of getting a a consultant to refer me to lobo is as follows:

i was under swindon hospital in wiltshire under consultants in endicrine and cardiology due tichest pain and left arm pain in exertion.

SWINDON CARDIOLOGIST:

angiogram did not reveal anything that required a stent they told me so started me on nicorandil and discharged me

SWINDON ENDOCRINOLOGIST:

condultant run tests located high aldosterone and low testosterone.

nit able to progress so tranferred me to the churchill hospital in oxford.

OXFORD ENDOCRINOLOGIST

withdrew all meds and tested aldosterone which was still high - i think it was 470.

saline suppression test showed suppression of 138 - cut of point for the next procedure renal veign sampling is anything beloiw 140 they wont put you forward - i challenged this but they would not budge stating they believe its the blood pressure causing the high aldosterone not the other way around doing s complete u turn . pituarity scan was normal as was renal scan. discharged me back to gp. asked them to refer me to the next specialist - they refused stating only my go can do that or my swindon consultant - no doubt about where i live and whos pot if money it comes under!!!

SWINDON CARDIOLOGY

back again and the consultant appologised - left the room to seek advice - cone back and stated go back to go to try and trial mire meds - have not heard from them for over a year

SWINDON GP this month:

qoute " i dont know shat to do we have tried all the drugs i can think of, all the drugs directed by them and they dint work. i have asked them fir help and they send you back to me - maybe this is just t you and we should not put everyone in the same box"

wife looses it with gp …

suggests DR LOBO upon google search and then speaking to his secretary. now awaiting fir response on funding!

i conclude with me telling the oxford and swindon specialists that i know longer will be a guinea pig as i gave s ling lust if failed drugs over 5 years with a variety of daily side effects.

i am told i will have a heart attack or strike but if i am lucky enough ti nit have one my organs will fail n the next ten years.

i am married with a two year old with no life insurance willing to now cover me - frustrating but there are many others worst of than me.

Shame im not a super on £65000 plus - i would then have private health care as im sure you are aware - oh dear oh dear - just not right but there you go

im a ten year frontline cop and had this before i joined but only started to do something bout it 5 years ago as my health started to decline and my wife took control .
occ health have suggested i come of shifts now but to me thats admitting defeat - they have allowed me to remain but i had to sign a disclaimer.

cheers
jamie

22

jamie270477…I’m sending you a link that comes from the Mayo Clinic. My GP says that anyone reading things on the internet should be very careful about where they read the information. One never knows if the person who posted the information is qualified, & one also wouldn’t know how up-to-date that information is. He also said that reliable information
soures are the Mayo Clinic & The New England Journal of Medicine.
You mentioned a tumour…sometimes a tumour that’s on the ADRENAL glands causes aldosterone to rise, which in turn raises blood pressure. Hopefully, I’m not repeating myself,
or what you’ve written. Here’s the link:…

Pleaes let me know your thoughts. Don’t give up on this. Insist on having things done.
Cheers, Mate!!!

23

Mike, are you in Canada or is that a different Mike?

24

Jaimie, I’ll put my thinking cap on. There must be a way of getting you referred to Barts Blood Pressure clinic, where Dr Lobo works

25

Jamie,

Sadly your story is consistent with many others when aldosterone is high. Just been reading a paper because I am having a few heart issues related to aldosterone which at the moment I won’t go into details as it’s gone on for 42 years.

“Aldosterone injures tissues and is toxic to the heart. This toxicity, in fact, is seen in the myocardium, blood vessels, renal tissue, and cerebral tissue. Aldosterone promotes endothelial dysfunction, tissue fibrosis, and inflammation. Aldosterone blockade has a prominent future as a tissue protector”.

I’m not saying your heart issues are deffo related to aldo but I am just flagging up a possible link.

Regarding Internet help, I can verify the background of our Forum Doctor Grim on Yahoo as he took my case study to the American Heart & Hypertension Scientific Sessions Conference in Chicago 6 Sept - 9 Sept. I flew out there and co-presented with him. Had the opportunity to talk to 4 leading researches who suggested some new strategies for me to try and they explained things to me that were not fully understood by many Endo’s in the UK.

I hope you join our group. Good luck with everything - your not alone in this.

Paul

26

cheers mike
i will take a look

27

i am struggling to find it paul but will look again

can you pm me the details

28

Yes, I am in Canada.

29

Jamie,

The link is not going your way as its off to the Moderator. No idea how long that will take! Instead this will get you there.

Go to Yahoo’s home page
Click on More . . .
Click on Groups
In top search bar type: Hyperaldosteronism
That’s it!

Paul