My endocrinologist and eye specialist does not recommend RAI if you have thyroid eye disease, which I have, the mild form. They both say it will make eyes worse. I was diagnosed in Feb 2015 with graves disease after going from hypo to hyper. My endo (in Feb) and yesterday my eye specialist, both recommend taking selenium, which has helped my eyes get back to normal as they were red and one eye looked more open than the other.
The commonest symptoms are mild soreness and grittiness of the eyes. Surprisingly, one eye is usually affected more than the other. There may also be increased watering of the eyes, a dislike of bright lights and a feeling of discomfort behind the eyes especially when looking up or side-toside. Puffiness of the upper eyelid or around the eyes (‘baggy eyes’) is also common and is worst first thing in the morning. The eyes often appear ‘starey’ and drying of the eyes or too much tears can cause blurry vision, which may come and go. Also some people get double vision. I am in the UK and am on block and replacement (since June).
Hope this helps 
Thanks Mehnaz.
I was diagnosed with dry eyes and wondernif they made he corrct diagnosis as I do not know how they can diagnose thyroid eye disease.
Thanks. That was a briliant description in every single detail of what I experienced.
So it sounds as though I had the thyroid eye after all. I had not been diagnosed with the thyroid problem at that stage when I had problems with my eyes. They are actually a bit troublesome at the momneet with blurred vision and dy but notng like as bad as previously. Touch wood.
I was prescribed lacrilube at night initially then artificial tears unable to tolerate either.
The grittiness and red eye was caused by concretions that were removed under the sllit lamp.
I had a posterior vitreous detachment as well plus usss eyes and retinal photography.No retinal tears but have to keep going back esp if vision becomes more blured or have more floaters or get any flashing lights.
Sunlight bothers me . Also at the moment the light appears very bright.
What treatment did you have for the thyroid eye?
Lucy.
Just taking Selenium, as my condition is only mild. Endocronoligist and Eye Specialist both recommend it, they don't recommend RAI as could make condition worse. Not sure what the treatment would be if it got worse, hoping it will improve once my thyroid is stable. Fingers crossed x
Hi just updating u on RAI I had on Tuesday .
I'm kind of feeling hyper , I'm getting emotional quicker on little little things my head feels full , got a sore throat but it's not dat painful , feeling cold sometimes then sweating most of the time , dry mouth . I'm drinking plenty wAter ,
My doctor has told me that I may get hyper activity within the 2 weeks of treatment so Der u go I'm feeling like dat, I hav to start my carbimazle after 5 days of RAI . It's the third day yet so maybe when I get on my carbimazole may start feeling better , I'm still taking my proponolol tablets as doctor instructed me but not helping much ,
And I also couldn't go asleep at night I nocked out at 2am , cause of my dry mouth I have to drink loads of water and then in the middle of the night I have to go pass urine 2- 3 times
Hi, how are you doing now after your treatment ? I hope you are well !
Hi Linda, what do you make of these results - I know it's only TSH and FT$ (that's all they do). I'm presently on 40 mgs Carbimazole and 100 micrograms Levothyroxine and feel cold most of the time (weather mild here at the moment but not to me), very tired and very anxious with pounding heart. I see my Endo on 30th December. Do I need more levothyroxine ? These results are my October results. Previous results from August and September are all either UNDER low reference limit and OVER low reference limit.
Ocotber:- TSH 6.42 (0.34 - 5.6) "Above High Reference limit"
FT4 12.4 (7.5 - 21.1)
Would be grateful for your thoughts please
Christine